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DonniesGirl
Regular Member


Date Joined Mar 2009
Total Posts : 71
   Posted 3/21/2009 10:38 PM (GMT -7)   
My doctor mentioned trying Savella when it becomes available...I'm kind of scared, because I'm doing alright on the Paxil and Lyrica right now.  Anyone else thinking about trying it?
 
Blessings,
Donnies Girl 

...Through it all...I've learned to depend upon His Word...


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 3/21/2009 11:17 PM (GMT -7)   
I like to wait atleast a year or two after a new drug comes out because thats when you really hear about all the "bad" side effects, or possibly any deadly effects that can happen, cause it seems to happen more when it's on the market then when it's in the trial phase. Like with that one painkiller, cant remember the name, I beleive it was slow release diladid, and they found out that people where dying when it was mixed with alchol, and they very fast pulled it off the shelf.

But if I hear great things about it, then maybe I will ask, but I will wait and let other's be the test rats. And I havent heard much about what meds it can and cannot be mixed with. Kinda like with Cymbalta your not suppose to mix it with triptan type meds, but after asking several doctors, they agreed since my migraines are now under control, and I barely take my Imitrex, it should be fine. And so far so good, but pain wise I am noticing I'm a bit better, But I am disappointed that it isnt helping with my anxiety/deression a much as I thought it would.

So I will wait a while, then ask around again, and maybe try it to see if it helps with the depression part also. But the only problem I will face is that it's very brand new, so I'm sure it'll cost a leg and arm, maybe even my first born. Cause I'm on state insurance since I'm on SSI, and they dont like to pay for any drug unless it's over 50 years old, or so it seems lol. But I will be excited to hear what you guys have to say about it, since I dont know many people with fibro who want releif, so i look to you guys for information on new things to ask my doctor about. So good luck to all who try it!!

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the conter meds: Benadryl nightly for itching due to meds (not sure which one yet),
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, Bartholin gland opened permanetly due to recurring painful cysts
Goals: to go to college next fall to be a nurse and get off of SSI
Wishful thinking: to not be in pain!!!


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 3/22/2009 12:04 AM (GMT -7)   
I am waiting a long while on that one also. I have followed some of the studies and am not convinced. Usually I am not this hesitant.

If you take it please let us know how it works for you.

Donnaeil

DonniesGirl
Regular Member


Date Joined Mar 2009
Total Posts : 71
   Posted 3/22/2009 11:13 AM (GMT -7)   
Waiting to see about the side effects and other issues is excellent advice.  I will definitely wait and see what happens.  Hello~Kitty, you mentioned the pain medication the was taken off the market... maybe Vioxx?  I took that stuff for knee pain and it worked fabulously, then I found out it was causing all sort of problems, so had to stop!  (My doctor had given me samples)
Also, I'm sure you are right about the cost.  It will be outrageous, I'm sure. 
 
Thanks for you replies!
 
God Bless,
DonniesGirl :-)
...Through it all...I've learned to depend upon His Word...


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 3/22/2009 3:56 PM (GMT -7)   
Milnacipran (Savella) has been used in Europe for over 10 years as an antidepressant so the safety record is known. I was part of the clinical study here in the US and would not have participated if it was a new drug. I had to drop out of the study due to side affects.

about 3 years ago, I remember reading that the stock prices dropped for the company doing the clinical study because they weren't getting the improvements they expected in the trials. Then, suddenly, the study showed that milnacipran was showing success in the clinical trials. If you google milnacipran, you can find some of the old reports.

Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 3/23/2009 4:13 PM (GMT -7)   
The medicine that I was talking about that was pulled wasnt vioxx (yet that one was pulled too) but this one was a narcotic, I remmber that, it was a slow releasing one, that when mixed with drinking caused the slow release coating to disolve and released all the meds at once and caused overdoses. Even though this new med isnt a narcotic, I still like to wait and hear about side effects, I'm always stressed over side effects cause I seem to be sensitive to them, and like to research it throughly and talk to people who have tried it like I did for the Cymbalta and Lyrica and especially the Suboxone (took me over a year to finally try it). Thats just the way I am, cause after that weird side effects I got from the Reglan and Compazine, I have been scared to death of side effects.

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the conter meds: Benadryl nightly for itching due to meds (not sure which one yet),
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, Bartholin gland opened permanetly due to recurring painful cysts
Goals: to go to college next fall to be a nurse and get off of SSI
Wishful thinking: to not be in pain!!!


colabear2890
Regular Member


Date Joined Nov 2008
Total Posts : 103
   Posted 3/23/2009 4:44 PM (GMT -7)   
what side effects did you get from reglan? i took it for about a week, and i lost my hunger from it

at least i think it was from that, my doctors are still trying to figure out what's wrong.

-Alixs
"never regret something that made you smile"


TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 3/23/2009 4:50 PM (GMT -7)   
If I were able too, I would go ahead and try it. (I would, not saying anyone else should) a.) Im not afraid to try things. b.)I've never had any reaction from any meds I've taken c.) someone has to try it! d.)Its not necessarily new since its been used in Europe

So, I have my reasons for wanting to try it. I am also taking Paxil...DOESNT help me. (just a smidge) and I was taking Lyrica(16 months) but just recently weaned off of it... I havent been sleeping as good and I have been more sore, but its not totally dreadful. So, Im going to try to wait a while before trying something else. But, I would totally try the Savella when its available, if I could or whatever.

But, thats my opinion. Its a personal decision. Just weigh your opinions and take as much as you can into consideration before trying something new. Only you will know if its right for you or not.
Lyrica(15 months on, but now officially off of it!) and Paxil(about 6+- months)
Fibromyalgia, Depression, Anxiety, Panic Attacks-currently in therapy
www.myspace.com/wilson_gal22
"Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
"Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 3/24/2009 12:52 AM (GMT -7)   
Tennis,
You would be a good candidate for Savella. You are young so the cardiac side effects (increased blood pressure and heart rate) may not be a problem for you. I haven't heard much about dosage yet but try to start at a low dose and slowly increase it. It's used for depression in Europe so that may be an extra benefit for you.
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