New and introducing myself

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MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 3/25/2009 1:42 AM (GMT -7)   
Hello, I'm Lola, I'm 27 y/o and I was diagonosed with fibromyalgia last yr. Since then, my life has been a blur of dr appts. I told my dr the day I was diagnosed that I couldn't be sick, I have a 4 y/o son and a disabled husband, I can't be sick, I'm the one that does everything, and at the time I was a full time college student, made the National Dean's list my first yr, I worked.
And now, there are days I'm lucky to be able to get out of bed and stay out of bed. Right now I'm doing everything I can do get the most relief, but nothing helps. Walking, yoga, meds, diet, herbal... I feel like a mutant guinea pig. LOL
My dr and pharmasist have taken me on as a 'pet project' and suggested herbal suppliments in conjunction with Flexeril, Celexa, and despiramine. Along with the daily maximum doses of Advil and Tylenol.
Unfortunately though, I'm fighting to get disability and what I hear isn't good. Because of my age, and having been put on medical leave from every job I have every had due to some medical meltdown, I don't have the required 'quarters' to qualify.
My family tries to be understanding, but I can tell at times they get so frustrated. I often hear "Lola, why aren't the dishes done?" Ummm because today is a bad day and my back won't quit screaming and btw, don't mind the obscenities. I love you too dear. LOL I've found from ppl who've been generally healthy don't know how to comprehend that yes, I was in pain yesterday, I'm in pain now and will probably be in pain tomorrow. They have a hard time understanding that this invisable illness can cause so much.
Forgive me if I run on, but this is the first time in over a yr that I have been able to talk to someone going through it, not just watching from the sidelines.
Aside from having FM, I have heart problems, arthritis, and costochonidritis.

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/25/2009 3:33 AM (GMT -7)   

Hello Lola!!

Welcome to the Forum!!!  This is a great place to learn, share, vent, laugh and gain emotional support.  First let me direct you to the 2nd thread on the Forum called Fibro 101.  Please go there and read up, I'm sure you'll find some stuff there that might help you.

Its really hard to be going through what your dealing with right now.  I hope you find some relief soon.  I'm sorry you're having to deal with deciding if you'll need to head toward disability, its really hard to get and takes a long time.

I'm happy you've made the Nat'l Dean's List.. Wow, that's a great accomplishment!!!  How much longer do you have to go to school before you're ready to grad?

Again.. Welcome to the Forum.. this is really a great site, with lots of folks that really care.

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40595
   Posted 3/25/2009 6:57 AM (GMT -7)   
Hi Lola,

I too wanted to welcome you to the fibro forum. I think that you will be able to learn a lot here and feel the compassion of some wonderful people who know what you are going through.

Feel free to post anytime, vent, or just say hello. We try to keep things light around here and get a laugh now and then.

Take care my friend

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/25/2009 7:43 AM (GMT -7)   
Hi Lola and welcome to the family. You will not be alone with fibro again since you found us. We have many on here your age that you can relate to. It breaks my heart every time I see someone so young join this forum. At least fibro waited til I was around 50 to show it's ugly head. We can still do most of what we want to do but it takes longer to do it. I hope your able to continue with your education and congrats for making the dean's list.
 
It's hard enough to try and get people to understand how a 58 yr old woman no longer has the energy to keep my house clean after being a perfectionist all my life so I can't imagine being 27 and dealing with people. I do try to put myself in other's shoes and going back before I got fibro and I don't think I could have understood this crazy DD if I didn't experience it for myself so I do give people some slack. The people I have the biggest problem with are those that don't take the time to research fibro and don't even try to understand what I am going through.
 
Read, ask questions and vent when you need to and we are here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 3/25/2009 9:10 AM (GMT -7)   
Hi Lola,

Welcome to the family! I'm sorry you're battling this dd, but I am so glad you've found us. This is a wonderful place to come and vent/moan/ask questions. The people here are so welcoming and gracious and kind-and funny! Please feel free to come here and let it all out whenever you need to!

Also, I second what Patti said-definitely check out the Fibro 101 thread. There is a lot of great information there...

It sure does sound like you have a lot on your plate, with your child and your disabled husband AND school! (KUDOS to you for getting on the Dean's List!!) I am 36 and have had fibro for about 8 years now, and I too have gone through the struggle of trying to get people around you to understand. Again, please always feel free to come here and vent about these things-well all definitely understand!

Welcome again-I look forward to getting to know you.

{{{{{{gentle hugs}}}}}}
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 3/25/2009 9:25 AM (GMT -7)   
Thank you all so much. I was in the middle of my second yr, with another yr and a half to go. I started to get sick at the end of my first yr and got worse as time went on. I can't go back to work or school until I get a medical release from my dr.
FM, heart attack2, chronic bronchitis, arthritis, costochondritis, fibroid tumors

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