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AwfulinAustin
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 3/23/2009 6:03 PM (GMT -7)   
Hi, I am AwfulinAustin.
 
Just a little information, hope I can limit it.   I have suffered from a diagnosed depression for 12 years.  I'm sure I had depression long before that.  I had an ulcer at the age of 6.  Ten in the family and if you were one of the last ones, you'd have an ulcer too.  I would have to say everyone of us have depression.  Unfortunately, I've lost 3 brothers tragically.  My oldest brother, Rev. was diagnosed with diabetes and committed suicide in the psychiatric ward on a 24 hour watch.  Another brother I lost 3 years ago to a rare illness called sclerosing cholangitis and he also had diabetes.  Another brother died in June from his long standing juvenile diabetes, had a seizure and was on life support, but came back to us, but was incompetent when he came back. (I need to tell you this because of this situation, my sister, Patti, changed his beneficiary to herself.)  My mother had been my brothers beneficiary for 34 years.  He was married twice and divorced twice and still kept his beneficiary in my mom's name.  Even when my father passed away it was originally Mom & Dad, and Dad passed away and he changed it in 6 days to just my Mom.  So..needless to say, the stress has made everything just worse.  Also, my sister is in Hospice and has very little time to live. 
 
We moved to Texas 3 years ago and everything was fine at this point, besides the depression and anxiety disorder and social phobia which was diagnosed when my ex came back into my life.  Now that is a long story...but basically he never saw my daughter until she was in the 5th grade and after he came back into my life, I went downhill from that point.  I fought back with therapy and moving to Texas. 
 
I cannot figure out my illness and I know my doctors can't figure me out either.  I am trying to figure out if I have fibromyalgia or hypothyroidism at this point.  I am now being treated for fibromylagia with Tramdol and also I am on anti-depressants, Effexor XR, Diazapam, Busparinone, Seroquel, Hydroxyl Xl, Fexofenadine (HIVES), and also generic Synthroid. 
 
So, here comes the real story.  I had a Hysterectomy in Dec. 2007 with a bladder retention lift  (In at 7 out at 12 the same day with a catheter in me).  I never really felt good after this surgery.  In June my brother passed away, but I knew I needed to go back and have surgery again, because the bladder repair didn't work.  On September 2, I had a cystocele & rectocele surgery.  After 8 weeks of NOT HEALING, my doctor finally threw up his hands and said, that the only way I would heal would be to put more stitches in me.  Needless to say, I had no idea what that meant.   Well, after 4 nurses walking in, 2 to hold my legs, one to hand instruments and one to help him put the stitch in me and this all done in the OFFICE under no meds at all.  I know I went into Shock.  The next day, I got the hives and he mistreated it with the wrong meds and I ended up in the emergency room to be prescribed the "RIGHT MEDS".  I also now had to go through another surgery because I still never did heal.  He sent me to a urogynecologist and had surgery again in October. 
 
From this point on...I have NEVER felt good.  And to this DAY, I still have hives.  I developed all the signs of a low thyroid but my thyroid reading was 5.9 which isn't too high, but went to a Endocrinologist which said that my level should be 1.19 because that is my best level for me.  So, they are still working on that.  But, I have all the symptoms of Fibromyalgia. EVERY SINGLE ONE.  So, trying to figure out what is wrong with me, because I have no energy.  I've lost the love of my passion to scrapbook and now have gained 20 lbs.    OBTW - I have a resting heart rate of 129, yet my blood pressure is 100/60. 
 
FIBROMYLAGIA?????  Please help me in Austin.

Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 3/23/2009 6:12 PM (GMT -7)   
Hi Help me in Austin. I really don't have any words or advice for you. I truly wish I did. You have been through More than any person you should go thru. I don't know if you have fibro, but I am sure one of the coordinators will answer you soon in what direction you can look for help on line. I will pray for you and your heart. God be with you. Denise
Fibromyalgia, Hashimoto Thyroid disease, Chronic pain.
 
 All things are possible thru Christ Jesus who strengthens me


AwfulinAustin
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 3/23/2009 6:27 PM (GMT -7)   
I am going to physical therapy to try to help the excruciating pain. I'm sure I forgot to write a bunch of stuff, but if you have questions to help me...I'd greatly appreciate it.

