I saw the gastro doc

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 3/11/2009 7:58 AM (GMT -7)   
Well, I finally saw the gastroenterologist yesterday. I have had two other appointments with him, only to cancel because of weather or feeling crappy. Anyway, he was wonderful, I really like him! I was so anxious, wondering what he'd be like, what his opinion is on fibro, even though I'm not seeing him for that, I knew we'd be discussing it when he took my history. I am long overdue for a colonoscopy, a baseline one, which was due at age 50, almost 8 years ago. So I set that up. He is also going to do an endoscopy at the same time due to some of the problems I've been having for about a year and a half, which seem to be like irritable bowel, or colitis. Also, I am very vitamin D deficient, even though I take massive doses of it (600,000 units a month - under the care of an endocrinologist) and I need to find out why. Vit D is absorbed in the small intestines and if I have something going on there, like celiac, then that would be the reason for the malabsorption, hence the reason for the endoscopy and biopsy. He will also take biopsies during the colonoscopy to rule out colitis.
 
He did say the irritable bowel syndrome and fibro are "twins"...that they go hand in hand...I never heard that before. Just wondering how many of you have IBS?
 
So now, the waiting game until I get the procedure done, which will be next month. Just thought I'd share... tongue thanks
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


acscr9
Regular Member


Date Joined Jan 2009
Total Posts : 55
   Posted 3/11/2009 9:31 AM (GMT -7)   
MT,
 
I am so happy that you are comfortable with your GI doctor, that makes talking about these things a little easier. I want you to know that there are people around here that have gone through this stuff and we can walk you through anything you want to know...hopefully. :-D
 
I am 24 and have had more endoscopies than I can count! You won't remember a thing...for that and the colonoscopy. Do you know if you have to drink your prep for the colonoscopy of if you get the pills? I took the pills. Yes, I am 24 and have already had a colonoscopy. Turns out I am fine (now). I believe they took the biopsy and I was not diagnosed with Celiac. However, I am gluten sensitive and do my absolute very best not to ingest any gluten. I have been doing that for about 3-4 months and I feel great! I think it really does affect the fibro and DEFINITELY the IBS for sure!
 
I was diagnosed with IBS before the fibro and it was actually my GI doc that referred me to the rhuemy for more testing. So it is good that you have a GI doc that understands the overlaps. I would not rule out any GI stuff though...I had acid reflux for years before having the surgery (lap nissen fundoplacation) in august of 06. Best thing i've ever done' lol.
 
Anyway, hope this helps and eases your "fear"...lol. If you have any questions, let me know. The GI doc seems to be my area of expertise, haha.
 
Happy Hump Day!!
Aimee
24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
 
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
 
Played college soccer. Going back to school to be a Registered Dietitian.
 
"I control the disease, it does not control me."


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 3/11/2009 9:53 AM (GMT -7)   
Hi Aimee,
Thanks so much for the information! I do have a question about gluten free eating. When you say you have been gluten free, just wondering...do you read all labels, like sauces, marinades, etc? I have tried to go gluten free, shopping at Whole Foods, and Trader Joe's and now some of our local stores are carrying gluten free products. I've done this for about 1-1/2 years but honestly, I am never completely perfect. I always end up eating something about every five to six days and then go back to gluten free. I cannot honestly say it has made a difference in how I feel, but maybe it's because I've never really been completely gluten free?

My husband had the colonoscopy and endoscopy and I was there with him, so I do realize that I will not be aware of what's going on, thank goodness!

They gave me a prescription for something to drink, called "Movprep". Yes, I know I am in for a real treat!!
thanks again,
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


acscr9
Regular Member


Date Joined Jan 2009
Total Posts : 55
   Posted 3/11/2009 1:34 PM (GMT -7)   

Miriam,

Yes indeed, i read ALL labels. And even to the point of eliminating food that were only on the MIGHT be bad list. I read for Maltodextrin and eliminated it for months, only to realize that it can be derived from corn and if it is derived from wheat, it HAS to be labeled. The FDA is certainly helping matters.

