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kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 3/11/2009 8:29 AM (GMT -7)   
So yesterday I saw a new doctor at this low cost clinic in SC. I was a little skeptical at first. I mean, I hate to stereotype, but sometimes when you hear the words "free" or "low-cost," you automatically think that you aren't gonna get the proper care. eyes

Anyway, after paying my $30, I was introduced to a young internal medicine specialist (no rheumys there). She totally listened to what I had to say and agreed that we should tackle one illness at a time (I've got some other stuff going on, too). She understood that I am a recovering addict (she even congratulated me on my 12+ years of sobriety) and worked WITH me and not AGAINST me when it came to pain meds. :-) She got me on a program where I can get free (not low cost, but FREE!) Lyrica. She also did some bloodwork because lupus has stull not been ruled out (along with RA and MS). I left the clinic feeling very hopeful and happy that someone took me seriously. I just hope the Lyrica works!

So, on my way home, I stopped by my parent's house to pick up some of my mail that was sent there. I noticed a thick envelope from the Social Security Office concerning my application for Disability. I wasn't shocked at all that I was declined (Isn't everyone their first time?). But, for some reason, I just started to cry. cry I felt horrible that I was leeching off of my parents and getting them to pay for 95% of everything for me. I was also afraid of what my mom would say when I told her that I had been declined. When she saw me crying and asked what was wrong, I told her between sobs. I was shocked when she just hugged me and said, "We knew the first one wouldn't be approved. It's OK." I couldn't believe that she wasn't freaking out! shocked

Anyway, I intend to reapply. Also, the Mental Health Clinic I go to has someone there who can help me-before I go to a lawyer and have him/her take half of my money IF I I ever get approved. rolleyes

So, that was my good/bad day yesterday. At least Kelly Clarkson's new album, "All I Ever Wanted" was released, LOL. tongue I recommend that everyone go buy it (there's a standard edition and a deluxe edition with DVD clips, etc.) LOL-don't you love how I promote her album in my post? Yes? No? Well, I really do think listening to her cures fibro. smilewinkgrin

Thanks for listening...er, READING this babbling post. tongue
FINALLY dxd with fibro on 06/13/08
Neurontin, Ibuprofen for pain-which doesn't help
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Aciphex for reflux
Quit smoking 08/29/08 (used Chantix)
 
"I'll take the Chivas instead"
-Kelly Clarkson


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40588
   Posted 3/11/2009 8:38 AM (GMT -7)   
Well if that is the case, I am running (walking) out to get that album.lol...

I know that it is frustrating when you get denied disability, but this is just your first step. You can get denied up to three times before you get approved. So try not to worry Kelly. It takes a long time, but it is worth it. And if an attorney gets half of your settlement, so be it, it is worth it in the long run. At least you know that he/she doesn't take your case unless they think that you are going to win.

Best wishes for a wonderful day,

Hugs, Karen
PS I miss your emails...
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


fjord54
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/11/2009 8:54 AM (GMT -7)   

Hey Kelly, I'm new here and read your thread. I'm so glad you've found a doctor that is willing to stay with you and help you. The more this doctor stays with you and understands your physical makeup, she could help you with SSD. I know you feel bad about having your parents help you, but I'm sure they are happy to do so. Your their child, they love you. Thank God for them, don't lose heart Kelly, and I want to congratulate you on your many years of sobriety. My mom, and two x-husbands had a drinking problem and only my mom has come through for many many years. Keep up the good work, I'm sure your parents, friends and family are so proud of you. Yeay Kelly Clarkson!

Many hugs {{{{{ turn }}}}}  Holly


I have Fibromyalgia, diagnosed 2006, severe degenerative disc disease, severe sleep apnea, hypothyroidism, and diabetes. I have an older daughter who has MS and my younger daughter has Fibro and Reflex Sympathetic Dystrophy. My older daughter is married, has 4 children and lives overseas and my younger daughter lives with me, our two Maine Coon cats and our Shee-poo dog.
 
God Bless!


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 3/11/2009 11:35 AM (GMT -7)   

I'm so glad you had a good experience w/ this dr. Will you be able to see her at each visit or do you get whoever is available? I hope you will be able to get this woman. It wonderful that she really listened. You know it's kind of sad when we get excited when a dr really listens, it should be what they do. At least you are off to a good start w/ her and hopefully w/ her help and a lawyer, you will be able to collect disability soon. Glad your mother took the news so well, you needed the hug and so did she.

My DD was also excited about Kelly Clarkson, she had the countdown on her calendar. She stopped in to p/u after work yesterday, I could hear it playing in her car when she came home. She had to go to work function last night, so she should be playing it for me tonight. Hopefully, by morning I should be cured. LOL  I'll let you know. Seriously, enjoy the CD, if it picks up your spirits, it is worth it. I can live w/o tv most times, but don't take away my music.

God bless.  Alice.


QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 3/12/2009 6:11 AM (GMT -7)   
dear Kelly,

I jst wanted say thank you for the post today, you may have got the best news today but at least you had your mom with shared all the things that made them tolarble for right now. She loved you lots.

Karen
Karen
 
Mom of one gramma to 4 lover to One
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain,nerve damage due to botched bladder surgery,torn hip joint,hypoglycymic
 
Norco(double strength vicodin) 80 to 100 mg @ day
Ms Contin(morphine) 45 mg @ day,Lyrica 600mg @ day
 
 
 


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 3/12/2009 6:59 AM (GMT -7)   

Hi Kelly-

I know it's "hard" to get denied. I have been denied twice now, and it has not gotten any easier. I got a lawyer and I am not backing down- I have no choice, my body just can't work fulltime anymore! Like Karen said, even though they would get part of the settlement it will be worth it in the long run. Through the county here they have a Soc. Sec. Dis. advocate that can help with all the paper work and guide you through the process, so "do" take them up on that. I just could not have done it on my own- I get too overwhelmed.

Happy to hear about the clinic, Dr. and of course the new Kelly Clarkson album!  

GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/12/2009 7:18 AM (GMT -7)   
hi there Kelly,
 
Glad you found a good doc. at the clinic!!  That's a relief!!  But I'm sorry you're struggling with SSDI.  Seems a shame that we are discriminated against so much for a program that WE have already paid into.  I think they try to make it difficult, intensionally so that everyone doesn't try to get  it.  But I DO think that when it comes to Fibro they just don't get it.. like the rest of the world.  The usual... but you don't look sick routine.  I think fibromites are discriminated against by the medical community so SSDI doesn't feel that its legitimate.
 
I plan to file for SSDI when my unemployment runs out.  I know I can't handle working fulltime anymore.  I filed back in 2000, but was denied.  I went on to work and work VERY hard full time and beyond.. at least 60 hours a week for the pasted two years (until Nov. 08) when I became too ill to continue with that job.  Now I know, even the most "simple" job would be impossible for me to suceed in.  I know I'll get turned down AGAIN, but I'll have to just keep trying till I get it.  Anyway, back in 2000, I was told that I could continue to work part time and was considered 30% disabled.  I was told by a lawyer give it up till I was over 50 yrs old.  Well, I'm 51 now and I'm not doing any better than I was when I applied before.  Hopefully I'll have better luck this time.
 
I'm glad your mom is so supportive!!  That's awesome!!  Give her a hug for me!!
 
Take care,
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 3/12/2009 8:35 AM (GMT -7)   
Hang in there, I am on disability and it can happen. I had a doctor said your not disabled you can work, I've seen people without arms and legs still work, so you can too, than in the same sentence when we were talking about the pain i was in said" could it be your disability." mixed up right? So needless to say I changed doctors, now I have a wonderful doctor who understands and works with me.

kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 3/13/2009 5:23 PM (GMT -7)   
First of all, thanks so much to everyone for their support and advice. Oh, and Alice, everyone makes fun of me for loving Kelly Clarkson like I do, but I will never be able to explain what that voice does to me. She's not some singer who needs to have computers make her sound "good." (Sings "Womanizer" LOL devil)

Anyway, I have more good news. I go to the state mental health department for therapy & some of my meds. Today my counselor hooked me up with a woman there whose job is to help people get approved for disability. That's all she does, and she helped me fill out my appeal. I still am not sure if I'll get disability this time, but if I do, I don't have to pay her like I would a lawyer. But, if I have to file a 3rd time, I already have a lawyer lined up, and I'm gonna write to my state congressman, too. I won't give up. These "people" who make the final decision about disability should walk a day in my shoes, and then get back to me. This isn't just a fight, this is war. yeah
FINALLY dxd with fibro on 06/13/08
Neurontin, Ibuprofen for pain-which doesn't help
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Aciphex for reflux
Quit smoking 08/29/08 (used Chantix)
 
"I'll take the Chivas instead"
-Kelly Clarkson


fjord54
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/13/2009 6:16 PM (GMT -7)   
I'm so happy for you Kelly!!!! I pray things will finally start going your way.........keep your chin up and keep us all posted.
{{{{HUGS}}}} Holly
I have Fibromyalgia, diagnosed 2006, severe degenerative disc disease, severe sleep apnea, hypothyroidism, and diabetes. I have an older daughter who has MS and my younger daughter has Fibro and Reflex Sympathetic Dystrophy. My older daughter is married, has 4 children and lives overseas and my younger daughter lives with me, our two Maine Coon cats and our Shee-poo dog.
 
God Bless!


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 3/13/2009 7:26 PM (GMT -7)   
Kelly, I'm glad you found someone to help you try to get disability.  I've thought about trying for mine but I'm getting so close to my regular social security it probably wouldn't do me any good.
 
You are actually stronger than you give yourself credit for.  Look back over your life and think about what you've over come.  I admire you for that strength and I think everything is going to turn out good for you.  Don't ever give up.
 
God Bless!
Shannon
Of all the things that I have lost, I miss my mind the most!!!!


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 3/13/2009 8:20 PM (GMT -7)   
Thanks Shannon & Holly. :-)

BTW-the thing that is funny is WHY I got declined. They said that I was too young (not in those words) and I have too much of an education. OK, so I'm too young and too smart. That's a great slogan to give kids, "Education or Disability? You can't have both!" rolleyes It's too bad these "people" who make the decisions don't understand fibro or feel our pain. They think we hurt just when we are standing. I hurt when I am breathing, LOL. Anyway, sorry for the rant, I just get so angry at the "system." mad
FINALLY dxd with fibro on 06/13/08
Neurontin, Ibuprofen for pain-which doesn't help
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Aciphex for reflux
Quit smoking 08/29/08 (used Chantix)
 
"I'll take the Chivas instead"
-Kelly Clarkson


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/14/2009 8:21 AM (GMT -7)   
Kelly I'm glad you found a great doc and all the help with the SSD. I'm about to start that journey myself with SSD. A lawyer friend of ours said it would take about 10 months to even get the first rejection and then he would handle it for me but I can get my DIL to help for nothing. I think writing congressmen is a great idea. I have more going on than just fibro so I hope it is easier for me to get it.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 3/14/2009 1:55 PM (GMT -7)   
Marlee,

It only took them 4 months to deny me. LOL-I don't know if that's a good thing or a bad thing! But, hopefully this time I'll make a little more headway. The woman that helped me fill out my appeal helped me word things in a better way. FYI-I did not lie, I just made my words have more of an impact. I made sure that they didn't just look at my fibro, they also need to look at my anxiety, chronic pain, possible lupus, panic disorder, knee & back problems that have nothing do do with fibro, etc.

Anyway, I really hope you get your disability. I would really like the people who "decide you life," realize that fibro isn't just a "woman's problem that makes it difficult to stand for long periods of time." nono
FINALLY dxd with fibro on 06/13/08
Neurontin, Ibuprofen for pain-which doesn't help
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
Aciphex for reflux
Quit smoking 08/29/08 (used Chantix)
 
"I'll take the Chivas instead"
-Kelly Clarkson

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