Reconnection.......been gone a long time....missing my family here & update on my fibro!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jun 2008
Total Posts : 168
   Posted 3/24/2009 5:04 PM (GMT -6)   
Hello to everyone!
Looks like the last time I posted here was way back in December. So much has happened since and yet life continues on. I kinda' dropped off the map while trying to deal with some of the same serious issues many of you are dealing with......fibro/health, family & friends, critical illness, death, serious marriage problems, economy, threat of unemployment, name it. I chose to crawl into a shell and disconnect myself from everything and everyone and thus lost interest and passion for this site and it's wonderful people and pretty much everything else outside of my immediate family and myself. I believe it's time for me to regroup, reconnect and re-establish relationships because when you circle your wagons and isolate yourself, you become just that - isolated and feeling alone! Everyone here has always been so caring, loving and supportive and I'm realizing just how much I miss and need that.
I went back and glanced at all the subjects and read some of them in depth all the way back to January. I was so sorry to read about Chuzzle's loss, Karen's stroke and all of the other sad, exasperating and painful things many of you have had to experience and endure. I wish I could have been here for all of you in your hours of need to offer encouragement and support but I got lost along the way and am slowly finding my way back so please bear with me. It's been a long, exhausting and painful trip back to reality but all I have to do is look at Chuzzle's and Karen's experiences to place mine in it's proper place.
On the fibro issue, the vast majority of my pain & discomfort remain under pretty decent control from my weekly glutathione/atp injections. I've been on this regimen now since my December post and all I can say is life is so much better with them than without them. I went through a one month trial period in late December where she stopped the shots to test my body's response and my body went back into full fibro misery. It took six weeks of twice a week shots to get it back to a very manageable comfort zone and now I'm back to once a week injections. I can tell when it's time for the next injection as pain receptors become more sensitive before the injection and calm back down fairly quickly afterward. At 10 bucks a pop, I can only hope that the economy doesn't crater further and cost me my job but it is looking increasingly possible that I have to form a "Plan B" just in case. I still have peripheral neuropathy in my hands and feet that the injections don't help but ibuprofen still works fairly well there so, all in all, things could be far worse.
Hello again my friends and the gentlest of hugs,

John (53)
Dx'd June 2008 with Fibro, CFS and CEBV (Chronic Epstein-Barr Virus) after many years of ongoing and worsening symptoms......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & migrane/cluster headaches.

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 3/24/2009 6:50 PM (GMT -6)   

Hey John,

Glad you are back and checkin in with us.  Glad you crawled back out of the shell and are reconnecting.  It is easy to isolate ourselves sometimes - this illness can be frustrating and many of our friends and family with skin on don't understand it.   That is interesting info about those shots.  I have never heard of them before.  I tried botox for myofascial pain and it hurt like heck!  Missed you,


Forum Moderator

Date Joined Apr 2005
Total Posts : 17055
   Posted 3/24/2009 7:41 PM (GMT -6)   
John, I am sooo happy to see you again!  Believe it or not, you have been on my mind for the past two weeks and I was wondering how you have been doing.  Honest!  So you came back at the right time.
I went through a couple of weeks of depression, too.  Me.  Little Miss Sunshine!  What's happening in the world is frightening but we will survive.  We on this forum are especially fortunate because we have our own support group.  We are here for each other and many in this world don't have that. 
I'm glad that the glutathione injections are helping you.  I remember when you stopped the injections and you started having problems again.  At least you know what works for you now.  I'm doing better right now.  I'm not sure if it's just a good period or if it's because I'm taking more vitamin D but, whatever it is, I hope it continues. 
Anyway, welcome back "home".  We all missed you a lot.  We even have a couple more men to join you on this forum.  So try to relax and I'll be praying that your job holds and things straighten out in this economy.  Have a good evening.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 3/24/2009 8:42 PM (GMT -6)   
Welcome back.


Veteran Member

Date Joined Aug 2008
Total Posts : 1771
   Posted 3/24/2009 10:27 PM (GMT -6)   
Welcome back.  :-)
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.

Veteran Member

Date Joined Jun 2008
Total Posts : 716
   Posted 3/24/2009 11:42 PM (GMT -6)   
John, nice to meet you & welcome back.  I have found this group to be just what you said caring & loving.  We often don't really understand how much we need to come here & connect with people who know what we go through daily.  I am glad you have found your way back.  It can be a scary place to live in isolation, I have been there & depression & sadness seemed to want to keep me there.  Welcome back, hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/25/2009 8:14 AM (GMT -6)   

Hi John!!

I must have joined right after you had your bad spell... so it's nice to meet you!!  I'm glad you're back!!  As Sherrine mentioned we have a few more men-folk here on the fibro ranch now-a-days!! 

I've never heard of those injections either??  Are they for Fibro or another ailment? 

Sorry you were going through a rough time.  I have a bad habit of curling up in a little ball and attempting to avoid the world, sometimes.  I'm so glad I found this forum and all of these thoughtful and supportive people.  I don't know what I would have done over this past winter with out them.   There were days on end that I couldn't get out of the house because of snow and ice and coming on here kept me reasonibly sane whi fozen solid from the weather.

Again, welcome back.. don't be a stranger!!

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 3/25/2009 8:58 AM (GMT -6)   
Welcome home John, you were missed!!!! So many of us don't know what our futures hold right now. I know mine holds a lot less money smhair and I didn't even get a new purse out of it. All we can do is pray for each other and be here for each other.
I can't remember if I asked my rheumy about the shots or not confused I'm glad they are still helping you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Regular Member

Date Joined Dec 2008
Total Posts : 478
   Posted 3/25/2009 10:14 AM (GMT -6)   
Hi John and welcome back,

I must have joined right as you stopped posting for a while.

What are the injections and are they specifically for Fibro? Also how do you know you have peripheral neuropathy and not just Fibro? So many of the pain symptoms overlap. Do you have diabetes or neuropathy from other reasons?

This group has really helped me to stay "with it" and connected. I withdrew from a lot of social activities and isolated myself as well. Now I am embracing the new me and doing every little thing I can to remain positive and stand up to this awful syndrome. My friends here have sure helped.


Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 3/25/2009 10:43 AM (GMT -6)   

Hi John- So nice to hear from you as usual!!

I know life can get downright overwhelming- and I am happy to hear your crawling out of the "dark" hole and rejoining life as crappy as it is right now. It takes "everything" I have to keep going sometimes! So I feel for you, and can relate. Sounds like the pain is somewhat under control again and I hope that keeps up for you.

We're always here for support, and we care!



Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 3/25/2009 10:52 AM (GMT -6)   
Hi John!

I don't think we've "met" (I must have started coming around after you left?) but I did want to pop in and tell you "nice to meet you" and "welcome back"!

I'm sorry you went through such a tough time, but I definitely understand why you felt the need to withdraw. That's usually my main response to tough times, too. When I don't come around for a few days or more, it's usually because I'm having an issue or am in a funk of some kind. I just find that I need to take that time once in awhile to reset my head. But I always come back here because the people are so wonderful, and I'm so glad you've come back, too!

Glad to hear the shots seem to be helping-I've never heard of them either, but if they help you, then great!

Welcome back again and I look forward to getting to know you :-)
love and hugs

fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

Regular Member

Date Joined Jun 2008
Total Posts : 168
   Posted 3/25/2009 5:15 PM (GMT -6)   
To all you wonderful people who said hi and welcomed me back so warmly......thank you all so much! This means so much to me! To Sue, Sherrine, Donnaeil, Austen, Denise, Patti, Marlee, Patsie, Gamjill and've reminded me how important THIS family is to me too and what the word "support" really means!

And Sherrine........I...........did..........feel........a great disturbance in the force, sweetie, so that MUST have been YOU!!!!!

Hey, I know that there is always good with bad but sometimes you just need a reminder and y'all gave it to me!. Besides those fun and thrilling job/economy worries, I've got two pretty close family members who are facing what are quite possibly terminal cancers and one of my best friends who might be facing cervical cancer. But, on the bright side, the economy is forcing my wife and I to stay and live together or she would have moved out a long time ago thus putting a big delay in the inevitable. There are irreconcilable differences that we cannot overcome even with counseling but we remain on good terms and friends, especially for our daughter's sake. It's just a little awkward at times but this too shall pass.

Gentlest of hugs,
John (54)
Dx'd June 2008 with Fibro, CFS and CEBV (Chronic Epstein-Barr Virus) after many years of ongoing and worsening symptoms......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & migrane/cluster headaches.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, October 22, 2016 6:53 AM (GMT -6)
There are a total of 2,710,020 posts in 298,857 threads.
View Active Threads

Who's Online
This forum has 153398 registered members. Please welcome our newest member, lanhpointzerofour.
208 Guest(s), 12 Registered Member(s) are currently online.  Details
rowingmom, lynbrez, Poppysocks, Albannach, cd3764, 1000Daisies, jdm99, Huddie, Bhutan boy, commandersorebod, Traveler, J.Griff85

Follow on Facebook  Follow on Twitter  Follow on Pinterest

©1996-2016 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer