this is not a death sentence

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Regular Member

Date Joined Jan 2009
Total Posts : 56
   Posted 3/25/2009 11:59 AM (GMT -6)   
hi peeps and welcome to the new peeps,
  my computer crashed and so i have to go a few miles to the libaray to get caught up. i am glad that i did today cause i found a new dr. and my fisrt visit was yesterday and i left feeling so impowered with fibro.
  i am 29 (some days i feel alot older) and my fear is that by the time i reach 40 i will be use to pain meds and then what????
  my dr. talked to me yesterday about the mental part of fibro and how a person like me that was top in her class at the school of hard knocks could benifit from some one to talk to.
  now dont get me wrong i am not saying poor poor me or anything but i have been through more then people have been through their whole lives and i am still atanding here saying i can do it.
  she also talked to me about the fibro diet....ok so this is where i need some advice i have read some comments here abd there in here about that and when i got on here it was one of the topics..
  books peeps i want to read every book about this fibro and how to deal with it. my dr made me feel that i can do more then just sit around waiting for the sun to shine through and i want to do whatever it takes to feel better if this is truley in our hands then why dont i hear more about that from my other drs.
  so now i feel like i have hope so much hope that in a rainy day i got dressed walked my dogs and got n my car to drive to the libaray i ask you??? please any books that you have read on fibro let me know thanks molly
I smile through fibro

Regular Member

Date Joined Jan 2009
Total Posts : 55
   Posted 3/25/2009 1:26 PM (GMT -6)   


I couldn't agree with you more! I was a little relieved when I got my diagnosis. I just couldn't believe IT finally had a name. I am like you in that I am young and don't want to have to worry about what my 40's are going to be like. And I, like you, have been through my fair share, but it doesn't change my outlook on things. It only makes us stronger in the end. :-D We can make it through anything!

I read this book when I was first diagnosed: Fibro-myalgia: A Comprehensive Approach Miryam Ehrlich Williamson, David A. Nye

and read up on LOTS and LOTS of websites. I am even making my husband read it now. Lately, I have really been paying attention to my diet and focusing on exercise, and I am feeling the best I have felt in a REALLY long time. I have been gluten free since November and I am finally starting to tell a difference. I am not sure if having a problem is fibro related, but I can tell it is making a difference. I am also happy to say that I am only taking one med for Fibro and it is only to obtain DEEP sleep. That is one of my main problem areas. I have not taken anything for pain in months.

If you have any specific questions with diet or anything else, I can do my best to will a lot of people here. I don't want to give advice if you weren't really asking, but I can share what has helped me.
Hope you find some answers.
24. Diagnosed with Fibro in Aug. 08 and Seasonal Affectiveness Disorder in December 08. Gluten free since Nov. 08.
Surgeries: Compartment Syndrome/Medial Tibial Stress Syndrome Dec. 05; Lap Nissen Fundoplacation Aug 06; Exploratory Lap Feb. 08.
Played college soccer. Going back to school to be a Registered Dietitian.
"I control the disease, it does not control me."

Regular Member

Date Joined Mar 2009
Total Posts : 178
   Posted 3/25/2009 3:45 PM (GMT -6)   
If she has you on the fibro diet so to speak. read "food that helps win the battle against Fibromyalgia" This is the most comprehensive book I have seen that discusses food and how it effects fibro. Also about cutting out all artificial foods. It is one of the books recomended by the National Fibromyalgia Association. My Doctor told me to get this book. It has some really yummy recipes in the back of the book. The is also a cook book for fibromyalgia but I don't have that one yet. Good luck and you are right "it isn't a death sentence." It is just finding new ways to cope and live.
fibromyalgia, bipolar, ptsd, depression, anxiety
cymbalta, abilify, triliptal, lorazapan, lyrica, flexoral, ibuprophine.

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/25/2009 3:54 PM (GMT -6)   

Hey Griffin!!

I just got a book called Alternative Treatments of Fibromyalgia and Chronic Fatigue Syndrome (Insight from Practitioners and Patients) by Mari Skelly and Andrea Helm.  I haven't really gotten into reading much of it yet (just got it a couple of days ago from my massage therapist).  Hope that one helps and you can find it.

I'll keep on eye on this thread too.. I'd like to get more books and information.  I've also gone on to Amazon looking for more books.

Good luck and take care,

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

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