Maybe not fibro??? Or maybe fibro + this???

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Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 3/17/2009 8:13 AM (GMT -6)   
Hi everyone,

As I've mentioned here before, my health issues really started getting terrible after I had my last child. Before that, I mainly had numbness/tingling in my hands and pain in my shoulders and arms, as well as pain in my ribs. After I had my son, though, everything went to hades-pain in the joints and muscles, terrible fatigue, headaches, etc. etc. You all know how it goes! rolleyes symptoms have gotten progressively worse over the past 5 years. When I was finally diagnosed with fibro, it was by a gp who really didn't know much about the dd, and it was of course after everything else under t he sun had been ruled out. (You all know how THAT goes, too!) Basically, I got a fibro diagnosis because nobody could find anything else wrong with me. Oh, also during this time, I was officially diagnosed by a neurologist with severe carpal tunnel in both of my arms.

Over the past year or so, though, I've been experiencing some terrible symptoms that are suspiciously like menopause. Awful hot flashes, periods all messed up and super, super heavy. Heart palpitations, skin that's not just dry, but feels like it's been invaded by crawly little bugs. HORRIBLE vaginal pain and itching and burning (but no yeast infection), awful mood swings, anxiety, feelings of dread and so on. Oh, and the zappy feeling like I've been shocked with electricity. Most of these are fibro symptoms, but they can also be symptoms of menopause. I've always chalked it up to fibro, but lately I've been wondering about the menopause because of the extreme vaginal issues, mood swings, terrible hot flashes, and itchy crawly skin.

Well, last night I started doing some research on menopause, and I came across information on abnormal periods and their potential causes. I found out that abnormal periods can be caused by Tubal Ligation. As soon as I read that, a lightbulb went off in my head-I had my tubes tied after my last child was born!

So, I thought maybe there's some connection between my tubal and my menopausal like symptoms, so I did a search on that and I found out that tubals can basically force your body into early menopause because the hormone levels become so out of whack in the body after the sterlization. I found a website that explained that because you aren't actually able to release an egg anymore, your body's progesterone (sp?) levels become terribly messed up and creates all kinds of problems. Then I found a website listing the symptoms of something called "post tubal syndrome" and oh my goodness was I SHOCKED by what it said!! Here's the list of symptoms:


1. Eptopic pregnancy or pregnancy (welll known risk of tubals)

1a.Hot flashes, flushes, night sweats and/or cold flashes, clammy feeling, chills

2. Bouts of rapid heart beat

3. Irritability

4. Mood swings, sudden tears

5. Trouble sleeping through the night (with or without night sweats)

6. Irregular periods; shorter, lighter periods; heavier periods, flooding; phantom periods, shorter cycles, longer cycles

7. Loss of libido (see note)

8. Dry vagina (see note)

8a.Itchy vagina-at time raw like, can radiated from whole area, with absence of yeast infections. (see note)

8b.Color change in vaginal area. (color gets darker - purple/black)

9. Crashing fatigue

10.Anxiety, feeling ill at ease

11.Feelings of dread, apprehension, doom (see note)

12.Difficulty concentrating, disorientation, mental confusion

13.Disturbing memory lapses

14.Incontinence, especially upon sneezing, laughing; urge incontinence (see note)

14a.Prolapse of uterus do to rapid decress in estrogen levels.

15.Itchy, crawly skin (see note)

16.Aching, sore joints, muscles and tendons (see note)

17.Increased tension in muscles

18.Breast tenderness

18a. Decress in breast mass

19.Headache change: increase or decrease

20.Gastrointestinal distress, indigestion, flatulence, gas pain, nausea

21.Sudden bouts of bloat

22.Depression (see note)

23.Exacerbation of existing conditions

24.Increase in allergies

25.Weight gain (see note)

26.Hair loss or thinning, head, pubic, or whole body; increase in facial hair

27.Dizziness, light-headedness, episodes of loss of balance

28.Changes in body odor

29.Electric "shock" or "stabbing" sensation under the skin.

