Does any one fear?

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Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 3/22/2009 7:23 AM (GMT -7)   
Does anyone have a fear of this dreaded condition????  I have noticed lately, since I have been battling a flare for almost 3 mos now, that I am starting to fear fibro and its long term effects.  Ok, I will be 60 in July, and yeah, we all get aches and pains as we age, but this fibro is sometimes almost debilitating.  So I start to get scared, my anxiety hits the roof, and BAM....... I am a mess.  I try meditation,
staying as busy as I can, but the mornings when I am so sore and can hardly move, I start to get scared.  Vicious cycle for sure.  Just wondering if anyone else has these feelings.
 
Hugs
 
Sue
Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 3/22/2009 8:25 AM (GMT -7)   

Hi Sue,

I vasilate constantly on that very point.  We are TOLD not to worry it is not progressive blah blah blah!  But this condition of chronic pain and the anxiety accompanied with it has to be progressive.  Anytime we are continually bombarded with stress, which fibro really does, it is negatively affecting our bodies and minds.

At times I have to calm myself down when things get really bad b/c I think will it ease up???  It always does but that creeping fear can set in.  I had felt it is b/c I am so new in dealing with it and I can guarantee you I do everything I can to control my fear.  I persoanally worry about aging, we are close in age, and maintaining my independence.  This is a fear I never remotely thought of before Fibro. 

WE help one another so much with the need to express these real concerns.  Even though we are "unknown" we share a great deal with one another.

I am flying back to FLA today from New Hampshire.  It has been a great break BUT I have noticed much more aching with the colder temps.  Hope it is in my imagination but don't think so.

Hugs,  Patsie 


pattipanda
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Date Joined Jan 2009
Total Posts : 1014
   Posted 3/22/2009 8:32 AM (GMT -7)   

Hey Sue,

I think that's one of the many things we all go through.  I know (from what I've read) that Fibro supposedly doesn't cause permanate damage.. but it sure doesn't feel that way when your having a flare that's lasting FOR-FREAKIN-EVER!!!  It is scary.  I've had a flare that's been going on again off again for about a year, it lets up for a week or so and then.. bam.. back again!!!  I miss feeling well and I sometimes think, I never will again.  But then I put on my Positive Patti Hat and try to get my head in a safer place.  I really think when we get down and depressed the anxiety kicks in and it makes it worse.

Hugs,

Note to Patsie... have a safe trip!!! 


Patti
 
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getting by
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Date Joined Sep 2007
Total Posts : 40572
   Posted 3/22/2009 8:35 AM (GMT -7)   
Sue, I think that we all fear the unknown, and this is really the unknown. I honestly don't think that fibro is progressive, I hope not anyway. I have been doing good ever since I started the malic/magnesium combo. It has really helped with the pain and fatigue.

I hope that you start feeling better soon.

Patsie, I hope that you feel better when you get back to warm temps.

Wishing you both a good day

Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Statgeek
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Date Joined Jul 2008
Total Posts : 1495
   Posted 3/22/2009 8:59 AM (GMT -7)   
Yes, Sue. We don't know from day to day how we are going to feel and if the pain will ever lessen and what is going to cause a flare . . . that can cause a certain amount of fear in anyone. It can also cause a downward spiral which makes the pain even worse. When I get like that I try speaking gratitude aloud. I remember the first time I tried it: walked in the back yard and the camellias were blooming and I said, "thank you God for the blooming camellias." They were not a big thing, but it felt good finding little things to be thankful for.

I'm glad to have this fibro family and glad you are a part of it. I would be so lost without these people. Wouldn't you? Hope you feel better.
Sue (who is not talking to herself)!

Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 3/22/2009 10:34 AM (GMT -7)   
Sue, I don't dwell on anything anymore. If I did I would probably go to bed and never get up, I take one day at a time at this point in life. I'm a year younger than you and the arthritis is becoming more of a problem for me and sometimes I'm not sure what is hurting the fibro or arthritis, fibro makes the pain of arthritis worse. In the past two years I have become much worse with pain and fatigue but then I have had a lot of stress in my life. You have had a lot of stress in your life and I know the past few months have been hard for you. You have gone through something that no one should have to go through in their life with your brother and it's going to take a lot of time to get over it.
 
I try very hard to stay optimistic when it comes to fibro. We know there is research going on to get to the bottom of what causes fibro and new meds in the future. As long as I don't have anything that is a death sentence there is hope. Yes, it does get to me when I want to do something that use to be so easy for me to do and now will wear me out and cause pain but it could be worse. I'm about to become a great grandma and I will be able to hold this baby, hear this baby and see this baby and to me that is a great gift. Now will I be doing 2 am feedings, NO WAY.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
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AustenFan
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Date Joined Aug 2008
Total Posts : 1771
   Posted 3/22/2009 10:54 AM (GMT -7)   
Hi Sue.  Yes, sometimes I get afraid when I think of what my future holds with fibro.  I'm only 40, but along with fibro, I have several other conditions which also cause pain, so I sometimes wonder what shape I'll be in at 60 or 70.
 
I try not to dwell on it too much.  I'm trying to learn to just focus on today and not worry about tomorrow.  It's really hard sometimes, though.  That's what makes this board so nice, no one understands like a fellow fibromite.  :-)
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
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Sherrine
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Date Joined Apr 2005
Total Posts : 17094
   Posted 3/22/2009 11:11 AM (GMT -7)   
Sue, the members have given you a lot to think about.  For me fibro isn't really progressive.  I have had it for 22 years and I will have times I swear it is progressive and then I will have a good period and that shows it isn't progressive to me.  I still have pain in my good periods but not the intensity I have during the flares.  I have found that flares will last longer than they used to but I'm also nearly 62 and will have more aches and pains that probably feed into the fibro.
 
I feel confident that I will always have some pain...at least that has been my experience with fibro...so I really don't think about it now.  It's a "given" to me.  I have accepted it and now have moved on.  That's great for me because I don't get anxiety over that anymore.  If anything, I'm more concerned about my osteoporosis than my fibro!
 
Dwelling on what might happen in the future will just feed your anxiety.  We don't know what the future will hold so there really isn't any sense in worrying about it.  Who knows?  They might come up with answers, meds, and cures in the very near future.  They are working on it.  It just takes one really good idea!  So my suggestion is to stop worrying over something you really don't have total control over.  Enjoy each new day and give yourself many pats on the back for the things you do accomplish.  You will be far happier and that will kick the anxiety to the curb!  Hope you feel better soon!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 3/22/2009 2:38 PM (GMT -7)   

Thanks to you all for your posts.  I am glad I am not alone in this "fear".

Like Sherrine said, you have given me a lot to think about and a lot of information.I guess I need to stop dwelling on Fibro and start thinking more positive, but it sure is hard when you have that constant gnawing, shooting pains.

I am so very glad I have you as friends on this forum. I feel blessed to be able to share with all of you

God Bless

Sue


Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 3/22/2009 2:49 PM (GMT -7)   
Hi Sue and everyone,
 
I think about this very thing every day. I've also been told it's not progressive, but over the past 8 years, I've gone from having Fibro in a minimal way, to these past 2 years with it being a monster that has taken over my life.  I think the permanent damage that Fibro can do to us is emotional and psychological damage.  Anxiety is dangerous for anyone. The pain won't damage anything skeletal in nature, but it sure does damage the psyche. I don't have a lot of self confidence anymore, and I'm sad a lot of the time. If I didn't have my faith, I don't know where I'd be.
 
It doesn't help that I have Lupus to deal with as well. Most days it's too much to deal with. I'm only 35, but my Fibro, Lupus, and arthritis makes me feel so much older than I really am. 
 
All that said, I still get up every morning and try to have my day. I do my best to keep my little photography business going. Keep the bills paid.  All we can do is our best.
 
Blessings,
Ginny 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
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Stari
Regular Member


Date Joined Mar 2009
Total Posts : 235
   Posted 3/22/2009 3:56 PM (GMT -7)   
I do fear that I will never go a day in the future without pain.  At times over the past few months I have lost my ability to use my left hand.  Serious I could not tie my shoe or button my shirt.  I fear that one day I will say enough of this $$$$ and end it.

Orlo
Regular Member


Date Joined Dec 2008
Total Posts : 139
   Posted 3/22/2009 9:29 PM (GMT -7)   
I'm terrified. I'm 19, worrying if I can even finish my degree. I don't know how I'll be able to get a real job in the future because of the pain. It's truely terrifying. I just take it one day at a time.
Fibromyalgia: 2008

Effexor 150 mg, Flexril 5 mg, Gabapentin 600 mg


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 3/23/2009 3:49 AM (GMT -7)   
When in fear, I try to focus on all that is good in my life and think of others who have nothing and feel very blessed indeed. Also I take it a day at a time. Sometimes an hour at a time. I try to think of someone who has a much worse predicament, I go about focusing on that. I inventory my blessings, all I do have ; 90% of what we worry about never comes to pass. So that's a waste of time. Not being able to do as much, well that may be a blessing in disquise. I used to do too much, adrenalin junkie, two kids, two jobs, small business on side, housekeeping. All by my little old self. Then a bunch of stuff I had absolutely no control over, or say in, happened. My life came to a screaming halt. Fibro was the least of it. So, when I feel antsy, scared or depressed, I try to think of someone in worse shape.

Who said 'that which doesn't kill us, makes us stronger". Somebody smarter than me. Grumpie elf.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
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SleepyBug
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Date Joined Nov 2008
Total Posts : 1097
   Posted 3/23/2009 6:01 AM (GMT -7)   
Sue,

I am 36 and definitely have days when I fear for my future with this dd. How will I ever get through the next (God willing!) 40 or 50 years with this pain?? The mere thought drains every ounce of energy out of me and makes me want to go straight to bed for a week! This whole issue really had a grip on me for a couple of weeks last year. I started to imagine my future, which caused me great levels of anxiety (which of course made my fibro worse!) So now...I try not to think about it too much! When the thought does cross my mind, I remind myself that I have good days and not so good days now, so it seems reasonable to think that as I age, I will continue to have both. I also remind myself that I will be truly blessed to make it to my 70's and 80's, fibro or no fibro! Realizing both of those things helps me feel a little better about the future.

As far as fibro being progressive or not, I know that "they" say that it isn't. I think, though, that while the fibro itself isn't progressive, the stress and fatigue that it causes in us IS progressive! The more we live with pain, the more worn out we feel, which stresses us out, which causes more pain, and on and on and on. I definitely have a harder time now than I did 8 years ago when I first started having symptoms, but 8 years ago I started having symptoms after living 28 years relatively pain free. I had "fresh brain" so to speak. Now, I have a brain that is tired from the past 8 years. So even if my pain isn't worse, it feels like it is!! Does that make sense?? Chronic pain wears a person down terribly and if we're worn down mentally and emotionally, it's harder to move past physical pain. Those are my thoughts on the matter, anyway! :-)

I hope you're feeling a bit better today. {{{{{gentle hugs}}}}}
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


singlemomof2
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 3/29/2009 5:27 PM (GMT -7)   
I've only been diagnosed a week but have felt bad for nearly 2 years and yes, I fear it daily. My anxiety is especially high right now as I prepare for work tomorrow, worry I won't be able to get up or do my job properly. After the diagnosis, I was relieved that someone was listening and I could get some help but today's headaches and anxiety have made me realize how much I fear this and what it will mean for my future. I guess we take it day by day and try to be strong. Sometimes I feel like a just need a long hug and someone to keep me grounded. sad

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 3/29/2009 5:29 PM (GMT -7)   
Awww, Momof2 {{{{{{long gentle hug}}}}}}

I am so sorry-it is hard when you first get diganosed and are trying to figure out work and kids and life and everything. Please know that you can come here anytime and ask for support and advice, and maybe have some laughs, too! :-)
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

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