I have really tried to watch the marinades and sauces (soy sauce was a surprise). I knew that those would be a problem early on when i made a healthy taco salad. I had corn tostitos and ground turkey and lettuce and tomatoes and cheese...and come to find out the taco seasoning that i put on the ground turkey was the culprit to my fetal position. i am not sure how the gluten affects you, we are all different, but for me it is nearly instant and I feel like i have ingested a toxin and i just have to wait it out. I can usually tell with in a half hour of eating and it lasts for 3-4 hours. I think it takes a few days to fully get out of my system. that is possibly why you have never fully reaped the benefits of being totally free.

I know it sounds like a pain, and it is. But you are certainly in the right direction with the whole foods and trader joes. If you want, i can give you some of my favorite brands of things to look for. I also am starting to think that I am loosing weight from the "diet." And that can't be too bad. you know? I can honestly say it has taken a few months of being totally free for the diet to stick and for me to notice a difference. There have been hickups along the way, but for the most part, it has really helped with my fibro and i am actually able to excercise again and not take naps. I don't know if it is all the diet, but i do feel better.

Good luck with the testing. i hope you get some answers (not sure if i should say we want them to come back negative or if you want to find something. you never know with these suckers). Just know that i had every test imaginable at the GI doc and all he found was a bit of esophagal erosion from my acid reflux and ALL others came back "normal" turns out...it was fibro (and IBS). Just crazy. I am glad that you are getting things tested though just to rule it all out. makes you more sane. lol.
 
Aimee
24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
 
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
 
Played college soccer. Going back to school to be a Registered Dietitian.
 
"I control the disease, it does not control me."


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 3/11/2009 1:43 PM (GMT -7)   
Miriam, I'm so glad you like your gastro!  It's wonderful to have doctors that you like and trust to help you over some of the problems.  I have had a colonoscopy, endoscopies, and many sigmoidoscopies.  I do have Crohn's but it is totally under control right now.  But, those tests really aren't that bad.  You will be able to eliminate things that have probably been running through your mind.
 
IBS is one of the symptoms of fibromyalgia and many on the forum are suffering with that.  So, you definitely are not alone.  Let us know how the testing goes for you.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 3/11/2009 7:25 PM (GMT -7)   
thanks so much Sherrine, for your support. It means alot to me.

Aimee - gluten does not affect me as it does you. Mine is all intestinal, no pain really. Sometimes some cramping, but nothing extreme. I am vitamin D deficient and have been on very high doses of D and still can't get my level to a normal range, so the doctor suspects malabsorption which I guess is tied in with celiac, so that is the main reason I am testing. I do have some "issues" which seem to be IBS, but I guess they could be colitis or celiac and again, hopefully these tests will rule one or the other out.

The gastro guy did tell me to plan on being on a high gluten diet two weeks before the tests, so that if I do have celiac, then the samplings should come back positive. He said if I'm following a gluten free diet or low gluten diet, the samples could very well come back negative. Were you gluten free before your tests? If not, then it must be very frustrating for you. I have heard that people can be gluten sensitive but not necessarily have celiac disease. So confusing, isn't it?

It sounds as though you have really done your homework on what to eat and what not to eat. I know there are some good websites with great information on gluten free foods. By the way, in case you are not aware, you can buy Tamara, I think that is waht it is called, a type of soy sauce, that is gluten free and works very well in stir fry. And yes, it is amazing how many things have gluten in them. I think that is why I hopefully will find out once and for all because if the tests return positive, maybe then I can get my act together and really follow the plan. Thanks so much Aimee, for your time and information. I so appreciate it!
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 1:27 PM (GMT -7)
There are a total of 2,734,855 posts in 301,251 threads.
View Active Threads


Who's Online
This forum has 151362 registered members. Please welcome our newest member, RubberDucky.
355 Guest(s), 11 Registered Member(s) are currently online.  Details
PeteZa, Laker7491, RubberDucky, hateuc, Rikky1, blksteeda, Steve n Dallas, gilly2, straydog, multifacetedme, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer