Lots of New Dx's

Does it seem like Fibromyalgia is becoming more recognised/
3
Definitely - 25.0%
8
Somewhat - 66.7%
0
No change - 0.0%
0
Fewer Dx's - 0.0%
1
Don't Know - 8.3%
0
Don't Care - 0.0%

 
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tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 3/31/2009 9:38 AM (GMT -7)   
 Is it just me, or do we seem to have quite a few newly dx'd members. Is it because Lyrica has put Fibro on the map. It's now ok for Docs to say, yup, likely Fibromyalgia, here's this brand new medicine that'll make you superwoman. Obviously, because I just moved a Selkirk chimney singlehandedly, and wrestled a seething rottweiler, into submission, Not.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


EmberKitty
Regular Member


Date Joined Mar 2009
Total Posts : 65
   Posted 3/31/2009 11:32 AM (GMT -7)   
Sad* as it may be I think the ad campaign for Lyrica may have had an impact on bringing fibromyalgia out in the open. People who have these symptoms and have been told that it is something else or all in thier heads now have a name they can throw at their doctors and ask, "is this what I have?".

There are still many docs out there who either don't know enough about fibromyalgia to dx it or still believe it doesn't exist. I think people who are in pain are getting fed up and looking for new doctors that will listen and help them find out what is wrong. I knwo that's what I had to do. Even though fibromylagia had been mentioned to me years ago I couldn't find a doc willing to pursue it with me. Now I have an excellent doc who listens and believes me.
 
*Sad only in that it took a drug coming out to treat an illness before people would recognize it existed.

moonmatrix
Regular Member


Date Joined Mar 2009
Total Posts : 178
   Posted 3/31/2009 3:11 PM (GMT -7)   
Now it has the pharmaceutical companies backing and in that and money as usual it is more noticed. Money talks and docs walk the walk. I feel that in my area it may be over diagnosed. I told a friend that this is what I have, his response was " well I know five other people who say they have that". I haven't really talked to him since because I was so hurt. Sigh I hope that people are getting a true diagnoses and this isn't becoming the "wastebasket syndrome" it was once claimed as.
fibromyalgia, bipolar, ptsd, depression, anxiety
cymbalta, abilify, triliptal, lorazapan, lyrica, flexoral, ibuprophine.


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 3/31/2009 4:22 PM (GMT -7)   
My sentiments exactly.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/1/2009 3:40 AM (GMT -7)   

Good topic Tyno!!

I think its getting more recognized, but I still think there's lots of stigma and confusion that goes with it.  I agree with Moon, too.  I hope/think it doesn't become a wastepaper basket illness.

I find it interesting that some doctors... like mine.. didn't believe in it before but now suddenly do.  My doctor became certified in accupunture about a year ago and his opinion about Fibro changed right about the same time.  I don't know if he became more aware of it when he started training for the accupunture or if he thinks he can make more money with fibro patients and accupunture.  Either way, he would LOVE it if I started getting accupunture.. but its REALLY expensive and my insurance doesn't cover it.

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 4/1/2009 4:51 AM (GMT -7)   
My family and friends have accepted my illness as reality. They see how slowly I move. Although they often give me advise that makes no sense, in trying to help me. *slap my head*

It took me 6 months for a diagnosis. I had every test in the book. My rheumy is wonderful and understands me.

I find that many more people do know someone with fibro. One time I was asked if that's the illness where you think you are in pain but you aren't! argh!
fibromyalgia, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea.
fluoxetine (prozac), buspar, abilify, trazodone, lorazapam, nexium, nabumetone, hydrocodone, flexeryl, c-pap machine, estrodial patch.

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