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anxietyridden
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 3/15/2009 11:55 AM (GMT -7)   
Hey all. I haven't been on too much as I started a new job with funny hours, and I have been having what I think is a flare after going almost a week with minimal symptoms. I've just had horrible achy legs and now this semi-new, extremely irritating muscle twitching. It is CONSTANT and so annoying. But this morning I was putting my hair into a ponytail and just brushing my hand across the top of my scalp suddenly caused pain. I lightly touched the spot with my fingertip again to see what would happen, and OUCH. It hurts to touch it even the slightest bit in this one spot on the left side. Oddly, pressing down hard on the spot doesn't seem to hurt - it's just the light brush against skin that hurts. Has anyone had this before? Is it normal to get such a sore spot on the scalp? It is kind of freaking me out, since between this and the twitches I've got myself convinced that the doctor's missing something and I actually have a brain tumor or something serious. Help!

Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 3/15/2009 12:55 PM (GMT -7)   
I have had a sore scalp many times. When I asked the Dr about it he said it is all the muscles on the scalp that are tight. Told me to lightly massage my scalp with my finger tips. I actually put the heating pad on it and it did help. Just another part of this great Fibro junk. If you think about it we do have muscles on our scalp and
when I get really anxious, everything hurts, including my scalp. Try and relax hon

Sue
Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 3/15/2009 1:54 PM (GMT -7)   
Hi,

You have described me, your twin, to a tee. I have the bad achy legs and twitches. They are in my legs constantly, called fasciculations. They calm every now and then but return. Now onto the scalp. Mine can be tender as the pre dickens and yes, even painful to the lightest touch.

Let me know about your twitches.

Patsie

anxietyridden
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 3/15/2009 3:10 PM (GMT -7)   
Thanks for the reassurance ladies! I had been thinking perhaps the scalp was due to the clenching my jaw so much, but wasn't sure.

Patsie, ugh, I'm so sorry you have to deal with the twitches too, they are sooooooooooo aggravating. I have had them off and on for a while, doctor said it is a symptom of fibro, but now it seems like they have been bugging me for 2 weeks straight. Most of the time they're not big, jerk a limb twitches, but just feel like little pieces of muscle are being plucked here and there. The twitches seem to move all around my legs, but have been making my calves feel very fatigued. Stretching doesn't seem to help at all. I get them other random places on my body too, but not anywhere near as bad as in my legs. Do you take magnesium/malic acid? I am going to ask my doctor about that as I've heard low magnesium levels can contribute to the twitching.

Do yours sound like mine?

patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 3/15/2009 3:23 PM (GMT -7)   
For the world that is how mine are. You are the first person to mention them and I have asked on our forum. They fatigue my legs so much after constant firing. Yes, they are a symptom of Fibro and YES I absolutely do the mg/malic combo. It has really helped with my cramping which was pretty bad for awhile. Now the fasciculations have not resolved. That is a neurological problem well associated with fibro.

I do my best to ignore them but it can be difficult. Mine are primarily in my calf muscles so far.

Patsie

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2787
   Posted 3/15/2009 4:56 PM (GMT -7)   

I not only get the scalp pain but when I brush my hair I get goosebumps/shivers just from the touch.  BTW...had to have the pony tail cut off (donated the hair to cancer) because the doc said the weight of it was aggrevating the head sensations and TMJ.  It helped with the TMJ but I still get the shivers when I brush my hair!

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


anxietyridden
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 3/15/2009 8:21 PM (GMT -7)   
Oh patsie, although I wouldn't wish the "itchy twitchies" as I like to call them, on anyone, I am glad not to be alone in this, since I was fearing I had something new and horrible. We should keep each other updated on things that help! When I first talked to my doc about them he said it was just part of RLS, but this is not just when I am sitting still, or lay down and rest, it is becoming more than that. I am planning to call the doc tomorrow just to talk to him, as I usually do with "new symptoms." I feel like a regular hypochondriac but, oh well.

Donna, I got the shivers just from you describing that! My hair is almost always in a ponytail and I get that scalp pain from that sometimes, but the pain I had today was different. It is so weird, just like one concentrated spot of sharp pain when I brush lightly against it. When I press down on it, nothing. Maybe it's a nerve thing, I had a similar situation in my arm last year.

Oh it never ends, does it?

patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 3/16/2009 5:44 AM (GMT -7)   
Hi Anxiety,

I just want to add that i became very very nervous with the "itchy twitchies" b/c I feared a possible neurological disease. It has not been so at all, I had all the neuro tests possible by a great neurologist. He satisfied me that they are benign. If you read about BFS, benign fasciculation disorder, it is very enlightening.

Sorry you have this. Ignore it as very best you can and keep in touch with me. No one else has chimed in so I realize it must not be a common symptom and that bothered me.

Patsie

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/16/2009 6:00 AM (GMT -7)   

Hey there!!

I got my hair cut much shorter because of the scalp pain thing, it would realllllly hurt.  I, too, wore a ponytail alot or the half up half down pony thingo.  Sometimes the scalp pain would give me a major headache.  Hubby liked my hair long but it had to go.

I don't get leg twitches, but I do get them in my arms and my eyelid (usually the left eye), very annoying and after a while the area that twitches starts to hurt.  I had that twitch in my eyelid for about 4 - 5 months, before I left my job.  about 2 months after I've left, it stopped.  I think it was stress.  One of my friends that I have always suspected to have Fibro, complains about eyelid twitches too.

Hope you feel better soon!!


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


anxietyridden
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 3/16/2009 6:03 PM (GMT -7)   
Thanks ladies. Patsie I have an appt with the doctor tomorrow to discuss the issue, I don't know if he'll send me to a neuro or not, so we'll see! I will definitely keep you updated, and if you find anything that provides relief, let me know!
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