breakthough pain relief!

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PoppyWonderland
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 3/17/2009 10:04 PM (GMT -7)   
Please re-acquaint yourself with the forum rules especially the one concerning

No discussion of any illegal activity ie. illicit drug use.

Since you are already experimenting I would recommend a different line of work, as well.




Different line of work? I'm sorry but I do not quite understand? I did not mean to disobey the forum rules and I will certainly not in the future. I only used a drug once that was not mine a few months a go and I have not since. Sorry sad
Diagnostics: Fibromyalgia, Chronic fatigue, Anxiety, Depression (probably from all the pain), migraines with aura and last but not least tension headaches.

Medications: Codeine four 60 mg codeine and apap (5 times daily), tramadol 50 mg (three times as needed), cymbalta (which I don't normally take 30mg daily), Klonopin .5 mg (as needed no more than three), soma 350 mg (as needed no more than two), robaxin 750 mg (three times daily), and fioricet (as needed for tension headache), maxalt-mlt orally disintegration tabs (as needed).

Post Edited (PoppyWonderland) : 4/16/2009 1:33:24 PM (GMT-6)


PoppyWonderland
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 4/15/2009 8:46 AM (GMT -7)   
I was wondering if anyone with fibro has been prescribed anything to combat there normal fatigue that comes with all the fun of fibro and to combat the fatigue given by taking the common medications for firbo such as muscle relaxers, ssris, ssnris, and opioids. I just cant get though the day, I am on spring break right now and I wake up and then take my meds and then I go back to sleep. I get nothing done that I need to because I am to tired. and if I don't take my meds then I would just lay in bed in pain unable to move!

On a side note does anyone know if the new "tramadol" is available for perspiration? I have codeine and tramadol for pain but I really want to try the new "version" called Nucynta or (tapentadol) because the tramadol doesn't do much if anything.


THANKS!! :-)

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 4/15/2009 8:59 AM (GMT -7)   
I asked my rheumy for adderal and he refused. Said it's almost impossible to get off of once you start it, so he does not prescribe it. Then again, I've been on Prozac for 20 years, tried to wean myself off of it and could not and yet, he's prescribing that...so... I would love to find something to help with the fatigue. I ended up leaving my job because of fibro and not have a work at home job so I can rest when I need to. I make 1/3 of what I use to make, but there are some that can't work at all, so I am thankful. I do drink Fuze, for energy, and tea, but that's about it. Oh yes, D-Ribose, I take that, it's a sugar, but won't cause problems with blood sugars, a different kind of sugar. You can Google it and read about it.
take care
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


PoppyWonderland
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 4/15/2009 9:11 AM (GMT -7)   
yah, I want to ask my doctor for it because it helped me so much, but if he refuses that, which he might, I'm not sure. There must be something else!!!!
Thanks confused :-)
Diagnostics: Fibromyalgia, Chronic fatigue, Anxiety, Depression (probably from all the pain), migraines with aura and last but not least tension headaches.

Medications: Codeine four 60 mg codeine and apap (5 times daily), tramadol 50 mg (three times as needed), cymbalta (which I don't normally take 30mg daily), Klonopin .5 mg (as needed no more than three), soma 350 mg (as needed no more than two), robaxin 750 mg (three times daily), and fioricet (as needed for tension headache).


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 4/15/2009 9:13 AM (GMT -7)   
I heard that Nucynta is going to be a scheadule 2 drug, so it will be highly addictive, but I could be wrong about that, it's just what I read. And I dont think it's even out yet, I think it just finished the trials so it's still waiting for approval, I dont know. But I'm also waiting for it cause I heard it can be mixed with the meds I take, cause about one or two days out of the month I have severe leg pain, but if it is out, then let me know please, but so far I've read everywhere, its not out for prescribing yet.

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet), and Biofreeze  
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, marsupilized bartholin gland cyst
 
"Never go to a doctor's office whose plants has died."
 
 


PoppyWonderland
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 4/15/2009 9:20 AM (GMT -7)   
I sure will, I work at a pharmacy so I am planning on asking! I know it will be a schedule drug but all the ones I take are and I am about to be switched to Oxycontin so I would rather go with the Nucynta as it has a high pain relief potential but it does have a lower abuse potential than higher level narcotics and it has ssnri and ssri properties which will help with my anxiety and depression.

Thanks!
Diagnostics: Fibromyalgia, Chronic fatigue, Anxiety, Depression (probably from all the pain), migraines with aura and last but not least tension headaches.

Medications: Codeine four 60 mg codeine and apap (5 times daily), tramadol 50 mg (three times as needed), cymbalta (which I don't normally take 30mg daily), Klonopin .5 mg (as needed no more than three), soma 350 mg (as needed no more than two), robaxin 750 mg (three times daily), and fioricet (as needed for tension headache).


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 4/16/2009 7:43 AM (GMT -7)   

Hi Poppy and Welcome-

Yep, I am with the others on asking your Dr. about the Adderall. And give you many soft pats on the back for all you are doing! I take Tylenol 4,000 mg. a day and it just takes the edge off of the pain. And Zoloft for the depression. I drink coffee in the morning and a cup around suppertime to stay awake. I'm like Marlee, with the med thing. Hate taking medication and I think I got that way from being so sensitive to meds and what they do to me. 

Nice to meet you and between you and your Dr. I know you will get this figured out-

GamJill 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


PoppyWonderland
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 4/16/2009 12:30 PM (GMT -7)   
To clarify a few things. I certainly am going to ask my doctor about it but I was just wondering if anyone had been prescribed something that helps them with fatigue. Not necessarily adderall or some other stimulant, just something so I don't fall asleep in class. I try and drink coffee but my stomach is weak from all of the NSAI's I have taken, mostly aspirin. And the coffee makes me vomit and gives me extreme cramps. The only time I have even taken something that was not mine nono was like a few months ago because it was necessary for me to ace my exams. I know it was wrong and I honestly do not do that almost ever. Everything else that I have posted is just my prescribed medications, so no worries peoplerolleyes . The reason why I am wondering is because when I go to a doctor appointment my doctor just flat out asks my what I think I should try next. Since I am going to school for pharmacology and since I have been sick all my life I have a disgustingly vast pool of knowledge on the way drugs work to depress, stimulate, alleviate and all other effects on the central and peripheral nervous systems. And since I have tried almost every known approach to fibro my doctor just really doesn't know what else to do. shakehead

Anyways, I hope everyone else is feeling well. Thank you for your concerns and responses!

Much Love to all!!!!

PW
Diagnostics: Fibromyalgia, Chronic fatigue, Anxiety, Depression (probably from all the pain), migraines with aura and last but not least tension headaches.

Medications: Codeine four 60 mg codeine and apap (5 times daily), tramadol 50 mg (three times as needed), cymbalta (which I don't normally take 30mg daily), Klonopin .5 mg (as needed no more than three), soma 350 mg (as needed no more than two), robaxin 750 mg (three times daily), and fioricet (as needed for tension headache), maxalt-mlt orally disintegration tabs (as needed).


kps50
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/26/2009 1:08 AM (GMT -7)   
My doctor has prescribed me adderall 30mg x3 daily. However before this I was prescribed Provigil 200mg for fatigue. Thes medication is very expensive, almost $10 per pill. Your doctor should be able to give you some samples to try. I hope this helps you.

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/26/2009 3:57 AM (GMT -7)   
There is a hugh risk in taking something, not yours. Also, the meds you are on, as profile, well, w/o any disrespect, are way dangerous, and some are redundant. but you know that. You could lose you privelege to use the meds, if you don't follow the rules. Also, it makes it harder for others who really need these meds, if folks don't follow the rules. I know you didn't mean any harm, puppylover, but reflect, please.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 5/26/2009 8:24 AM (GMT -7)   
I take adderall and it is a fairly cheap medication. Provigil is more expensive. But it also works for some people. I prefer the adderall. There is also ritalin which helps. I hope that you can find something for fatigue.

best wishes to you.

Hugs, Karen
 
I wanted to add that if you can muster yourself up to take a short walk during the day, that really helps.  It gets your natural endorphines working.  I try to walk daily and it gives me more energy.  Even if you can only walk for five minute at the start, it helps.  So give that a try.


  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

Post Edited (getting by) : 5/26/2009 9:27:34 AM (GMT-6)


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 5/27/2009 4:16 AM (GMT -7)   
You can also try malic acid and magnesium for the fatigue. Fibro's lack of malic acid (or deficiencies of it) lead to a break in the Kreb's cycle of energy production in the mitochondria (energy factories) of the muscle cells. Malic acid is needed to complete the transformation of glucose to ATP + energy.

Lack of malic acid leads to a build up of lactic acid in the muscles which results in pain. Although malic acid has a side effect of diarrhea, the 3200 mg that I take over the course of a day have been a life saver for me in my wedding cake business. I don't have time to get tired during the day, and although I have to take frequent rest stops when doing heavy stuff like digging in the garden or vacuuming, moderate work like getting cakes in and out of the oven I can do for 10 to 12 hours at a stretch.

This inexpensive alternative to prescription drugs is one way that many fibros get along. If you google "malic acid, fibromyalgia" you will find lots of information, not just testimonials, about this supplement.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 5/30/2009 8:23 PM (GMT -7)   
The malic acid-mag. supplement is helpful to some, but for lots of us it is a horrible trap. When I tried this with great hope, I was really disappointed when instead of helping, it recreated the same symptoms and nightmare that IBS gave me a few years ago. I wish the M/M worked for me; I still have a huge unopened bottle of it, just mocking me when I open the medicine cabinet [its true! it says, "hahahahahaaa!! we can't help you! nah nah nah nana]. Anyway, I am jealous of those of you who can take it with success.
"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar, Ambien 
OTC meds [PRN]- Benadryl, Claritin, Melatonin, Valerian, B Complex, Vitamin D, Omega 3, Multi Vitamin
 
 


crazyoldcatlady
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 5/30/2009 9:13 PM (GMT -7)   
My fatigue is not as bad since I QUIT caffeine. The effect of stimulants is always followed by a crash, which just makes matters worse. Best to stay off any stimulants, in my humble opinion. :-)

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 5/30/2009 11:05 PM (GMT -7)   
I take caffeine every day before I go to the pool. It helps reduce my pain and contributes energy. I worked my way up to 2 hours or so of exercise daily and I have chronic fatigue and fibro. yuch

Donnaeil
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