Your question about fibro coming and going. I've had CFS or Fibro for at least 10-12 years, I think it might have been longer but I don't have any medical proof of that. Anyway, I've had "good years'" & "bad years". For a while I felt so good that I thought it was all a mistake or I got over it, until the past year or so. When I finally had time to sit back and really think about how I've felt for the past several years. I can say I didn't have a bad flare, but I wasn't as "healthy" as everyone else. I had lots of times when I was experiencing pain and fatigue but I would attribute it to lifting something too heavy or doing too much physical exercise or stress. I think I was in denial. What I've found out since then is.. the stuff I was doing wasn't too excessive and shouldn't have created so much pain and fatigue. I've had this so long.. I don't know what "normal" feels like anymore.
I'm glad you're getting all of the proper tests done. And as LeeAnn said, be sure to be tested for Lyme Disease. Fibro and Lyme have a lot of symptoms in common.
Please feel free to come back, as questions and get to know your fibro friends and family.
Hi Kathy...I was dx'd with fibro in the mid 90's and have periods of time when I thought they made a mistake because I didn't feel that bad. It does come and go and at first I didn't have any problem with sleep. yes...I have had spells of muscle weakness, once so bad I couldn't sign my name on a check. Like the others have said, it's a good idea to have everything else that mimics it ruled out. But everyone's experience with this disease is different. I have a friend with it who doesn't get the fibro-fog that I have, and so far I don't get the muscle spasms that she gets every day. It's a riddle within a riddle!
Hi Kathy and Welcome-
I got fibro about a year ago now (I am 52) and it hit me hard. I did do Physical Therapy for many, many weeks and I feel it did help me. I had no endurance even to walk 30 ft. when I first started therapy. My first appointments caused "bad" pain and to the point I did not want to return. I stuck it out though. I feel like my body has gotten as far as it is going to go (right now). I can walk three long blocks, or a short trip into the grocery store or another store, and at the mall, I can walk a third of it. If I walk any further my muscles cramp and the pain hits. The therapist taught me deep breathing and gentle exercises and did alot of educating me on fibro. I know some people therapy works and for some the pain becomes too much and they can't do it. I do know I was able to build up muscle strength.
Sounds like you have a wonderful family-