Vitamin D Deficiency

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libertykitty
Regular Member


Date Joined Oct 2008
Total Posts : 111
   Posted 6/6/2010 12:45 AM (GMT -6)   
I've been taking 2000 IU daily for about a year now, I think, and I'm testing in the normal levels. I've noticed no change at all since I started taking Vitamin D supplements, but apparently my blood is healthier! I have noticed that being out in the sun makes me feel better, either because of the warmth or the naturally-produced Vitamin D. Laying out is no good, but if I'm outside gardening or something, it's easier for me on a sunny day than on a overcast one.
Dx'd with: fibromyalgia February 2008, dysthymia & dysnomia January 2009, biliary dyskinesia January 2010

I had a laproscopic cholecystectomy in January 2010.

Meds: Savella, Vitamin D, Lyrica


Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 6/6/2010 5:26 AM (GMT -6)   
Sherrine.  How did you feel with your vitamin D levels low?  I have been having some testing done but haven't gotten results back.  My legs have been very weak and sore and my arms a bit too.  I had a time yesterday where the legs got really weak and I felt for a few moments like I might possibly faint.  Glad you're doing better with your levels.  Have a great pain free day.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17453
   Posted 6/6/2010 3:27 PM (GMT -6)   
Libby, I didn't have a clue that my vitamin D level was low.  I just ached, had a lot more pain, etc., and knew it was fibro.  Then my doctor checked my vitamin D levels because I was complaining the the pain was getting worse.  I was quite low, even though I had been taking 1,000 IU for over a year!  He had me take 2,500 IU and checked the blood three months later.  I was still low.  Then he bumped me up to 3,500 IU...still low again.  When he bumped me up to 4,500 IU I noticed a difference in my pain levels in a couple of days!  I'm now just barely normal.  The scale at the lab is 32-100 is normal and I'm 33.  I want to take another 1,000 IU but want to talk to him first. 
 
My pain is not as intense and I'm not as tired either.  We are getting into the summer season and that usually is my worst time with fibro.  So far, I've been really good.  Also, in the winter, I suffer from bad pain in my feet.  This has been going on for years but it didn't happen this winter.  I started the extra vitamin D in January.  Hope this helps.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/7/2010 7:43 AM (GMT -6)   
I like Sherrine got a lot of relief with my feet pain with the Vitamin D. I was so miserable, but haven't had that pain for awhile now, and I attribute it solely to Vitamin D3. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/10/2010 11:55 PM (GMT -6)   
Sherrine,

I wanted to pop this post back up because recently, I was in alot of pain and haven't had this much pain since starting Savella. I thought that maybe it had stopped working. Anyway, I was prescribed 50,000IU of vitamin D and haven't taken it in over a month. My vitamin D was extremely low. I took a pill yesterday and about 3 hours later, I felt so much better. I wasn't hurting as much and I felt better overall. Thanks for posting this because it reminded me to take my vitamin D.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17453
   Posted 6/11/2010 10:09 AM (GMT -6)   
Cajun, I finally got my levels in the low/normal range and feel soooo much better.  It really is helping with pain and fatigue.  I take 4,500 IU daily and want to up it another 1,000 IU but also want to talk to my doctor about it first.  This really does help and many of us are deficient!  I"m glad it's helping you!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 9/24/2014 8:12 AM (GMT -6)   
I am a big believer in the importance of vitamin D in a persons health. Most people are deficient because we do not spend time in the sun. Vitamin D is the sunshine vitamin and you will have a hard time getting enough from your food. I was eating salmon and taking cod liver oil thinking my vitamin D was Ok. When I had the test done I found out it was 19 ng/ml. My doctor prescribed 5,000 units of D2 a day for 12 weeks then 2000 units of D3 for 12 weeks. Everything I have read suggest that D3 is the better form of vitamin D. I started taking 5000 IU of D3 everyday and spending 10 minutes a day in front of a sunscreen. After 3 months my level was 72.2 ng/ml. The healthy range given to me by the doctor was 30-96 ng/ml. If the units are nmol/L you have to multiply by 2.5 to get the numbers. People who are sick need more vitamin D because the body uses it up. Read as much as you can about the benefits of vitamin D because it could make a difference in your health.


http://www.naturalnews.com/027345_Vitamin_D_exposure_sun.html

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2050
   Posted 9/24/2014 10:08 AM (GMT -6)   
I got mine from 19 to 46, in 3 months of 4,000 a day , plus getting into the sun for 20 minutes about 4to 5 days a week.

I was in bad shape at 19.. I was weak, in a lot more pain, confused

My pain became better after about a month...even at 46 i am still working on the weakness, it comes and goes... I had read it could take 6 to 12 months for all the symptoms to go..

This subject coming back up as we go into fall is good..we need to think about it as we will be in the sun less...

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17453
   Posted 9/24/2014 10:12 AM (GMT -6)   
I'm in the sun all of the time since I live in Florida so I was surprised that my D levels were low. But I always wear sunscreen and vitamin D cannot be absorbed through sunscreen. This is another reason I take the supplement.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Lily'sGma
Regular Member


Date Joined Sep 2014
Total Posts : 27
   Posted 9/24/2014 10:18 AM (GMT -6)   
My vitamin D was at 14, which my Dr said was very very low. I see someone said moodiness is a symptom. Is this true? If so, I cant wait to start feeling better. My Rhuemy has my on 50,000 units a week. I am so hoping this helps very soon. I also have a hard time concentrating. Is this part of it too? And the fatigue is almost unbearable. Who knew a Vitamin can cause so much havoc.
Lily's Gma
Panic Disorder, Depression, Degenerative disc in neck and back, Acid Reflux, Fibromyalgia.

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 9/24/2014 11:33 AM (GMT -6)   
The best way to get vitamin D is from the sun but the sun has to be at a certain angle in order to get the vitamin D. In the northern hemisphere this can be a problem. If your shadow is longer than your height you are not going to get vitamin D from the sun. You cannot overdose vitamin D from the sun. There are people in the tropics who spend time in the sun and have levels of 80-100 ng/ml. Problem is as we get older our bodies are not as efficient in converting the vitamin D into the useful form. The process also require cholesterol so if you do not have enough cholesterol that could be a problem. Everything I have read suggest sick people need more vitamin D than healthy people. Last year when I had mine checked it was 78.2 ng/ml. and I feel fine. If you are taking a supplement make sure it is oil based vitamin D3. Vitamin D is a fat soluble and needs fat to be absorb by the body. There is evidence that vitamin D works better than the flu shot in prevention of the flu.

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2050
   Posted 9/24/2014 3:50 PM (GMT -6)   
Lily's gma,

Yes weakness , forgetfulness, increased pain, muscle spasms, moodiness...so many factors can be involved with low d...you can google it or there is info here at fibro 101.

For me the vit d caused so much more extreme symptoms than fibro ever had...it does take a while to get past the symtoms, even after your numbers come back up...

So glad your dr. Found that and you are getting help!

Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 6069
   Posted 9/24/2014 4:29 PM (GMT -6)   
It does seem to be a common thread. I think our bodies are just wired and powered oddly, so I cannot really buy into the supplement/food/pain med route for maximum management.

I think supplements do help, but are a part of the whole regimen. Vitamin D got 'hot' in doctor's offices 3-4 years ago, and everyone was on the kick of testing/talking about it. My vitamin D was low. I take supplements, which is helpful.
Ulcerative Colitis 2003, Fibromyalgia DX 2005, Crohn's 2013, Enteropathic arthritis, 2013. Family History of Fibro--2 out of 3 siblings diagnosed. Started SCD-June 2013. *There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 3197
   Posted 9/27/2014 1:06 PM (GMT -6)   
I like taking the vitamin D that is strictly vitamin D with no fillers. They come in 5,000 or 50,000. I believe they keep your level up better. You dont need a script.

skyeblue74
Regular Member


Date Joined Jul 2014
Total Posts : 78
   Posted 9/27/2014 3:57 PM (GMT -6)   
What a trip you guys are talking about this again. I just had blood test yesterday and got a call from the doctors office today. Everything came back normal except my vitamin D!

I've been taking vitamin D3 5,000 IU from Puritan Pride for about a month. They said to take 8,000 a day. I have 3 bottles of the 5,000 though. I'm just going to double the dose and call the doctor Monday and make sure it's ok. And to find out what my levels are.

I'm really hopeful this will eventually help me somehow. All I know is something has to change because I am beyond my breaking point!

Thanks for having the topic of vitamin D in Fribro 101. The doctor wouldn't have checked my levels if I hadn't have asked him to. I am very thankful for this forum. I feel like I know you guys and I really relate to alot of you.

Dawn

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2050
   Posted 9/27/2014 6:29 PM (GMT -6)   
I would not take 50,000 ones unless they are reg testing you...you can get too much.. I just realized my one a day has 2,000 in it..so last winter i was actually getting 3,000 a day and my numbers were falling...i added 4,000 a day and got into the sun a good bit to get it to 46...but i do notice i do not feel as well unless i am getting out several days a week...so the supplements help but not as much as the sunshine...

Being low in this one supplement made me feel worse than i ever had in my life , happily i am still improving.
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