Savella delay....

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KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 3/10/2009 10:58 AM (GMT -7)   

Hello Everyone,

I just read this article today. I have an appointment tomorrow w/ my rhumatologist (finally) and was planning to ask for it. Better come up with a plan B....

http://www.forbes.com/feeds/ap/2009/03/06/ap6135781.html


Kerri

Fibromyalgia since 2007

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 3/10/2009 1:53 PM (GMT -7)   

Hi Kerri!

Good luck tomorrow! :)


JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 3/11/2009 10:35 AM (GMT -7)   

Thanks, Jokat. :)

Well, after a less than productive visit with my very nice rheumatologist, I have regretfully decided to find a new doctor. I need more aggressive treatment for my fatigue and cognitive issues and my current rheum. is only really willing to prescribe cymbalta or lyrica - both may be affective for pain, but will not necessarily help with the other two troublesome symptoms.

So.....I made an appointment with a doctor in Boston for April 10th, who claims to specialize in Lupus, Fibro & CFS. I am hoping that they will be on the cutting edge at this place and will be able to offer me other options. Here's hoping....

Hope all is well with you.

Kerri


Kerri

Fibromyalgia since 2007

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 3/11/2009 12:36 PM (GMT -7)   

Sorry to hear that Kerri.... I know changing doctors was a hard desicion to come to.

How has work been going for you?

Keep your chin up! You will find the right doctor for you!
 
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 3/12/2009 6:55 AM (GMT -7)   
Thanks, Jokat. :) I will keep my chin up and remain hopeful that I can find a treatment that helps.

Work has been rough, until I talked with my boss yesterday. She is unbelievably understanding and was the person who encouraged me to find a doctor in Boston, where they would be more familiar with the latest available treatments. I am quite blessed, as far as that goes.

I decided that, today, I am going to do everything I can to keep a positive attitude and focus on what I am still able to do well. I'm going to try to forget about the overwhelm and discouragment I've been plagued with over the last few weeks and try to make a fresh start once again. Today on my way to work, I said to myself "It's not the load that breaks you down, it's the way you carry it." So, I'm going to break down everything on my desk into very small, workable tasks. I think I just need to have a couple of productive days and I will feel a little better. My ego needs a little boost.

Oh, different subject - what do you do (or anyone else here) for exercise? Do you run/jog?

Kerri

Fibromyalgia since 2007

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



moonmatrix
Regular Member


Date Joined Mar 2009
Total Posts : 178
   Posted 3/12/2009 7:09 AM (GMT -7)   
Yoga and Pilattes. Both started as a way to deal with horrid knee problems before onset of fibro. Only issue I am having is going back to the beginning and doing baby steps. If you would like more inbfo I can send you some web links and what I am using right now. It really helps stretch me out without causing too much pain. Also doing it from home I have no worries about the others around me judging me. Good luck and I loved what you said, "It's not the load that breaks you down, it's the way you carry it." If you do not mind I am going to use this as my mantra for the day!
Hugs,
Angeline

Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 3/12/2009 7:39 AM (GMT -7)   
Hi Kerri,
 
I am sorry that it has been a rough time..... I missed your contributions to the forum lately, we seem to have very similiar outlooks.
 
Great idea to break down the work load into "manageable portions". Small accomplishments build into a larger snowball of success.
 
I do not purposely exercise.....It just sort of happens. I play alot with my daughter and wife and am very active with my job.
 
My wife and I used to go to the YMCA and walk the track. That usually went pretty well.....
 
I think you are doing a great job of handling FM, work, and family. Keep it up and stay positive! :)
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 3/12/2009 8:26 AM (GMT -7)   

Angeline,

I stole that saying from Jokat - I'm sure he wouldn't mind you using it as your mantra. It is great, isn't it? Thanks for the info on pilates & yoga. I've been doing yoga & I love it. I'm not as familiar with pilates - is that difficult to do without having aching muscles afterward?

I'm looking to branch out with my exercise, but I get so bored just exercising for the sake of exercising. I thought if my husband and I signed up to do fun runs or 5k's, I would have a goal to shoot for and it would make the exercise a game and hold my interest - I like to compete with myself. I didn't know if I could handle the running, physically though. I may try it anyway, just to find out. Hey, what have I got to lose? Maybe it will actually help??

Jokat,

Thanks for the kind words, I do appreciate it. It's been a rough few weeks for me, but I'm sure I'll be ok.

Negativity just doesn't suit me - when I start to feel hopeless, it seems that nothing goes right and everything just gets worse. I know you are much the same way and I'm glad you are on here to remind me that I can do it - and that I'm doing well, in spite of any difficulties I might have.

I take it pretty hard when I'm not "on the ball" at work. I need to stop being so hard on myself, because it's really not helping me. Success at work is quite important to me - and not just for financial reasons. I don't like feeling like a bumbling idiot, which is much how I've been feeling lately. But, beating myself up will only lead to me being less productive and to making more errors, so I need to knock it off. I think you might understand this.

I'll be ok - I'm really feeling better today than I was yesterday, simply from deciding to change my attitude. It's funny how important attitude really is.

Thanks again.

Kerri


Kerri

Fibromyalgia since 2007

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 


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