Caffeine Free??????

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Regular Member

Date Joined Mar 2009
Total Posts : 117
   Posted 3/31/2009 4:54 PM (GMT -6)   
Is it possible for a fibromite to go caffeine-free???   confused  
My doc said I should quit  skull   coffee and soda due to my stomach issues.
Can I survive it??  Will the fog ever clear without my morning coffee???  shakehead
Has anybody out there actually been successful with this?
Fibromyalgia, Gastroparesis, IBS
Endometriosis, Hypothyroidism, Psoriasis, Asthma, Cholecystectomy
(Diabetic spouse)

Regular Member

Date Joined Mar 2009
Total Posts : 178
   Posted 3/31/2009 5:02 PM (GMT -6)   
I have cut out everything but the caffeine. I am sure it may be possible but I don't see a way. Good luck and let us know if you mannage to do this and how you have.
fibromyalgia, bipolar, ptsd, depression, anxiety
cymbalta, abilify, triliptal, lorazapan, lyrica, flexoral, ibuprophine.

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Date Joined Nov 2008
Total Posts : 2854
   Posted 3/31/2009 5:30 PM (GMT -6)   

I cut out caffeine completely about two weeks ago.  I got a screaming headache that lasted until I drank a real coke.  I don't like headaches.  I like Coke.  I'm not going to try it again!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Regular Member

Date Joined Dec 2008
Total Posts : 478
   Posted 3/31/2009 5:46 PM (GMT -6)   
Danibm and Donna, why did you try to cut down or out the caffeine?

solar powered
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Date Joined Nov 2007
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   Posted 3/31/2009 6:16 PM (GMT -6)   
It is possible. I was drinking way too much diet soda with caffeine and for some reason which escapes me at the moment decided to stop cold turkey. I also got the terrible headache which lasted a day or two and remember thinking that the caffeine must have been what kept my heart beating. All that wore off after about a week and life went on. I really don't think it made any difference for me in my pain levels if that was what your dr was thinking but it might help you. I am sad to say that the devil caffeine is back in my life now. I like the taste of the caffeinated sodas too much but do try to drink no caffeine later in the day. Good luck if you decide to quit. It probably would be a good idea considering your tummy issues and it might help your fibro pain too. Lisa
Life is the ultimate contact sport. Train accordingly and play hard.

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Date Joined Nov 2008
Total Posts : 2854
   Posted 3/31/2009 6:30 PM (GMT -6)   

Patsie...I have Restless Leg Syndrome and Meniere's disease and caffeine is supposed to make both of these conditions worse.  I have been drinking decaffeinated tea but still drink one coke a day.


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 3/31/2009 6:43 PM (GMT -6)   
I am not quitting caffeine. For me it decreases my pain during and after exercise.

In fact, there are several studies which tout how coffee can relieve people of some of their pain.

I usually drink one cup per day so that is not much.


Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 4/1/2009 1:21 AM (GMT -6)   
I quit caffeine 15 ago because I get a lot of muscle spasms. It was rough for the first few weeks. Now when I have caffeine, I get all trembly and I can't sleep.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 4/1/2009 8:34 AM (GMT -6)   
I was caffeine free before fibro. I do stop caffeine about 5:00 everyday so it doesn't interfere with my sleeping. I need to give it up cause it doesn't help the anxiety any but.........
luv and hugs
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Regular Member

Date Joined Jun 2008
Total Posts : 289
   Posted 4/1/2009 10:06 AM (GMT -6)   
I have gone caffiene free.. but had to wein myself off it... I find that if i have any now .. i get the "shakes" It was hard but its doable.... for me i am not a coffee drinker.. so it doesn't bother me that much but it was hard to get off tea.. and go to herbal.. i found i was using more sugar.. but eventually i got over it...

I know my parents went caffiene free with coffee they did it over 6 months... first started by using regular and half the caff.. then when they were used to that amount when to half the caff, then half the caff and decaff the decaff for their coffee..

its very bad to stop cold turkey.

I do have some every once and a while if i am out but try to keep it out of the house for me... the boyfriend still has his for now LOL >>>>
Diagnosed - fibromyalgia 2001
Meds  amitryptilene 20mg/day

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 4/1/2009 10:14 AM (GMT -6)   
I've never been big on caffeine-it's always made me feel pretty jittery and anxious. I did used to like a cup of coffee or black tea now and then, but then even small amounts started to upset my stomach, so I haven't had anything with caffeine in it in probably 2, maybe 3, years. There are days when I wish I could drink coffee because I'm so exhausted, but it's usually just a fleeting thought.
love and hugs

fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

New Member

Date Joined Apr 2009
Total Posts : 1
   Posted 4/1/2009 5:55 PM (GMT -6)   
I found it nearly impossible to quit caffiene entirely.  I just couldnt get away from having my coffee every morning.  Its one thing to give up a soda, but my hot, comforting coffee!? no way.  My friend told me about a coffee alternative called Teeccino, its completely caffeine free, but tastes just like coffee and you can make it just like coffee.  It is my life saver. check it out, it is really helpful if you are wanting to give up caffeine entirely but dont want to get rid of your coffee habit. 

Regular Member

Date Joined Mar 2006
Total Posts : 124
   Posted 4/1/2009 7:37 PM (GMT -6)   
I had to give it up because it didn't help my anxiety either. Every day after my 2 cups of coffee I would start feeling anxious and get cold sweats. My pain would get worse too. Since I am caffiene free I rarely have anxiety unless I am very stressed. I don't miss caffeine too much anymore....I have gotten use to it....:)
Take Care,
"Grace by which I stand."
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus

Regular Member

Date Joined Jan 2009
Total Posts : 43
   Posted 4/1/2009 9:51 PM (GMT -6)   

I have gone caffeine free, as a book about Fibro told me to.  I have noticed that I am not as keyed up or jittery, but I went probably from almost a pot a day to zero, very hard.  Now I am used to it.  I do miss it though.


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