ARRGGGHHHH!!! So frustrated with doc's nurse!

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stitching star
Regular Member

Date Joined Oct 2008
Total Posts : 38
   Posted 3/10/2009 10:56 PM (GMT -6)   
I am SO FRUSTRATED with my rheumy's nurse. This doc strongly feels that pain should be treated. He has worked really hard to help me.

But I missed an appointment. I was throwing up b/c my child brought a bug home from school. NO way I could ride 1 1/2 hours to see him while barfing. He would have been upset if I had.

But my ins co changed the pharmacy rules. I have to use THEIR company-owned mail order pharmacy to get pricing I can afford. Period. I can use the local pharmacy but it costs SOOO much more. (though I do use WalMart for my estrogen and thyroid meds b/c I can get 1 month for $4 or 3 months for $10 and the insurance is a minimum of $10 for 1 month and $20 for 3 months.

Anyway, the mail order pharmacy has a different brand of my pain patches. It is totally different. And the adhesive is bringing up welts on my skin. I cannot get any coverage for the brand name. Period. If there is a generic available I have to use that or they will not pay. I even went to dh's company's HR department and THEY couldn't help.

So I called the doc. It took THREE calls with the nurse to get her to understand this. She told me to get the brand name. I said I can't afford it. I can't afford the other generic b/c the mail order won't get it and the budget is tight.

I kept explaining. I also need an adjustment of my breakthrough pain meds. they just are not helping enough.

So after 3 calls they told me to take 2 of my breakthrough meds and they would send me to a pain mgmt doc.

I HATE pain mgmt docs - or the ones I ahve seen. One decided that b/c I was female and under 35 I was just a junkie. Wrote DRUG ADDICT DO NOT TREAT on the inside AND outside of my file right in front of me!!! Then refused to treat me period. I didn't even mention pain meds to him!!

The other one I saw did an epidural steroid shot in my neck. He did it wrong and i was incredibly ill for 2 weeks with a non-stop headache the likes of which I had never had. I am serious, if I had a gun I would have blown my head off it was that bad!

The doc was nice, told me I should be seeing HIM not my rheumy. But his staff had already said that 15 years of records of pain from fibro and arthritis and migraines was not enough history to justify taking up the doc's time. that is EXACTLY how the letter phrased it. Not enough history to justify taking up the doc's time.

so I am terribly afraid they will send me to one of these 2 docs. And of course I dread the "drug addict" slander - I am NOT. I don't EVER get high. ALL I want is to feel better. Not even pain free. But a steady 5 instead of a steady 7 1/2 shouldn't be too much to ask, is it?

Anyway, thanks for letting me vent. If you have any ideas to help any of this, I would be thrilled to see them. Thanks for wading through all this.

Hugs to EVERYONE!!!!! yeah
SAHM, kids are the light of my life
dh of 17 yrs, my sweetie
ds 16yo, great kid, Sr. in high school
dd 13yo, my reward, homeschooled
ds 8yo, amazing kid, great magician
2 furbabies - Gracie and Capn Morgan, both cats
1 featherbaby - cockatiel - Goldi the Evil
I have always imagined paradise will be some type of library.
     -Jorges Luis Borges

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40403
   Posted 3/10/2009 11:57 PM (GMT -6)   
Hi Susie,

If the doc writes something on the script, they have to give you brand name, or did you say that you can't afford it. Even with the mail order? I am thinking about switching to mail order to save money, but I worry something will happen to it on it's way to me. I think I can get three months for the price of one with mail order. I will have to check with them. They tried to scare me into it at one time and made it look like I had to, so I called them and they sent me a letter of apology.

I actually hate taking medications. It is stressful just to fill my pill box on Saturday nights. But am always glad when I get it done. Sorry for rambling.

I guess I dont' really have any suggestions for you. I guess I just wanted to chat.

Have a great day,
Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Jan 2009
Total Posts : 376
   Posted 3/11/2009 1:46 AM (GMT -6)   

Hi Susie -

Just another thought for the skin irritation from the patches.  My Catapres (BP med) patches also cause irritation from the adhesive.  My patches come with a secondary patch - you can remove the medicated patch, put it in a new place, and then put the secondary patch over it.  It really helps since the time is cut in half.  My patches are replaced weekly.

I'd rather put up with some skin irritation than the side effects from the oral med.  I have my wife put the patches on my back - they are out of the way and don't get much extra irritation there.   

Lyme, anxitey, depression, chronic C. Pnuemoniae
"... expect the unexpected ..."  (O. Wilde)
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/11/2009 7:31 AM (GMT -6)   

Hi Susie,

Sorry you're having such a rough time right now.  I really don't have much advice, but I just wanted to let you know I read your post and I think its awful the way you're being treated.  One thing I would do, is respond to that letter you were sent from the doc. that said you were "wasting his time" and let them know.. It was a waste of your time too.  CC the state board of medicine, letting them know as well (include a copy of the letter you got with it).  Also send the letter to the Chamber of Commerce in the town where that doc. practices AND a letter to the Better Business Bur.   Be sure the doctor sees that you have sent the letter to all of those agencies.  Since you will most likely never see that doc. again you have nothing to lose.

Hope that helps and you can find a better doctor.

Warm hugs,
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

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