Hi my name is Diane

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Dieann63
New Member


Date Joined Mar 2009
Total Posts : 13
   Posted 3/29/2009 8:16 AM (GMT -7)   
Hi my name is Diane and I live in North Eastern Pennsylvania. I was diagnosed with Fibro way back in 2002. I guess Im lucky, because I have had it so bad that I was in a wheelchair unable to walk around my house, but right now my mobility is up and I am chair free.((UNless I got to a mall or something that will mean a lot of walking)) I have a lot of pain, and I could sleep all day if I let myself. My symptoms have been at the point where they tell me I have MS, but then no lesions anywhere, so then when I moved to another state, that doctor says No you dont have MS, because you have no lesions... I also at one point was told that they thought I had Myostenious Gravis, because I had trouble swallowing and stuff like that.
Sometimes I feel like I am just nuts! You have this.. No you have that... its like a circle. Currently I just see a pain specialist and my family doctor to treat my Fibro, and at this time it seems to be all good. Ive been down a month and a half right now with colds and flus and virus... Cant seem to shake them once I get them, but I think it is almost over. I have been trapped in my house for about 6 weeks, and look forward to the spring... hoping it will make me feel reborn and healthful. ((My sons girlfriend came over one day 7 weeks ago and said she didnt feel good and she had a fever... and that was how it all started)) She got me and my 8 year old sick, and we have been sick ever since.
So, about me... I am 45 years old, and a mother of a 22 year old and an 8 year old. I am separated from my spouse now since Sept 2006, due to DV. My husband had started stealing my meds and got addicted to them, and that just did not end well. I had to go into a DV shelter, me and my then 6 year old. Being sick so much, I was not able to support myself and stayed a long time because I was dependent on his for shelter and food and all of our daily needs. I had applied for social security, but I did not have any work credits, and had to file for SSI, which took 3 years to finally come through. I finally got it in 2008, it was a long time coming and SSI sucks! SSI is for people who do not have work credits and become disabled. Being a Mommy all my life, I never had to work, just take care of kids. Anyway, I finally got it, and it is better then nothing, but feels like nothing at the same time.
I have looked for support groups here in my local area, but never seem to find any.
My 8 year old suffers from tourettes, OCD, and Depression. Tourettes is really a rotten disease, and has so many facets to it.
SO, I guess somehow Im hoping to find Hope and friends and understanding in this group... And maybe some tips on how to beat this Fibro with a stick! You know, tips on Homeopathic remedies, things that make life easier and happier and more livable.
thanks for listening to me whine... I hope I can do the same for you one day
Thanks
Diane


Diane
Fibromyalgia, Chronic Pain, Chronic Fatigue, Chronic Acute Pancreatitis (From Birth Defects), Disc's Compressed in Neck and here and there all the way down & Herniated Disks, Osteo, Depression, (Wonder Why, IBS and Gerd. ((Im sure theres more but why bother, right!))
Current Med's: Methadone, Percocet, Baclofen, High Dose Vit D, Pancreacarb, Prylosec, Sennacot,
As Needed:Flexeral , Attarax , Tramadol, Lidoderm,Glycolax,
Theres more but who cares!!

Post Edited (Dieann63) : 5/5/2009 9:24:13 PM (GMT-6)


.....
Regular Member


Date Joined Mar 2009
Total Posts : 117
   Posted 3/29/2009 8:40 AM (GMT -7)   
Hi Diane! Welcome! May I ask where in Northeast PA??? I am from there. I live in California now, but my family is there in Northumberland County. :-)
SONG
Fibromyalgia, Gastroparesis, IBS
Endometriosis, Hypothyroidism, Psoriasis, Asthma
(Diabetic spouse)
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 3/29/2009 8:57 AM (GMT -7)   
Hi, Diane, and welcome!  You have been through the wringer, haven't you?  But, you have come to a good place.  We have wonderful members that love to help one another and, as a bonus, we really do care about each other.
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There is a lot of info about fibromyalgia and some helpful things too...like stretching exercises that you can do sitting down that help keep you flexable and also information about malic acid/magnesium supplements.
 
