Tired of being in Pain and Tired

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

pr glo
Regular Member


Date Joined May 2008
Total Posts : 78
   Posted 3/9/2009 10:59 AM (GMT -7)   
I am 36 yr old hispanic female married with three kids 17, 14 &7 years old.  I have been diagnosed with Psoratic Arthritis for over a year and Fibromialgia I amalways in pain and always exhausted I am taking meds for both things, Remicade Infussions, Methotrexate, Prednisone, Hydrocodone and Amytryptiline to help me sleep at night will I ever feel better I am so exhausted and in soo much pain I don't know what else to do. My daughters help me clean and cook because I feel like an invalid I can't do much of nothing believe me I try I have even tried exercising for over a month now but I literally push my self because I can barely get out of bad most days and I do have to go to work but I have been getting in late because it's a chore to get out of bed I'm afraid one day my boss will say I don't need you anymore. And my Husband doesn't believe me that i'm soo sick most of the time he says I'm just lazy and making excuses not to exercise or not go out anywhere he says it's all in my head. I have gained weight due to all of this and I'm trying soooo hard to lose it but when I exercise it takes 3 to 4 days to recover to exercise again My feet and knees and hands kill me. What else can I do I sometimes feel like just stop taking all my meeds because I don't see a difference I feel worse day by day. I have also become very moody due to all the stress I feel bad for my kids Please help!!!!!!! PR Glo    

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/9/2009 11:39 AM (GMT -7)   

Hi Pro glo!!!

I wanted to say hi.. I don't remember ever meeting you before. 

I'm sorry you're having such a hard time right now.  I hope we can help you.  I always recommend that if you're having problems talking to your family to go on to the 2nd thread of the forum called Fibro 101.  There's a section on there call "Spoons" its a great way to explain what it's like to have fibro to people who don't understand.  There's also another section called "Letter To Normals" that one is good for those that REALLY Just Don't Get It!! 

If you're not getting satisfaction from your medicines go to the doctor and be sure to let him/her know that they aren't working as well as you had hoped.  Sometimes we get immune to the medicines that we're taking.

I recently went to my doc. and talked to him about P.A. since I have psoriasis.  I came up negative, thank goodness. But I read up on it and its really a terrible form of arthritis.  I'm sure it's very painful.  One thing about P.A. is at least its something people can see, not like fibro - where people can't see your symptoms. 

Though your husband doesn't understand, we sure do.  Please feel free to come here and talk.  Sometimes just getting your frustration off your chest is what you need to help you feel better.

Take care and gentle hugs,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 3/9/2009 11:49 AM (GMT -7)   
Hi PrGlo,

Welcome to the fibromyalgia forum. I can see you are sick and tired of being sick and tired. That is what I call it.

I also take hydrocodone, but I take adderall for energy. It keeps me going throughout the day. That might be something to talk to your doctor about. It can also help with weight loss. Though I can't seem to lose a pound for the life of me. When I exercise I gain muscle but don't lose any weight. But that is my problem.

I am glad that your daughter helps you. That must be like a Godsend to you. My husband is understanding and helps me a lot. He does so much around here that I feel guilty. There is so much more that I feel I could be doing.

I see that you have already been directed to fibro101, that is a wonderfully helpful thread to read. There is a wealth of information on it. So read read and read some more. You might want to print off some of the information as was said above by Patti.

I hope that your day gets better, remember you are around people who understand and care about you. We will always be here.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


BuddasMom
New Member


Date Joined Mar 2009
Total Posts : 11
   Posted 3/9/2009 11:50 AM (GMT -7)   
How well I know the feeling of being sick and tired of being sick and tired! I wish I could add that I'm not going to take it any more but I don't seem to have a choice so I just try to direct my thoughts elsewhere, and that takes a concious effort to do so. The worst thing I can do is allow myself to dwell on the pain, or the things I can no longer do because of it. I don't think it is benificial to 'push' yourself too much either. I have learned that I need to stay active to a certain degree but if I overdo then that will do more damage than doing nothing. It's a tight rope we walk isn't it.
Just know that you are not alone and at least you have found this group to talk to. I know from my experiance that at least can be a big help. I hope you feel better and try not to let it beat you!

pr glo
Regular Member


Date Joined May 2008
Total Posts : 78
   Posted 3/9/2009 1:57 PM (GMT -7)   
THank you guys for your feedback and your kind words. I'm glad to have people like you to share my pains and aches with I do need someone to blow off steam with as I don't know anyone personally that understands what i'm going through or is going through the same thing as me. Especially I have no support from my Husband he just thinks I'm a complainer and that if I exercise every day all my aches and pains will go away I don't know how else to show him I am sick and in pain and exhausted it's not all in my head or I'm not being lazy. I will definately go on 101 and read and read and I will definately talk to you guys more often. Thanks sooo much Guys My spirits are a bit higher after talking to you guys. My daughters are a blessing they know I'm in pain and they help alot around the house. My Mom also comes over and cleans for me when I'm not well. But Thanks again. GodBless. PR Glo   

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/9/2009 4:01 PM (GMT -7)   
Hi again PR Glo!!
 
I know how hard it is to have a husband that doesn't understand or support you when you're sick and especially when you are plagued with a chronic illness.  Most people with Fibro have more than one disease or syndrome, I'm sure you might have noticed that in our signature's bio.  If he isn't receptive to the idea of reading any of the links I suggested earlier perhaps you can bring him along with you to the doctor sometime soon.  Maybe your doctor can explain some of your medical problems to your husband. 
 
Often times spouses have a really hard time accepting their partners illnesses.  I learned this while I watched my mother care for my dad when he became an invalid for almost 10 years.  Dad's medical problems were pretty extreme.  He had an ostomy, that she had to tend to and he had Hepititis C so he had to be handled very delicately.  After several years of these life alturing changes, my mother became increasingly annoyed with him, or atleast that's the way it appeared on the surface.  But as time went by and dad's health declined more and more, I realized that my mother wasn't really angry with my father.  She was angry at his illness and she was disappointed in the direction it took their lives.  I know it was a lot of work for her and she was exhausted by the time my dad passed away. 
 
I think our loved one's disbelief in fibro is all based on denial.  They don't want someone that they love to be sick (none of us do), they don't want to make the necessary changes in their lives to accomadate someone with a chronic illness and aftertime they get angry at what's happening to their spouse (or other family member).
 
When I had Lyme Disease I watched just that happen with me and my ex-husband.  In the long run I learned that he just couldn't deal with having his wife be sick.  He was immature and looked at me more as a mother than a wife.  He could barely take care of himself, let alone me and my son.  It took alot of soul searching but when I realized what was happening I knew it was time to move on.  So, I left.   Please don't misunderstand, Im not saying that's what you should do.  I just think I understand why our friends and family members feel and act the way they do. 
 
I think once they hear if from a professional it changes the way they accept the reality of it all.  And bringing them out of denial is the first step to getting them to understand.
 
I  hope that helps.
 
Hope you have a good night and sleep well.
 
Warm hugs,
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 3/9/2009 9:24 PM (GMT -7)   
Hi, PRGlo!  I use malic acid/magnesium supplements that have helped me with my pain and fatigue.  They don't work for everyone but there are many members that have gotten good results with them.  I put a link in the Fibro 101 thread all about them and how they work in your body.  They are not really expensive, either.  It might be worth a shot.  Be sure to talk to your doctor or pharmacist to make sure this wouldn't interact with your other medications.  My doctor thought I was wasting my time trying them but he said they wouldn't hurt me.  I'm so glad I tried them because they really help me.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Ms.D
Regular Member


Date Joined Dec 2008
Total Posts : 38
   Posted 3/17/2009 12:31 AM (GMT -7)   
Hi PR Glo, I was reading your posts, You said you have no one who understands, Did you forget about me? You know i'm here for you at anytime. We are in the same boat with no paddles lol! I try so hard here at home too, and it's been like so difficult. I sometimes cry becuase, No one here understands. The girls help me and sometimes Gil, but you know how it is, It's never enough! Or It's all in my head... I find myslef dragging my feet because I just can't walk no more, or holding on to counters while trying to get of place to place at home because my back is killing me. So when you say no one understands, " I DO!". Here it is 2:17 am 3-17-09 and i'm still awake because my legs, my feet, my knees, back hurts, and tail bone hurts so bad, oh not to forget the tingling and the swelling . I'm just want to cry!!!! cry   Well I think im going to go to the rheum and show him a patch on my ankle, he told me if I had any, to come show him. I'm going to lay down and pray I can get some shut eye... You are always in my prayers...  Love Ya Your Twin tongue
GREATFUL AND BLESSED! 
 
FIBRO, IBS, MIGRAINES, TMJ, ARTHRITIS IN BOTH KNESS, PITUTARY ADEDNOMA, MITRO VALVE PROLASP, Bakers cyst behind left knee.


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 3/17/2009 7:16 AM (GMT -7)   

Hi Pr Glo and sorry to hear your having a tough go of it. No better place than here that people know exactly what your going through. OK hubby- this stuff is real! Like Patti stated, has he ever gone to the Dr. with you where they can tell him this is real or research it? Your plate is more than full with working and raising three kids (bless your daughters for helping). Your body may be saying it cannot keep this pace up. Any ins. for family counseling? It sounds like you need your families 100% support and to come up with some kind of game plan to ease some of this stress.

Let us know how you are doing-

GamJill 

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Realest
Regular Member


Date Joined Mar 2009
Total Posts : 27
   Posted 3/17/2009 8:55 AM (GMT -7)   
Hey
I'm NOT a doctor or pharmacist but that is a heavy duty load of meds. you are taking. Is that even safe to be taking at the same time.? That could very well be the reason that none of them seem to be giving you any relief. If you aren't familiar there are non-steroidal anti inflammatory drugs (NSAID) you can take instead of prednisone, and other painkillers other then hydrocodone. That being said if you stop taking hydrocodone you are going to through a detox that will make you feel sick as well.
I think you need to talk to doctor about all your meds., make sure they are safe to combine, and or change them to find a combination that works for you. We all know the feeling of being sick and tired of being sick and tired, hopefully you can find some relief soon.

Take Care

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/17/2009 9:06 AM (GMT -7)   
Hi pr glo and LilmissD and welcome. I think being sick and tired of being sick and tired is the fibro motto. It does get old but you are never alone with fibro on here.
 
I know it is hard for families to understand fibro cause I would have never understood it before I got it. But do some of these people believe we willingly gave up so much of what we were use to doing just because??? Yes, I still live my life but on a scaled down version of what it use to be. I have a very understanding husband but I still have family members that don't have a clue. So I hope you can educate your families with the info on here to help them understand that fibro is as real as it gets.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 11, 2016 6:46 AM (GMT -7)
There are a total of 2,736,303 posts in 301,366 threads.
View Active Threads


Who's Online
This forum has 151461 registered members. Please welcome our newest member, jalertaan.
225 Guest(s), 10 Registered Member(s) are currently online.  Details
John_TX, Fl Drifter, TotesMagotes, tickcheckguy, mrs. george, Dr WHO, Lynnwood, franko63, CCinPA, stixandstonz


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer