Hi Jules, welcome to the forum, I don't believe I've said that to you before. I'm sorry you got the dx for Fibro, but this is a good place to come if you got it. If it weren't for dr bills, I wouldn't get a chance to practice my penmanship. LOL
I'm sorry to hear that it has been a bad day for you, unfortunately they can be common w/ this DD. Headaches and multiple places of pain. This can be very hard some days. I hope you got a chance to look at the top of threads, there are many interesting topics that you may find helpful. Fibro 101 is good.
I know this feels overwhelming when you think about this being FOREVER, but sometimes it helps to look at things one day at a time. I do this to myself sometimes and I feel like I am smothering. I need to step back and 'look' at today not everyday. If you know what I mean.
Re: exercising, maybe don't go overboard, go easy at first and build yourself up to more intense exercise. If you're feeling really bad, it might be a good day to do some gentle stretches or an easy walk around the block - or what you can handle.
We all have some days that are better than others, sometimes just getting up and dressed is BIG. There is a piece in the top threads for a little story called 'The Spoon Theory' read it over and print out a copy or 3, share it w/ family and friends. Give them an idea of what your energy level is. I don't know the ages of your family, but maybe you could delegate some of the work load to them. They need to learn a little compassion, as long as you do everything, it will be expected that you continue in that position.
Come on here when you can, esp if you're feeling low. Hopefully, we can all help each other thru the tough times. Try to get some rest tonight and I hope tomorrow is a good day for you.
God bless. Alice.
I am new. I was diagnosed last May but it took me two months to believe the doctor. I had a long illness with bronchitis after that my pain stayed. It was like taking a steroid and still having symptoms. I am already have an attitude but this just makes it worst sometimes. I fake it around others I just want to scream. I am on Effexsor and Neouritin. I take Flexoril now and then. I took I Loritabs for awhile but not since last year.
Remember liquor can make it worst but if you drink enough after awhile you will not care. I am joking I understand how you feel and how others do not believe me. (even the ones you love) I exercise but it does not always feel good later. Just take your time.
I have my good and bad days at the age of 34. Something has to give. I am think of uping my Neouritin to 1200 mg. I tested it a little and it helps. Good or bad idea?
Hi there Jules,
Seems like you've gotten some great advice so far and forgive me if I repeat what the others have said.
I know how you feel when it comes to the "forever" thing. I've had fibro for at least 11 years and at most.. just about all of my life. I've never really been able to pinpoint when this rotten syndrome started. I was dx'd with CFS after my last bout of Lyme (11 yrs ago) but the doctor dx'd me with Fibro back in Jan. after my last barrash (sp?) of tests. Anyway, in my mind I've known that this is forever, but when you have a year or so when you're feeling pretty good it's easy to think, Hey, I'm ok, this isn't so bad, maybe it went away, maybe I was misdiagnosed, maybe maybe maybe.. and then Fibro rears its ugly head again and you have to go back to the realitization that this is forever. This horrible syndrome really messes with your head with it's comings and goings.
Last night was horrible for me. My family was celebrating St "Patti's" Day and I had overdone it. I could barely move by dinner time. My mom was so worried about me and I hate for her to see me when I'm hurting, because I know it hurts her to see it. No mother wants to see their child hurt.. even if their child is 51 years old. Fortunately my family understands better than most. If you're having a problem with your family expecting too much, I agree that you should read the "letter to normals" and the "Spoon Theory" and decide if making your family aware of them.
I sure do hope you feel better, but remember, we're always here for you and hope you'll continue to keep in touch!
Hugs for now,
Post Edited (Sherrine) : 3/19/2009 12:38:24 PM (GMT-6)
I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11