30.Tingling in the extremities, (see note)

31.Gum problems, increased bleeding

32.Burning tongue, burning roof of mouth, bad taste in mouth, change in breath odor (see notes)

33.Osteoporosis (after several years)

34.Changes in fingernails: softer, crack or break easier


shocked shocked shocked shocked


I have almost every single one of these symptoms! I have never had an ectopic pregnancy, nor do I have a prolapsed uterus or incontinence issues or signs of osteoporosis-but the rest of the symptoms are totally me!

So now I'm thinking-holy crap!! Could my problems totally stem from having my tubes tied and NOT from fibro??!!?? Or, could having my tubes tied have made my fibro worse???!?

Oh-I cried SO HARD last night when I found this link and realized that maybe I did this to myself????!! Then I got SUPER angry because my Dr. never said a word about any of these symptoms! I talked to my mom today, though, and she had her tubes tied after my youngest sibling was born and she went through the exact same thing!!!! She ended up having a hysterectomy in '92, but she still has pain issues in her body because of this.

Fortunately, I found a clinic nearby that gives OB/GYN care to uninsured patients, so I called them this morning and made an appointment for April 3rd. I know I will have to see what they say about all of this, but I plan on printing out the list of symptoms and explaining my horrible 5 year ordeal and seeing what can be done. Like I said, maybe it is "just" fibro again, but the symptoms of this PTS fit me so well that I have to wonder if there isn't something else going on....

I will keep all of you posted, but I wanted to share this with you in case any of you have had your tubes tied also and so maybe you're experiencing some of this as well. Also, I wanted to say to all of you still in childbearing age-DO NOT GET YOUR TUBES TIED!!!!!!!!!!! smhair

Oh, also-I didn't post the direct link to this info because the page contains some pretty graphic pictures of the internal female organs-didn't want to gross anyone out, lol-but here's the link if anyone is interested:

Hope you guys are all having a pain free, happy day.
love and hugs

fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/17/2009 9:20 AM (GMT -6)   

Hi Sweetie!!

Well, well, well!!!  I've never heard of that!!  But..... I had my tubes tied when I was about 30.  I have all of those symptoms AND I had early menapause!! (not the ep. pregnancy either) I'm 51 and I've been pretty much done having my period for about a year now.  I started perimenapause when I was about 35.  VERY VERY interesting!!!!  I was never told anything about PTS (of course that was about 21 years ago).  My sister went into total menapause (with no warning at about 35 yrs old and my mom started menapause when she was about 42).  I always attributed my early mena. to a heriditary thing.  This puts a whole new light on things. 

Did the article say anything about treatment??  Perhaps the treatment would be the same whether you have FMS or PTS or... perhaps the PTS is a cause for FMS?? 

REALLY interesting, Danielle.  Glad you shared it with us.. Sorry you were crying ** moping up your tears ** But isn't it strange how we find this things out ourselves and the doctors never mention it.  Please be sure to let us know what the Gyno says after your appt.

Hugs and happieness ( go out an enjoy this beautiful day!! yeah )

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 3/17/2009 9:37 AM (GMT -6)   
Wow-you, too??? Veerrry interesting!

As near as I can tell, neither of us was ever told about these potential side effects because it's one of those things that Dr.'s never, ever talk about it. In fact, good luck finding a Dr. that actually believes it's even real! (Sound familiar?? grrrr!) I have been feeling like I'm losing it because I am only 36-who starts to go into menopause at 36!?! So I thought..well, maybe it's all just fibro? But some of the things I go through aren't ever mentioned on a list of fibro symptoms. They are much more menopause-like in nature.

I am hoping that I can get the gyno to take me seriously on this. I have never been to this Dr. before, so I don't know what she's like. I am thinking, though, that maybe at least I can get her to listen and believe that I am having serious menopause symptoms and maybe treat me for that. I don't know how much longer I can go on feeling like this! The mood swings and hot flashes and skin itchiness are driving me absolutely batty over here!

