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Veteran Member

Date Joined Jul 2007
Total Posts : 1303
   Posted 3/10/2009 2:11 PM (GMT -6)   
Okay, I "think" I did it! What did I do you ask?
I have been weaning off my Lyrica. I had been taking 225mg twice a day for 15 months. Withdrawal was kicking my but for 2 weeks straight. But, now I havent taken any in 3 days! And I feel okay, so I've managed to wean off of it!
I have already noticed a difference. My sleep has been weird. I have been SUPER sleepy, but I wake up once or twice every night. With Lyrica I could sleep through the night. I also felt rested, but now I dont. So, it has negatively affected my sleep.
It has also affected my attitude. I think I've been more "aware" or "happier" so to speak. I have been doing things, like playing basketball outside(its nice here right now), I took my neice to the park...etc.
I have noticed slightly more pain, knees, neck, back, etc.... But, its not completely unbearable.
Thats what I've noticed so far... but I'm proud of myself for being able to handle the withdrawal and not giving up! There were times when I really wanted to take a dose early or just forget it and stay on, but Im glad I made the choice to get off.
Either way, I have gotten positive and negative results.... Anyways, I just wanted to share that news!
Lyrica(15 months,but working on get out right now) and Paxil(about 6+- months)
Fibromyalgia, Depression, Anxiety, Panic Attacks-currently in therapy
"Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
"Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 3/10/2009 2:25 PM (GMT -6)   
Good for you!!! I've never taken Lyrica, but I have heard it can have some icky side effects. Sounds like you're doing pretty well off of the med-I'm sorry to hear it's messing up your sleep, though :(

I hope you continue to feel good without Lyrica-and I hope that happier attitude sticks with you! :-)
love and hugs

fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

Regular Member

Date Joined Jan 2009
Total Posts : 386
   Posted 3/10/2009 2:26 PM (GMT -6)   
Good for you! I weaned off almost a year ago with my Gabapentin, I was up to 1200mg. I got down to 300mg but I was having many probs. So, I up'd it one more pill (300mg) and it helps. I really want to get off the Pristiq. I'm seeing my pcp this week and plan to ask about weaning off that one.

Take Care,
Dx Fibro 1/2008, gastritis
600mg Gabapentin, 50mg Pristiq, Ultracet and/or Fentanyl patch as needed, Vitamin D3, Menopausal Support Multi-vitamin

Forum Moderator

Date Joined Apr 2005
Total Posts : 17059
   Posted 3/10/2009 2:46 PM (GMT -6)   
It sounds like you are doing really well, Tennis!  You are a very strong person and I know you can do whatever you want when you put your mind to it.  Congrats!  I hope all negatives stay at a minimum.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jun 2008
Total Posts : 716
   Posted 3/10/2009 3:04 PM (GMT -6)   
Good job!!!  Yea!!!!  Good for you.  When you said you were going to go off of it I was worried because I have a friend who is Bi-Polar & has terrible migraines & she took Lyrica.  She doesn't have Fibro.  She has taken some meds she has had to go through terrible withdrawals to get off of but she told me Lyrica was the hardest to come off of & she will never complain again when coming off of something else.  I am so glad you are finished with that.  Don't you just love the outdoors in the sunshine?  GOOD JOB!!!!!
Hugs to you, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40404
   Posted 3/10/2009 3:30 PM (GMT -6)   
Hi Christi,

I am happy that you got off of the lyrica sucessfully. I know it can be hard. But you did it and we are all so proud of you. I think that you could do anything that you put your mind to.

Have a great day,

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Jun 2008
Total Posts : 204
   Posted 3/10/2009 4:16 PM (GMT -6)   
Wat to go hun. I am actually going to ask the doc tomorrow to start getting me off the Lyrica. I did not hurt this bad before starting it. It was great for the first month or so now, It is not helping and if anything it is making me worse.
Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1371
   Posted 3/10/2009 7:58 PM (GMT -6)   

I had 2 drs. put me on Lyrica, didn't work well for me either time. They thought I was being difficult. I couldn't stand the side-effects. I went to a rheumy in Jan who mentioned it, I thought she would be dr. #3 to recommend it, No - she said she had many patients who couldn't tolerate it for many reasons. She didn't feel it was 'all' it had been built up to be.

I'm glad you were able to get off it and start to enjoy 'living' again. It must be nice weather down your way now, it's good that you can get out and enjoy it. Hope all good things continue your way.

God bless.  Alice.

stitching star
Regular Member

Date Joined Oct 2008
Total Posts : 38
   Posted 3/10/2009 11:13 PM (GMT -6)   
Can I ask what side effects you have had? I have been on 150 mg lyrica 3X/day for about 3 years. It really helps with my feet - w/o it they feel like I am walking on shards of glass or a cactus. They also have helped prevent my migraines.

I know that if I don't take it for a few days my legs start feeling very jumpy and strange. And I had a major seizure - sort of event last year after throwing up the lyrica for a week b/c the flu. I was actually IN the ICU for a day and a half before I knew where I was and what was going on. They thought I was coming off of METH!!!!!

I even tested positive for meth b/c I was taking phenergan - it can show up as METH in a drug screen! They couldn't interpret the other results properly so they though I was on Soma and robaxin, but as the body breaks down Soma it becomes robaxin (mebrobamate) until it is further broken down. So they though I was taking drugs not prescribed, all sorts of things.

So I do worry about what would happen if I weaned off it. But could you tell me what you experienced as withdrawal? Thanks so much.
SAHM, kids are the light of my life
dh of 17 yrs, my sweetie
ds 16yo, great kid, Sr. in high school
dd 13yo, my reward, homeschooled
ds 8yo, amazing kid, great magician
2 furbabies - Gracie and Capn Morgan, both cats
1 featherbaby - cockatiel - Goldi the Evil
I have always imagined paradise will be some type of library.
     -Jorges Luis Borges

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40404
   Posted 3/10/2009 11:28 PM (GMT -6)   
Hi Stitchingstar,

I am sorry for what you went through when you missed your lyrica. I use to take neurontin, which is like lyrica and it made me stutter. It was horrible. I didn't like it.

Hope that you are having a good day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

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