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pinksilly
New Member


Date Joined Feb 2009
Total Posts : 10
   Posted 3/14/2009 10:38 AM (GMT -7)   
Hi Everyone,
I am newly diagnosed with fibro even though I have probably had it for years.The worst part of it has been getting Drs. to  listen I am convinced they don't know what they are doing,Went to the Rheumy last  week and he tells me I Should walk more often and he gave me muscle relaxant for bed time not helping at all sad I tried to explain to him that I already Walk everyday when  I have the strengh and energy to.He said do it anyways.
I am just so frustrated I could scream.
Hope everyone else is having better luck with their Dr.
Good Luck to everyone

Fibro 02/09,Graves Disease,IBS,COPD,High Blood Pressure,High Cholesterol,Asthma,Gerds,Allergies,Congenital Brain Defect,Diabetes,Depression

Quit Smoking 2/12/09


SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 3/14/2009 10:41 AM (GMT -7)   
Have you considered looking for a new doctor? With this illness, it is very crucial to have a doctor that listens and is understanding, and also a believer in fibro. I would consider looking for a new doctor if it is an option for you. You want to have someone that you can rely on because you will be seeing this person a fair amount. I am thankful that I have such a good doctor. He is a really good listener and is very considerate.

~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 3/14/2009 11:23 AM (GMT -7)   
Pinksilly,
You sound like you need to explore new doc options. I have been through too many kind of docs to get an answer, but thanks to the support of some family I made it to where I'm at now. It took about 4 yrs to get a diagnosis and come to find out I probably been dealing with FM symptoms for 10 yrs. I have a notebook just for FM stuff..like blood and any other type(x-ray,etc.) of test results, doc notes regarding medications and list of questions I need to go over for my next visit.

Check out on-line sites, like the 2nd thread on this forum is helpful for starts and books for any and all info you can get on FM and stick to your guns when it comes to seeing one doc after another. I've been told its all in my head, just exercise more, don't worry about it(pain)so much. Oh, how comment after comment, especially from a medical professional would hurt me to the core.

Keep up your walking even if its just 5 min. Your doing great! If he asks if your exercising, you are! (5min intervals)

Take Care,
Hugs,
Lori  
 
Dx Fibro 1/2008, gastritis
 
600mg Gabapentin, 50mg Pristiq, Ultracet and/or Fentanyl patch as needed, Vitamin D3, Menopausal Support Multi-vitamin


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 3/14/2009 8:06 PM (GMT -7)   

Hi Pinksilly,  I too was recently diagnosed.  I know the doctors tell us to walk, etc. but it really helps me to stretch afterwards.  In fact, I don't exercise or walk if I don't have time to stretch .  If I don't stetch, even a little, I stiffen up so bad.  I do simple yoga poses, but only if I have warmed up.  I'm not sure if my meds are helping as much as I need and I plan to tell my doctor in May when I go back to him.  Be sure to tell you doc if you don't think your meds are working.  Good luck!

Puppylover


Fibromyalgia, arthritis in spine and hips
 
On the eighth day God created Golden Retrievers.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 3/15/2009 8:57 AM (GMT -7)   
Pinksilly, welcome!  You know what?  I happen to agree with your rheumy!  It's hard at first to do even light exercise but the more you do the easier it is and the better you will feel.  I walk at least a mile a day and sometimes two miles.  Plus I walk a lot in my home, too.  When I started walking I could barely make it around the corner but I just kept on trying.  There are some good stretching exercises that help you loosen up and could help you with walking.
 
Be sure to check out the fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia including those stretching exercises I just mentioned.  Also, use moist heat.  That does help with the pain.  Sitting and laying too much will make you stiff as a board so please keep moving.  It really does help. 
 
I'm so glad that you found us and joined in.  Read back posts, the Fibro 101 thread, and ask questions.  We are here to help you.  Hope to hear more from you soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 3/15/2009 9:16 AM (GMT -7)   
Hi Pinksilly,

I too agree with your rheumy. Walk as much as you can. And even if you only walk five minutes, it helps. Stretch before and afterwards. It is the best thing that you can do for yourself.

The muscle relaxers will help you too. I take them. We build a lot of tension in our shoulders and neck where a lot of our pain is. And the muscle relaxers seem to help with that.

I hope that you feel better soon. Keep walking.

Best wishes for a wonderful day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


saleha77
New Member


Date Joined Mar 2009
Total Posts : 13
   Posted 3/15/2009 11:27 AM (GMT -7)   
I certainly could never walk every day even if I could. I do not have jsut FM though. There are days that if you push yourself,your FM flare will get wors.e FM is very different for everyone.
I do agree that you must find an up to date rheumy who KNOW about FM thoroughly. When you have FM you must pace yourself,not push through it.(this is how it is for me though)Arthritis everywhere is my other issues though.

leemadd
Veteran Member


Date Joined Sep 2008
Total Posts : 532
   Posted 3/15/2009 12:41 PM (GMT -7)   
Pinksilly, I think you should make sure that you like the rhuemy that you go to I had one that was a night mare, I have a new one know and she is great. she listens to me and she basically said that she will try whatever it takes to make me comfy... that no one should be in pain.

pinksilly
New Member


Date Joined Feb 2009
Total Posts : 10
   Posted 3/15/2009 1:39 PM (GMT -7)   
Thanks Everyone I have been walking everyday  it doesn't help the pain Will be seeing my Dr. in two weeks if his attitude hasn;t changed I am going to find a new Dr.
 
Thanks

Fibro 02/09,Graves Disease,IBS,COPD,High Blood Pressure,High Cholesterol,Asthma,Gerds,Allergies,Congenital Brain Defect,Diabetes,Depression

Quit Smoking 2/12/09

Good Luck everyone

 


SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 3/15/2009 3:10 PM (GMT -7)   
Good luck Pinksilly! Sometimes walking helps with the pain, and sometimes it doesn't, but it is still important to do. Exercise is important, even when we don't feel like it. It helps keep our muscles strong.

~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 3/15/2009 11:30 PM (GMT -7)   
Pinksilly, Welcome to the forum.  This is a very wonderful group & you will grow to love them as I do.  Walking may be more beneficial once you get your sleep schedule in place.  No sleep equals more pain.  I take a muscle relaxant too but it is not enough so I also take Melatonin 5mg, sublingually.  That give me the added sleepiness so I can go to bed & go to sleep then the muscle relaxant helps me stay asleep. 
 
Read all you can because that is how you will find what will work for you.  Yes, you definitely need a Doctor who is on board, who is there to help you & to bounce things off of & who knows about Fibro.   It is so nice to meet you, sorry it has to be because of this illness but you have found the best place to be with this illness.  Hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/16/2009 5:30 AM (GMT -7)   

Hi Pink!!

Just wanted to welcome you to the forum!! 

A good relationship with you doctors (that you employ) is critical.  Remember... they work for you, so if you're not happy with them, find another one.  These doctors need to know when they aren't doing a good job for those that pay them

Glad you found us!!

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/16/2009 6:44 AM (GMT -7)   
Hi Pinksilly and welcome. Sometimes the hardest part about walking is getting off the couch to do it. smilewinkgrin I have a 6 mo old puppy that loves to walk and she guilts me into getting out even when I don't think I feel up to it. I'm far from walking as much as I should but I have to work up to it.
 
Good luck.
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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