I take malic acid/magnesium supplements that help with pain and fatigue.  The Fibro 101 link explains all about them and how they work in the body.  They don't work for everyone but they have helped many on this forum...including me.
 
Be sure to have your vitamin D levels checked next time you see a doctor.  Many with fibro are deficient in vitamin D and that can cause pain and fatigue, too.  I wrote a thread about it this past week, so it might be on the second or third page on the forum.  
 
Many members have Bed Buddies.  You can get these at Walgreen's and other places.  Or, you can make your own.  Take a tube sock, fill it 2/3's full of raw rice, and tie a knot on the end.  You can put this in the microwave and it gives off moist heat...the best heat.  Of course hot showers and baths are wonderful for those achy muscles, too.
 
You do need to keep moving.  If you sit or lay too much, you will be stiff as a board.  Stretching really helps get you started.  I walk as my main form of exercise.  I also swim.  Walking is great for those muscles and help keep you strong and also helps with osteoporosis, too.  When I started to walk I couldn't go very far.  I just built up the length slowly and now I'm walking between a mile and two miles a day.  I feel much better since I started doing this and malls are not the horror they used to be.
 
I'm so glad you found us and joined in.  You now have a support "family" to come to to ask question, give support, or just vent.  Be sure to read back posts and ask questions.  That's why we are here.  I hope to hear more from  you soon.
 
Sherrine   
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 3/29/2009 9:52 AM (GMT -7)   
Hi Diane,

I too would like to welcome you to the fibromyalgia forum. You truly have come to a good place. Everybody here is so caring.

I too take malic/mag supplements and vitamin D. It really does help with pain and fatigue. The vitamin D helps in an all over way. Makes you feel good. I hope that you try these methods.

You sure do have your plate full. But we are here to help you through. Just keep posting and we will be here for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/29/2009 10:03 AM (GMT -7)   

Hi Diane!!!

Welcome to the best Fibro Forum in the universe!!  I think you'll find lots of folks here that will be supportive and helpful to you.  I know I'm very happy with all of the friends I've made here.  I've learned a lot here.  Fibro 101 has tons of info (as Sherrine mentioned)  The moderators here are fantastic and very helpful.

I'm orginally from NJ.. I've lived in the Flemington area, in the past.. so I know NE PA pretty well.  Spent a lot of time in the Poconos.  Beautiful area!!!

I saw that you were a victim of DV.. I served on the Board of Directors at our local DV organization in my area.  I am a survivor too, that's why I got involved in volunteering for DV.  I'm glad you got out of a bad situation and moved on with your life.  I'm also glad you found a shelter.  I've been working with our community for years to get one here.  I live in a pretty rural community in NE Indiana.  It's been a real challenge to get a shelter.. but if all goes well, we should have one up and running soon.

Sorry you've been zonked with the bug that seems to be going around.  My husband got it and it took forever to get over.. as soon as he started feeling better it would come back worse than it was to begin with.

Well, just wanted to say hi and welcome you to the family.

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/29/2009 10:09 AM (GMT -7)   
Hi Diane and welcome to our family. You will love this place we are a family that cares so much about each other and we like to have fun too. I would be going bonkers in the house for 6 wks so I hope the weather gets better up there soon.
 
I can't take the malic acid but I did find out my D is very low so I'm trying to get that up. Many have problems with B12 too but I haven't so far. This forum is like having the advice of many doctors some good and some bad.
 