Thanks

jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 3/23/2009 8:11 PM (GMT -7)   
AwfulinAustin, I am so sorry for all you have been through.  I hope you find some relief from your pain & illness soon.  I wish I had some answers for you, I think stress & trauma whether physical or emotional can trigger Fibro.  The long term trauma you have been facing certainly would fit the bill.  It is understandable that you have to deal with depression & the mourning process can take time.  You will find much comfort here & understanding.  Please, come often to post & to read, venting is allowed here & we will do all we can to help you.   Many soft, gentle hugs, Denise  

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/24/2009 3:57 AM (GMT -7)   

Wow AwfulinAustin, you've been through the ringer too many times.  I wanted to let you know I'm here for you.  I don't have any real answers for you, since I'm not a medical professional.  But it sounds like the medical professionals you've seen have done much good.  Are you diabetic too?  That might be why you're not healing well. 

I'm so sorry you've had so much loss in your life.  I agree with Denise when it comes to all of the truma you've had creating a trigger for Fibro.  And I would talk to your doctor about it as soon as possible.

I just wanted to let you know we're here for you.  Be sure to check out the second threat on the forum called, Fibro 101.  There's lots of info on there and tips on how to live with this dreadful syndrome.

Keep in touch and let us know how you're doing.

Warm hug,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 3/24/2009 4:18 AM (GMT -7)   
Hi, Austin, and welcome!  Yes, you sure have been through a lot.  I certainly hope you are not seeing that one doctor that gave you the wrong medicine and also stitched you up with nothing to kill the pain.  I also hope you reported him.  No one should ever be treated like that.
 
It sounds like you need a good doctor that will give you a thorough physical.  Many use a rheumatologist for their fibro but I use a board certified Internist and he's wonderful.  Whatever doctor you see, make sure they believe in fibromyalgia.  There are still doctors out there that don't.
 
You should find out why you are having problems healing.  I'm diabetic and that is one of the problems we have.  Have you had your blood sugar checked?  Just a thought.
 
Many with fibromyalgia suffer from hypothyroidism.  A good doctor will keep tabs on that too.  Mine does.  Also, many are deficient is vitamin D, malic acid, and magnesium.  These can help with pain and fatigue.
 
Be sure to check out the Fibto 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia that can help you and also help you understand this illness.  It does mimic other illnesses and a good doctor will run tests to rule out the other illnesses before a diagnosis of fibromyalgia is given.  There is a link in the Fibro 101 thread called What Else Could It Be that tells you other illnesses that have many of the same symptoms of fibromyalgia. 
 
Once you truly know what is going on then  you can face it head on and get control of it.  It sure sounds like you aren't really sure what is going on with  you physically.  I hope you find out soon so you can work on feeling better.
 
I am glad that you found us and joined in.  This is a wonderful forum with great people that love to help one another and we really do care about each other too.  So, read the Fibro 101 thread, back posts, and ask questions.  We are here to help you.  Hope to hear more from  you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 3/24/2009 6:02 AM (GMT -7)   
Hi Austin (I'm Austen :-) ) Oh wow.  You have been through a lot.  I agree that you should probably start with an internist and get a good physical.  While there isn't a blood test for fibromyalgia, there are blood tests for hypothyroidism and blood tests for a whole host of other illnesses with similar symptoms. A competent internist should be able to rule out other illnesses and diagnose fibromyalgia if that is what it is.
 
I would also suggest keeping a pain diary to take to your doctor.  Someone posted one on here a while back, and I can never remember where to find it, but if you google "pain diary" or "pain journal" you will find lots of examples.
 
I hope you find some answers soon, but please don't give up if it takes a little trial and error.  I had to go through a couple of  doctors before I found one who actually gave me a concrete diagnosis. 
 
HUgs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


AwfulinAustin
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 3/24/2009 6:40 AM (GMT -7)   
Thank you so much for the support each and every one of ya'll. I'm happy to say, it took me a while to find the new doctor I have, but I know I found the best. He's a listener and really does care about me which you can tell. Lately, we've been keeping an eye on my thyroid. Went to a quack of an Endocrinologist/Diabetes/Infertfility Specialist. I swear I sure know how to pick out the quacks. LOL She did say my thyroid is definitely out of whack, said the Quack. I had to do that. LOL Anyway, when I asked her about the diabetes part of Hypothyroidism...she said, I don't treat diabetes. I was what..aren't you an Endocrinologist...yes, but I don't practice Diabetes. Well, I asked her about other Hypo symptoms depression and once again same answer. She did take my blood for a blood test for my TSH, T1 and T2 (right?). (BRAINFOG). I haven't gotten my numbers yet. Anyway, called the Texas Medical Association...well it appears she is licensed to treat both Endo/Diab. I told them what she said. They asked me to report her. My GP doctor (the GREAT doctor), said, oh...she's an OB/GYN. Let's say, we both we're quite alarmed. I informed him of my findings.

My doctor definitely believes in Fibro, as you can see by my meds, is treating me for Fibro. He believes it is Fibro without a thyroid problem...mainly Fibro, so that's why he's also starting me on physical therapy.

Now the doctor that totally messed me up, he is still practicing and just to let you know PAID me back monies for his mistreatment. NO LIE.

I am so happy I found this forum also. Today I was going to go to the Helenfoundation.com seminar, but I'm thinking these people travel around the country trying to convince people of their unorthodox way of treating Fibro. What does anyone else think of them?

I did read fibro 101 and I fit the profile totally. Even had surgery on my wrist for a ganglion cyst.

Thanks again,
Sheila

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 3/24/2009 6:45 AM (GMT -7)   
I tend to agree with you aabout the Helen Foundation.  There are many out there that are so willing to take your money.  If what they offer really worked, all types of doctors would be using it and it would be all over the news, too.  I stay away from things like that, personally.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


AwfulinAustin
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 3/24/2009 6:50 AM (GMT -7)   
P.S. Which I just noticed I didn't say...My Mom is now in litigation with my Sister for the beneficiary monies. We cannot believe she is actually trying to do this. I can't believe you can wheel in an incompetent man to his work place and change the beneficiary without them trying to talk to him and make sure he knows what he his doing. The doctor filled out the incompetent form way back in September when he went into his coma and came out incompetent.

Thanks again,
Sheila

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/24/2009 7:49 AM (GMT -7)   
Hi Shiela and welcome. You have already been given so much great advice on here. I'm glad you have a good doc now, it doesn't matter what their title is as long as they believe in fibro 100% and are willing help you. My GP dxd me before I even knew what fibro was. Of course he had already tested me for lupus and everything else it could be. I do go to a rheumy every six months but I have arthritis and an auto-immune disorder too and it never hurts to have two opinions on what is the newest things on fibro.
 
I also come from a family with depression an anxiety problems and I am one of many that have it. Thank goodness they have meds now to help us cause my grandmother spent most of her life in institutions dealing with it before they had the meds they have today.
 
Ask and we will be here for you.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


AwfulinAustin
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 3/24/2009 11:28 AM (GMT -7)   
So...do you know any GOOD doctors in Austin?????

AwfulinAustin
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 3/24/2009 3:21 PM (GMT -7)   
I just found out my new TSH score is 2.19. The doctor believed my best level for me is 1.19 according to all my old records. Today, has been a really good day, energy, and just a slight backache. Does everyone feel really good on some days and then totally awful the next day??

jev
Regular Member


Date Joined Jun 2008
Total Posts : 168
   Posted 3/24/2009 4:04 PM (GMT -7)   
Hi Sheila and welcome! I'm right down the road from you in the Houston area. If you should ever find yourself in Houston looking for a doctor, I can direct you to an outstanding rheumy that specializes in fibro, cfs & auto-immune disorder diagnosis and treatment amongst her many other accomplishments. And she is a wonderful listener and has an awesome bedside manner! She even has online accreditation for her glutathione/atp regimen for cfs and fibro treatment. I'm so sorry you've had so many personal and health issues and I can certainly identify with your thyroid issue since I've been on medication for low thyroid for about 20 years now myself.

Please visit often and ask anything you wish, my dear!

Gentlest of hugs,
John
*****************
John (54)
*****************
Dx'd June 2008 with Fibro, CFS and CEBV (Chronic Epstein-Barr Virus) after many years of ongoing and worsening symptoms......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & migrane/cluster headaches.

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