New and just diagnosed

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Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 3/31/2009 3:47 AM (GMT -7)   
Hi, everyone, I'm so happy to have found this forum. I am 40, female, and just diagnosed last week. After lurking here for a couple of months, and reading about others' experiences in diagnosis I feel really fortunate to have only been at this 3 months. I admire those who soldier on for months, years. I have an excellent GP whom I've been going to for 10 years, so we have an excellent relationship, He knows me sick and healthy; he is also very interested in FM and is working together with the rheumatologist. I am considering treatment options and have an appointment this week to discuss them. The rheumatologist is so busy (we have an extreme shortage in Alaska where I live) that I'm going to have my GP as my primary FM doc as well. Because of this forum I was able to organize my symptoms for over two months in a calendar, which I never thought to do, to document the intense progression of symptoms. I really believe my quick diagnosis is due to the material available on this forum that helped me advocate for myself.
 
I'm incredibly addled today, and discovered "fibrofog," the great term that is new to me. So apologies if I sound a little rambly!
 
I have another family member who has FM, and it took her years and years to get diagnosed. She believes her FM was triggered by a case of fifth disease as an adult. I think mine may have been triggered by either a case of Coxsackie virus (similar to fifth's), or a car accident that gave me bad whiplash 16 months ago. After some fascinating consideration, I also think FM runs in my family. I can think of relatives who have had my symptoms before it was a known condition. I have pain points in my knees, ankles, feet, neck, shoulders, right collarbone, right hip, ankles, feet, outer elbows and lower back. (My exam for trigger points left me feeling absolutely nauseous for a whole day!) It's a lot worse in bed, and I toss and turn quite a bit in the night to start my day by waking fatigued. I have hand and wrist pain as well, and my fingers on one hand especially are swollen and seem frozen. I'm taking 50mg of nortryptaline at night, and extra strength Tylenol for pain; I hope to find the right treatment for me soon. I also am extremely sensitive to light, the glare is painful.
 
My fatigue has been intense and what really prompted me to think something was really wrong instead of just hard work. My muscles, especially back and arms, prickle and burn with spreading, sometimes shooting pain. I have had days where I needed to stay home from work and just cry in bed because every joint was painful. I've always had sulfite-triggered migraines, but these headaches are different, and leave me feeling dopey afterwards like a migraine. I was starting to feel kind of crazy from a combination fatigue and pain, not knowing what was going on. Depression  I have had for years , but I could tell even the depression felt a little different - that it resulted from pain and feeling so alone and isolated. In my family I have the reputation as the lazy one (I'm the youngest so I am always picked on by my four siblings!), so in the weeks before my diagnosis it felt like they did not believe me or felt this was part of my 'laziness.' It really helps knowing how common this is, so I'm grateful this forum is here. I've never felt the  need to be a 'joiner' or share problems in public but this condition has me floored, so I am happy to reach out to others who feel the same way. Looking forward to getting to know this community.
 
In the process of discovery I am amazed at my animals - I have four, two dogs and two cats. They know exactly when I feel bad, and have started treating me differently, gently, when I do. They seem to know which joints hurt as if they can see the pain. I've read a bunch of the threads but can't remember if anyone else has sensitive animals?
 
Annie

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 3/31/2009 4:13 AM (GMT -7)   

Hi Annie!!!

Let me be the first to welcome you to the family!!!!  This is a wonderful place for those effected by a horrible disease.  We really do care about each other and its a great place to for learning and getting support.  I've been hanging around since Jan and I love everyone I've met here.  I felt exactly the way you do about finding a community that cares.

Most everyone on the forum has pets.. I have 2 dogs and 2 birds.  My dogs always seem to know when I'm feeling a little down.  But my parrot .. well not so much, he can be cranky sometimes.  So we're big animal lovers.

Alaska huh??  Wow!!! I've always wanted to go there!!!  I bet its beautiful!!

Have you checked out Fibro 101?  There's lots of links on there to help you deal with family members that "don't get it"  look up, A Letter to Normals and the Spoon Theory.

I'm so glad you found us.. be sure to get involved in our morning Koffee Klatches.. they're designed to help us get to know each other and the topics are fun.  Our moderators are AWESOME!!!  We love them to peices!!!  Keep posting, learning and sharing.  We're here and we care!!

Gentle hugs,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 3/31/2009 6:28 AM (GMT -7)   
Hi Annie and welcome to the family. I have a relative that lives in Fairbanks. Really don't think I could live up there. Does the dark winters get to you???
 
I have been going to my GP for about 15 yrs so I do believe when they know you that long and have seen you healthy and happy they take you serious when you go dragging to them with horrible fatigue and pain. I did go through all the testing cause mine at the time was more fatigue and it took a full blown flare before it all clicked into place for my doc.
 
I'm glad the forum helped you get a dx. I have learned so much about fibro on here. You figure we all have one or two docs and we are getting the feedback from all those docs some good and some bad. Plus we have people on here with medical backgrounds themselves that keep up to date on all the research going on. We all probably know more about fibro than most docs cause we live it everyday.
 
My hands are my biggest problem right now, feel like they have been smashed between two bricks. I use lidoderm patches on them. They are 4x6 patches with lidoderm on them and you stick them on the skin and it helps the pain as long as it is close to the surface, haven't had much luck using them for deep pain. I cut them into and use half on each hand, it's 12 hrs on and 12 hrs off. You need an rx so you might want to consider that for your hands.
 
Can't live without our pets. I have a 7 mo old bichon that can be trying at times at this age but I wouldn't trade her. I'm looking for a little sister for her. She makes me get up and go even when I don't think I have the energy to move.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 3/31/2009 2:18 PM (GMT -7)   
Hi, Annie, and welcome!  Yes, you have come to a good place.  We have wonderful members that love helping each other and, as a bonus, we really do care about each other, too.
 
I think there could be a hereditary factor also.  I have a first cousin that has fibro, too.  Neither of us had an illness, that we knew of, that caused this.  I was hit with the pain 22 years ago while I was watching television!  Go figure!
 
I see a board certified Internist for my fibro.  He totally understands the illness...as much as any doctor does...and I'm very happy with him, too.  It's wonderful that you have a great relationship with your doctor and he does believe in fibro.  You can't do better than that!
 
I hope you had a chance to read the Fibro 101 thread...the second thread on the forum.  If not, it is chock full of good info about fibromyalgia.
 
I have a dog and 2 cats.  My dog knows when I'm having a bad day.  She will carefully climb in my lap and give me gentle kisses on the cheek.  I adore her.  I love the cats but they think primarily about themselves!  smilewinkgrin
 
I'm so glad that you found us and finally joined in.  Read back posts and ask questions.  We will jump in and try to help you.  You can have a full and enjoyable life with fibro.  I know I have!  Hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 4/1/2009 1:20 PM (GMT -7)   
Hi all, thanks so much for the warm welcome. Yes, the short daylight in winter really gets to me up here, but I love the opposite in summer. I would love to move to a warm climate though.

I think the forum is really well organized so beginners can read the newbie info at their leisure and feel comfortable and safe when posting. I just got off the phone with my doctor and we are going to start my meds tonight! Flexeril and gabapentin, I believe was the drug, at night while we wait for the next rheumatologist appt. I finally am starting to feel like I'm climbing out of the basement into the daylight.

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 4/1/2009 4:58 PM (GMT -7)   
Hi Annie,

Welcome to the family!! I, too, think that there's a family connection, since my sister, mother, and 3 of my aunts all have fibro, too.

Good luck with your meds-I do hope that they will help you some. Also, please come and post anytime you need to. There are many wonderful people here ready to help you in any way they can!

Welcome again!

{{{{warm hugs}}}}
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

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