I will definitely let you guys know what the Dr. says..thank you so much, Patti, for sharing a bit of your story. Helps me to not feel so alone!

And I will definitely be going to enjoy the beautiful day! You do the same!! :)

Oh, and EDIT: I have been thinking about the hormone/fibro connection for some time. Why does it seem to affect more women? I have always wondered if there was a hormone connection somewhere...our hormones are VERY powerful things and it seems like they can wreak all kinds of havoc in the body. Of course, men DO get fibro, so maybe I'm way off base. I don't know.

As far as treatment of this PTS goes-I haven't been able to find much info on it. I keep coming across info on reversal, but that's like a $6,000/$7,000 procedure! I'm also find info on hormone replacement therapy as a treatment...I don't know. Hopefully the Dr. will have some answers for me!
love and hugs

fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

Post Edited (SleepyBug) : 3/17/2009 8:46:14 AM (GMT-6)

Veteran Member

Date Joined Jul 2007
Total Posts : 943
   Posted 3/17/2009 10:42 AM (GMT -6)   
Sleepybug, I am not usually on this forum but happened to read your post. I had many of your symptoms with a diagnosis of fibromyalgia. It ended up being Lyme disease. Many people who have lyme were told it was fibromyalgia. All of my symptoms have gotten better with treatment by a Lyme literate doctor. Sometimes the tests for lyme are false negative so you need to have symptoms listened to and treated rather than tests. I hope you find one of those doctors for the sake of your future. I went to 32 doctors in 10 years none could help me. They kept giving me many false diagnosis-such as lupis, fibromyalgia, arthritis and much more. It was only when I got treated for my symptoms of Lyme that I found out I also had a co-infection from the tick bite. The healingwell forum for lyme disease has been a life-saver for me--try going on that forum as well. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!

Regular Member

Date Joined Jun 2008
Total Posts : 204
   Posted 3/17/2009 3:38 PM (GMT -6)   

Hey Danielle


Let me know what the GYN says.  I had my tubes tied 15 years I'm curious too.  Hows your non smoking?  I have cut wayyyyyy back but still have not quit shakehead    I will try gian this weekend  when I dont have to deal with the crazy people at work LOL



Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 3/18/2009 7:29 AM (GMT -6)   

Wow Danielle that is interesting!

I have not had my tubes tied, but went into perimenopause at age 38 and menopause at 40! Way too young in my book! And it was the menopause from H _ _ _. The only thing that worked was going on HRT. Battled 30 or more hot flashes a day and I was miserable. I finally did something about it around 44yrs and it was like night and day once I started the pills. Now I am on a very low dose of estrogen and will try to wean off sometime next year. How you mentioned hormones and fibro- I think it plays some part in it too, just don't know how much?

Good luck with your Dr.'s appt, and let us know what happens.


Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/18/2009 7:53 AM (GMT -6)   

Hey Danielle,

I took HRT for about 4 or 5 yrs .. I developed a blood clot in my leg (because I smoke).. I wound up having surgery because it was so bad!  As I said before, perimenapause kicked in when I was about 35 and I started taking the HRT at 41, till I was 45 or 46.  Had the surgery at 46 and was taken off HRT right around the same time. 

Everyone is different when it comes to menapause, but mine lasted for almost 15 years!!  ACCCK!! I still get alot of hot flashes, but everything else has calmed down.  I attribute alot of my mood swings to fibro now, mostly the frustration of not being able to do things like I used to and fatigue, depression from being ill and anxiety.

I've always kinda wondered about Fibro and hormones, I think there's a definate connection, but I'm not a doctor so what the heck do I know (Oh yeah, that's right.. they don't seem to know a whole lot about Fibro either.. LOL)

Early menapause or perimenapause symptoms can start very early.. so don't be surprised that's what's happening.  When you go to the Gyno ask for the blood test to evaluate the possibility. 

I really hope you get some answers, I know how frustrating this must be for you.

Big Hugs!!

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

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