New to internet chating about FM and other related health problems

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peanutt
New Member


Date Joined Mar 2009
Total Posts : 15
   Posted 3/25/2009 2:01 PM (GMT -7)   
Hello,
I am new to talking about FM.  I have never looked for a place to chat with other people that suffer from FM.  It is hard enough to live with and I guess I though talking about FM to other sufferers would make it more difficult.  But I think I can now and I would love some input into my current situation.
 
I was diagnosed with FM 7 years ago but I continued to work until Jan, 2008.  The pain and inability to remember how to do my job made it impossible to continue working. 
 
It is difficult to know when I have something wrong, other than FM, due to the constant pain and fatigue.  In August, 2008, I was diagnosed with a bulging disk, the pain was different and I had this condition for at least 4 to 6 weeks before I was sure somthing else was wrong.  Now I can't walk very much and that was the only exercise I was able to do somewhat
consistantly.
 
My most recent health finding is that I am B12 deficient and for some unknown reason I am unable to take B12 supplements or shots due to some kind of reaction or overdose.  My B12 level is below 200 and that can lead to all kinds of health issues.  My Doctor has never had a patient that could not take B12.  So if you have ever experienced this problem or know of someone that has I would love to hear from you.
 
I also suffer from other FM related conditions - IBS, anxiety, depression, tremeors, memory loss and i am very hyper-sensitive to most medications.
 
My current medications are:  Premarin 0.9, Crestor 5mg, Vitamin E 200 units, Ibuprofen(my stomach hate's that), acid reducers as needed, Miralax, Valium 5mg, flexeril 5mg
 

Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 3/25/2009 8:36 PM (GMT -7)   
Hey Peanut! And welcome to the forum. I think you will like it here, we all are good pals and play really good together smilewinkgrin I don't have any info for you regarding B12, but I did want to make sure you knew that you are in a good place here and someone will surely have experience with your issue and if not, they will help you find a place to learn more. Hope you are feeling well and having a good week. Peace!
"A butterfly is most vulnerable immediately after its metamorphosis."
 
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar 
OTC meds- Benadryl, Claritin, Melatonin, Valerian, B Complex, Multi Vitamin
 
 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/25/2009 9:22 PM (GMT -7)   
Hi Peanutt!!

And welcome to the fibro family! Some people aren't comfortable talking about their fibromyalgia with family and/or friends but at some point we NEED to talk! and be understood. This is that place. The people here truly understand what you are going through. They're not going to push you away or get tired of hearing how you hurt because we do too. We need compassion from someone who just "gets it". Glad you have joined us!

Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 3/25/2009 11:27 PM (GMT -7)   
Hi Peanutt & welcome, I'm happy you decided to check this site out because we are all friends here & have so much in common.  I have no answers for you about the B12, is this an allergy of some sort?  It will be interesting to see if your Doctor can come up with a reason or dx for this.  I sure hope you find an answer soon.  In the meantime, come here & post & get to know us & we can get to know you.  I am sorry you had to quit working, I hated when I had to quit & I just didn't know what to do with myself for awhile.  But I have gotten used to it I guess.  I look forward to getting to know you.  Hugs, Denise  

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


KitKat_down
Regular Member


Date Joined Mar 2009
Total Posts : 55
   Posted 3/26/2009 12:19 AM (GMT -7)   
 
  Helloo Peanuttt , I am also new to this site and i have recieved a wonderfull warming welcome
 which is a delite !! I was in a few other support sites and so far this is the best i have found.
 So i am wishing you all the best wishes and hang in there . I'm sorry I don't know about your
 vitamin problem but I do understand your fibro for sure . Hang in there and may you have a
 wonderfull day and week .   Take care and smile because you can and it helps . :-)
 
                                                                KitKat

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 3/26/2009 2:39 AM (GMT -7)   
The only answer I can think of regrading B 12 is to find foods rich in it and eat lots of those. Maybe in the natural compounds with the right chemistry, and enzymes it won't bother you. Go online, google B 1 and see what foods have the most. Sorry, but that's the best answer I can come up with. B 12 cares for your Central Nervous system. See what you can find. Also check out Fibro 101 at top of list of postings. There is good information there. Welcome.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/26/2009 3:58 AM (GMT -7)   

Hi there Peanutt!!

Hmmmm, I've never heard of the B vitamin problem.  But I do have an idea... do you have a good health food store near by??  Folks that work at health food places usually know a lot about vitamins and absorption, maybe you need to take it in a different form or need another vitamin or mineral to help with a way to absorb it.