Read, ask questions and vent when you need to and we will be here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Dieann63
New Member


Date Joined Mar 2009
Total Posts : 13
   Posted 3/29/2009 6:03 PM (GMT -7)   
Hi, I live in Saylorsburg, which is real close to Stroudsburg and or Easton/ Allentown (about 1/2 away from Easton)
My Doc has me on a round of 50 thousand units of D right now, once a week. I usually feel a lot better when I am on these rounds but haven taken them since I got sick... didnt want to waste the energy on being in bed sick. My D is always low for some reason. I see Dr. Burke in Brodheadsville and he is pretty knowledgable and open to new things as well. I used to be on hmmmm its a long white caplet, think it begins with P. Helps keep you awake... Ohhh Provigal, My doc wants to see if the High D helps my energy before putting me back on Provigal.
Thanks for all your Hellos!
I have to take some time to read up ... Hope all is well
Diane
Diane
Fibromyalgia, Chronic Pain, Chronic Fatigue, Chronic Acute Pancreatitis (From Birth Defects), Disc's Compressed in Neck and here and there all the way down & Herniated Disks, Osteo, Depression, (Wonder Why, IBS and Gerd. ((Im sure theres more but why bother, right!))
Current Med's: Methadone, Percocet, Baclofen, High Dose Vit D, Pancreacarb, Prylosec, Sennacot,
As Needed:Flexeral , Attarax , Tramadol, Lidoderm,Glycolax,
Theres more but who cares!!

Post Edited (Dieann63) : 3/29/2009 7:17:47 PM (GMT-6)


KitKat_down
Regular Member


Date Joined Mar 2009
Total Posts : 55
   Posted 3/29/2009 6:29 PM (GMT -7)   
 Hello Diane , wow you are a mess , so sorry to hear about all what you're going
 through. I see your on methadone,may i ask how long you been on it ? I was on
that a few years ago and i think it make you , whats the word, " wackier " ?
 It made me fall asleep while i was in a talkiing to someone and i was wold they
just shook their head and left. I do hope that you are alright on them .
    Take care and Huggz , get over that virus soon //
  Im 49 single , divorced twice, I have a male healthy roomate .
        --------               ---------             -----------
  Fibromyalgia, Graves , Cronic fatigue , High anxiety , Deep depression , Fibrocystic breasts , Chronic pelvic and abdominal adhiesions , Neuropathy , P.A.Momility , Degeneritive defuse vertabrae , Osteopenia , Muscle weakness , " defect on the right side of the cerebella hemisphere ". had gang green on gall bladder , kidney stones.. Total hysterectomy.multiple sugeries.
Hep-C is dormant not active since interferion.
 
--Robaxin , Valium , Lyrica , Tegratol , Norco 10/325 ,Melexicam,Elavil, Fentanyl 50 MCG @ 48 hours ,synthriod,premerin , (zolpidem when needed)
  Super B- Complex , vitamin D 1000 i.u , Omega 3
 
 
    Peace , Love , Happiness , Enjoy Life,: as much as you can: ,, Smile , Laugh.. Take care , Huggggzzzzzzzz
 
                                    Kat ,   ( kitkat_420@yahoo.com )


hazelbird
Regular Member


Date Joined Mar 2009
Total Posts : 20
   Posted 3/29/2009 7:33 PM (GMT -7)   
songbird2020 said...
Hi Diane! Welcome! May I ask where in Northeast PA??? I am from there. I live in California now, but my family is there in Northumberland County. :-)

Where in Northumberland County? I currently reside there!

.....
Regular Member


Date Joined Mar 2009
Total Posts : 117
   Posted 3/29/2009 9:17 PM (GMT -7)   
shocked  Hazelbird: Small word, huh?  I am from Shamokin and my hubby from Sunbury.  I will be there in two weeks to visit my Dad! So COOL to run into a homey in the forum!!!
 
yeah  Diane: I lived in Matamoras for a while, right up hwy 209 from Stroudsburg!  Always loved to visit Bushkill Falls.  Probably would never make it up all those stairs now but it sure is a beautiful place.  Norry County is a bit further west on I-80, about halfway between Harrisburg and Scranton.  smilewinkgrin
SONG
Fibromyalgia, Gastroparesis, IBS
Endometriosis, Hypothyroidism, Psoriasis, Asthma
(Diabetic spouse)
 


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 3/30/2009 12:01 AM (GMT -7)   
Diane, welcome to the forum, as you can see there are wonderful people here & you will find all the friends & FMily you can handle.  LOL  I hope you son is doing okay, I have heard Tourettes is a really hard illness.  I have also heard they are making some progress in research so hopefully he will see some relief soon.  Come here & vent, cry & whine all you want.  We also, love to laugh, as you will find out & we get to know each other through the Koffee Klatch.  Nice to meet you & many soft hugs, Denise 

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


hazelbird
Regular Member


Date Joined Mar 2009
Total Posts : 20
   Posted 3/30/2009 5:58 AM (GMT -7)   
songbird2020 said...
shocked  Hazelbird: Small word, huh?  I am from Shamokin and my hubby from Sunbury.  I will be there in two weeks to visit my Dad! So COOL to run into a homey in the forum!!!
 
yeah  Diane: I lived in Matamoras for a while, right up hwy 209 from Stroudsburg!  Always loved to visit Bushkill Falls.  Probably would never make it up all those stairs now but it sure is a beautiful place.  Norry County is a bit further west on I-80, about halfway between Harrisburg and Scranton.  smilewinkgrin

 songbird2020...that is just too weird! I live in Shamokin and work in Sunbury! And guess what...my sister lives in California. (San Diego...not sure where you are). That is so funny. Hello to another coal region girl!!
 
Sorry Diane to highjack your post...I'm new here and wasn't sure how else to respond. :)

Dieann63
New Member


Date Joined Mar 2009
Total Posts : 13
   Posted 5/1/2009 10:46 PM (GMT -7)   
Hi everyone, I just wanted to ask a question about Iridology? Has anyone ever been to one, and if so did it help? Not been feeling so well, and had a lot of pain as usual. Pain seems to be one of my biggest problems, and I take so much meds for pain so I just dont get it.
So, if anyones had any dealings with iridology please let me know. Im not sure if im spelling it right, it is the art of reading your eyes to see whats wrong with you and what you can do to help it.

take care
Diane

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 5/2/2009 5:34 AM (GMT -7)   

Welcome Dieanne63: Well, you have certainly come to the right place. Lot's of love and support and gentle huggs, here. I have been battling Fibro since about 1990. At first, my Thyroid went plum crazy, burned itself up, left a goiter, so swallowing ain't so fun either. I depend on liquids, alot. Also, ensure and other meal replacement products. As for the pain, pain relievers only go so far, then after a while, they don't work so well. I cannot remember a "pain free day"for years. Pain meds usually take the edge off but just leave me feeling more tired and anxious cause I feel I have soooooo much to do, and no strength to do it.

The DV sitch. Well, been there, done that, burned the shirt. My Boyfriend of three years between ages 18 and 21, was a batterer. I always found some excuse for it untill one night he had me on the floor with his hands around my neck. It was like 11PM. It was winter. All I had on was my nighty, bare feet, he let go for a second and I bolted out into the snow, It was January. The closest place with any lights on was a store about five houses away. I went in there. they got me a coat, some slippers, and called me a taxi, I had no money, cause I had to leave everything behind. They said the Taxi drand she is a iver was a friend and would take me wherever i could go. They let me use a phone to call an aunt, who welcomed me. I stayed about four days there, he would never look there for me, I don't think he even knew where she lived. Then I moved in with my sister. She turned out to be more abusive than he, but verbally and emotionally. Eventually, some co-workers found me a very reasonable apartment. about a month later he showed up. He wanted to reconcile! I think he got my address from some co-worker who didn't know the story. Fortunately, I had friends in two apartments, same floor, who helped him on his way. Never again. Fortunately, I didn't have children. I know that would have made things so much harder. I feel for you.

