Hi there Mom of 2!!
I wanted to extend you a big warm welcome to our Fibro Family and let you know we're here for you!!! I'm glad you're reading our posts and hope that you'll check out the 2nd thread on the forum called Fibro 101.. great stuff on there that will help you learn more and gain some coping skills for the fun fest known as Fibro. There's a link on there called the "Spoon Theory" that is really helpful to both fibromites and there loved ones, when it comes to understanding how to deal with energy & pain levels.
WOW... you're a writer!!! I always wanted to grow up to be a writer.. my problem is.. I never grew up!! LOL.. Actually I'm 51. But I do have some interest in getting into the world of journalism. Two of my brothers are writers so I think it runs in the family.
You've found the best place in the world for folks that suffer with fibro. This message board is very active and understanding. I don't know what I would have done over these past few months without this group of wonderful people. We laugh and cry together and we really can relate to each other. Our Moderators are AWESOME. They all really know their stuff and take good care of their members.
I know how you feel about your job.. but as you learn to cope and get your meds going you'll be ok. I was the director of our local chamber of commerce... very high energy job, the hours got to be too much for me and my husband, he really wanted me to leave my job so after a serious flare, he just couldn't stand to see me go through the medical issues and a very non forgiving job. So I'm looking for something part time now.
Again, Welcome.. I hope you enjoy the forum and keep posting!!
Hi Mom of 2, Welcome to a wonderful forum. You have received some very good advice, the people here are caring & knowledgeable. I have leaned on them heavily at times & have gotten to know them well. You will find the same experience here & I hope it helps to make your life just a little bit better.
Always remember, you are not lazy, you have an illness. The guilt you feel is totally self defeating & will just put you into a flare. Learn to pace yourself, be aware of how you are feeling & don't push yourself when your body is saying, Stop!!! If during the week you make it to work & then come home & just lay down for the rest of the evening, pat yourself on the back. Being able to support your 2 children financially is a biggie. Spend time with them by sitting & talking or share dinner & watch TV, have quality time. Share the workload at home on the weekends & dig out that slow cooker for meals. You will find what works for you. Leave the guilt it has no value or use in finding your way with this illness. You didn't ask for it.
I am happy to meet you, come often because the people here will become your FMily, a soft place to fall when you are in pain & a friend to laugh with about those things, we as Fibromites, do. Many gentle hugs, Denise
I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
Hi singlemom -
I also have the "wondering about my future" thing. There is a point where, if I have too much trouble with concentration, memory, word finding, and making mistakes .... well, maybe I'm not "fit for duty". I've been discussing this with both my Lyme doc and my therapist.
I think maybe part of the answer is to have a cognitive exam. Over the last week I've been doing some research to find neuropsychologists in this area. I think I'll have the testing done cause otherwise I'm not sure how I'll know how bad it is - and then what I should be doing about it. But I do think it would help my adjustment and help me to be realistic.
I'm willing to change and adapt if I have to. But there are a lot of financial concerns about what all this means. I've considered starting a separate topic on this for a while. I did ask a question on the Lyme forum cause I knew one of the girls there had an eval done:
My Lyme doc works primarily with chronic fatigue and fibro patients. The week before my clinic was very slow at sending some CMP results to her. She is very supportive and said to email her the clinic phone number and she would ask them. So I sent her an email. I got the card for the clinic and copied the number down carefully to be sure I got it right. I then got a call from my Lyme doc - I had tried to put the clinic number down and instead put my own phone number down. She has seen "the fog" before and tried to make me feel better. Kind of funny and embarrassing at the same time.
Guess you can tell I've been a little preoccupied by all of these concerns.
Hi Singlemomof2 and Welcome-
I have walked in your shoes in many ways. I have raised my boys on my own, but in two different spans- they are 15 yrs a part, it is one of the hardest jobs to do. And working fulltime on top of it -don't feel guilty in the least- your body is different now. Like Sherrine said, your daughters need to help you in order to keep doing what you are doing. I unfortunately cannot work fulltime anymore and am fighting Soc. Sec. Disability. The fibro hit me hard and I am 52, so not sure if that plays a part in it. I know everyone is different on how the fibro affects them.
Sounds like you are feeling a little better and give yourself LOTS of credit- you have made it this far, and you have been through alot!
Nice to meet you and let us know how you are doing-