I'd like to welcome you to our fibro-family!!  This is an AWESOME place to share with those that care.. and believe me WE DO CARE!!!  Everyone here is so sweet and understanding.  I've learned so much about fibromyalgia from this group.  I've also learned that I'm not crazy or lazy or somekind of weenie.  As a matter of fact I've learned to step back and learn to smell the roses (even though they make me sneeze..lol) and that life with fibro isn't as bad as I orginally thought.

We laugh and cry together and we have eachother for support!! 

Please be sure to check out Fibro 101 - the second thread on the Forum, there's tons of info and coping tools on there.  Keep posting and get to know us, as we will get to know you too.  There's nothing too weird to ask or answer.  There's no judgment here.  Just Friend that are better than family, they care in a non-judgmental way.

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/26/2009 7:49 AM (GMT -7)   
Hi Peanutt and welcome. I tried going it alone for several years without support too and now I'm so happy I found this amazing group of people cause I don't know what I would do without them.
 
I hope they figure out your vit B12 problem. The only thing I can think of is eat foods rich in vit B12.
 
I'm glad you found us.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


.....
Regular Member


Date Joined Mar 2009
Total Posts : 117
   Posted 3/26/2009 9:31 AM (GMT -7)   
Hi Peanutt! I'm new here too. It's a great group. It really helps to talk to other people who understand your situation.

I can relate to your statement about not knowing when something else is wrong. Lord only knows how long I had gastroparesis before we figured it out. I blamed all the pain, bloat and discomfort on fibro, IBS, and just getting older. It took a completely new and different sypmtom (swallowing problems) to get me to the doc.
Fibromyalgia, Gastroparesis, IBS
Endometriosis, Hypothyroidism, Psoriasis, Asthma
(Diabetic spouse)
 


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 3/27/2009 3:57 AM (GMT -7)   
Dear Songbird 20/20: What is Gastopareisis (sp?). i have swallowing problems, i gag, cannot do food while doing anything else, ie walking, talking, i always considered it a side effect from Hypothyroidism, ie. I have a goiter, small but inconvenient.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


.....
Regular Member


Date Joined Mar 2009
Total Posts : 117
   Posted 3/27/2009 9:01 AM (GMT -7)   

tyno3:

Gastroparesis means "paralyzed stomach".  Your stomach is a muscle that is supposed to contract when you eat to grind up the food and push it through to the small intestine, usually within a few hours after a meal.  In Gastroparesis, that does not happen, and the food just sits in the stomach indefinitely.

Typical symptoms include bloated feeling after meals, feeling full after just a few bites of food, upper abdominal pain, nausea, vomiting of undigested food, reflux/heartburn, and eventually weight loss and malnutrition. 

I wish there was a gastroparesis forum on HealingWell.  This fibro forum has been so helpful and I would love to have the same connection with other GP folks.


Fibromyalgia, Gastroparesis, IBS
Endometriosis, Hypothyroidism, Psoriasis, Asthma
(Diabetic spouse)
 


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 3/27/2009 10:27 AM (GMT -7)   
Welcome, I'm new too. Haven't gotten to know anyone yet - but I sure look forward to it. :)
fibromyalgia, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea.


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 3/27/2009 12:57 PM (GMT -7)   
Hey there myjoy, welcome aboard. This forum is akin to a train or plane trip. you can tell your innermost secrets to a perfect stranger, and never have to worry about seeing that person, later.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 3/27/2009 1:46 PM (GMT -7)   
Did your doctor diagnose you with pernicious anemia?? That is a condition whereby you cannot take oral supplements of vitamin B12 but need the injections once a month. Now why can't you tolerate the injections?? You weren't very clear about that either.

I hope your doctor finds some answers for you soon. Wish I had more advice for you.

Gentle hugs and welcome to the forum.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 3/27/2009 1:50 PM (GMT -7)   
Thanks for the welcome!
fibromyalgia, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea.
fluoxetine (prozac), buspar, abilify, trazodone, lorazapam, nexium, nabumetone, hydrocodone, flexeryl, c-pap machine, estrodial patch.


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 3/28/2009 6:38 AM (GMT -7)   

Hi peanutt and Welcome!

OUCH!! I have never had a disc problem, but have had arthritis in my neck since I can remember-

I have been with the group since last June and they have been my saving grace. The fibro hit me very hard and I could not function except to get on the computer, read, and watch a little TV, so it was here I learned having "support" made a huge difference in my life.

Keep us posted on how your doing and your appointments- this is not going to be easy, but you will get through this!  

GamJill

 

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  

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