The lesions in the brain they speak of with regards to MS; do not appear until some time has passed with the disease. My mother has MS . She was a doctor, so she knows. Get another MRI after some time has passed. SS will do more for you if you have MS. Plus the MS society will help. They are powerful lobbyists. Where are the Fibro lobbyists?, Oh teah, Fibro doesn't exist. Silly me. Hope your life turns around for the better. I'll tell you, if you wern't a believer before Fibro, you soon will be. It happened to me, made a believer of me. turn


Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Dieann63
New Member


Date Joined Mar 2009
Total Posts : 13
   Posted 5/3/2009 3:38 PM (GMT -7)   
On the MS thing, yes when I was in Atlanta and diagnosed with MS, I had the society behind me and so much more help. Now here in PA I have nothing because this doc believes it is just a really bad case of Fibro. Either way it sucks and I have so much pain anymore that at times I feel a bit MAD! *Crazy!  I take the Methadone twice a day, I used to take it four times aday but wanted to cut back because it makes me sweat like crazy at four a day.  Now Im hurting pretty bad and I also get some kind of block shots in my spine, which I think helps, buy it worries me getting shots every couple of months in my spine. 
So, Im gonna try so holistic stuff and see if I can get some relief.  I take the Methadone and Percocet so I cant understand how I can still be hurting so much.  What would I do if I got cancer and got worse pain or Can it be worse?  Well what would I do if I needed even more pain relief and this crap aint working?  Sheessshh
My son is 8 and he is also suffering with tons of pain, which they say could be growing pains, but it has been going on for two years now and  last year they did tests and found nothing but a blood clotting disorder.  He goes in this month for more tests to see why he is in so much pain.  I think it has gotten worse these past few months, and I feel bad for him being in so much pain all the time.  It depresses him.   Well... I will let you all know how the Iris thing goes.
Take Care
Diane
Diane
Fibromyalgia, Chronic Pain, Chronic Fatigue, Chronic Acute Pancreatitis (From Birth Defects), Disc's Compressed in Neck and here and there all the way down & Herniated Disks, Osteo, Depression, (Wonder Why, IBS and Gerd. ((Im sure theres more but why bother, right!))
Current Med's: Methadone, Percocet, Baclofen, High Dose Vit D, Pancreacarb, Prylosec, Sennacot,
As Needed:Flexeral , Attarax , Tramadol, Lidoderm,Glycolax,
Theres more but who cares!!


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 5/4/2009 6:08 AM (GMT -7)   

Hi Diane and Welcome-

Yep, your plate is full. It is not easy being on your own and then to have a child with Tourettes, but you are doing it!! I have been battling Soc. Sec. Disability for a year now and am feeling beat down- so I can't imagine what you went through after three years!

The group is wonderful here and having their support makes a world of difference- glad you found us, and it was nice to meet you!

Jill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 5/4/2009 7:57 AM (GMT -7)   
Hi Diane.  You've gotten some great advice so far, and I don't really have much to add, but I did want to welcome you.  This is a great place full of caring people, and we're glad you've joined us.  :-)
 
Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


Dieann63
New Member


Date Joined Mar 2009
Total Posts : 13
   Posted 5/5/2009 8:21 PM (GMT -7)   
Jill.. SS wants you to give up so they dont have to pay you. Just hang in there. I took me I think three years and had to appeal and go to court but it has been worth it. They just figure you will give up and try to work, I had actually had to go to work and did not get any retro because of the little bit of work I did. SUcked not to get the retro but it is good to have an income coming in.
Hang in there! Dont let the man win! <--- sounds like Im a felon.
Diane
Fibromyalgia, Chronic Pain, Chronic Fatigue, Chronic Acute Pancreatitis (From Birth Defects), Disc's Compressed in Neck and here and there all the way down & Herniated Disks, Osteo, Depression, (Wonder Why, IBS and Gerd. ((Im sure theres more but why bother, right!))
Current Med's: Methadone, Percocet, Baclofen, High Dose Vit D, Pancreacarb, Prylosec, Sennacot,
As Needed:Flexeral , Attarax , Tramadol, Lidoderm,Glycolax,
Theres more but who cares!!

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 11:16 PM (GMT -7)
There are a total of 2,732,414 posts in 301,017 threads.
View Active Threads


Who's Online
This forum has 151181 registered members. Please welcome our newest member, carol9.
256 Guest(s), 5 Registered Member(s) are currently online.  Details
Mews2much, desert bound, Girlie, ggfgfgfdgfgdd98, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer