Just Diagnosed

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skylark61
Regular Member


Date Joined Apr 2009
Total Posts : 34
   Posted 4/1/2009 11:14 AM (GMT -7)   
I was just recently diagnosed with fibro thanks to my daughter who has been diagnosed for 3 years now.  She listened to me complain of all the pain I'm having and she asked me to ask my doctor if this could be what I have. 
 
I have had every test known to man, from blood work, and MRI's of my neck, thoracic and lumbar areas.  My pain was first on the inside of both knees, my right side by my ribcage, my upper back and my neck and the pain extends right up to the base of my scull and my arms.  Now it just seems like it is everywhere.
 
My Internist at Kaiser Permanente has prescibed Prozac for me and I start physical therapy tomorrow.  Is anyone else using this type of treatment?  I just want to know how successful this could be.  I asked her why she isn't going to try Cymbalta and she told me... I am very sensitive to meds right now (which is true) and she just didn't want to try it right now.   I feel so bad and very discouraged.  I have been suffering for over a year now.  mad

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 4/1/2009 12:27 PM (GMT -7)   
Hi, Skylark, and welcome!  Yes, the treatment sounds about right.  Prozac will help boost the serotonin levels in the brain because it is an SSRI.  Cymbalta is also an SSRI, I believe.  If I were going to take an SSRI I would choose Prozac because it's been around for about 35 years and has been used successfully for several different problems.  I like to stick to generic medications because they not only have been tried and true, but they are also less expensive.
 
We do have members that are getting physical therapy, too.  With fibro, it is very important to keep moving.  If you sit or lay too long you will be stiff as a board.  The physical therapy will help loosen those tight muscles so you can move better.  Light stretching and exercises are good for fibro and do help with the pain.  I walk as my primary exercise and I also swim.  
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia, like a link to good stretching exercises that you can do sitting down.  
 
Many use a Bed Buddy to help with the pain.  You can find them at Walgreen's and other places.  Or, you can make your own.  Take a tube sock, fill it 2/3's full of raw rice, and tie a knot at the end.  This can be put in the microwave and it gives off moist heat due to the moisture in the rice!
 
Don't get discouraged.  Attitude is half the battle with fibro.  Don't let it control you.  I have had fibromyalgia for 22 years.  When I was diagnosed, it was called fibrositis.  I have learned how to work around the problems it causes and have had a full and enjoyable life with this illness.  I know I sure could have a lot worse things than this, even though this is really miserable at times.
 
You have come to a good place.  We have wonderful members that love to help one another and, as a bonus, we really do care about each other, too!  Read Fibro 101, back posts, and ask questions.  We are here to help you.  I'm so glad that you found us and joined in!  I hope to hear more from  you soon.
 
Sherrine  
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


skylark61
Regular Member


Date Joined Apr 2009
Total Posts : 34
   Posted 4/1/2009 3:34 PM (GMT -7)   

Thank you so much Sherrine for taking the time to reply. 

You know after having the MRIs prior to this diagnosis I did discover that I have scoliosis, degenerative disc disease, osteophytes, and a herniated disc.  I had a bone density test done and the bones are losing it's density but my doctor wants me to wait 2 more years and have another scan done. 

All of this pain came on suddenly for me.  It started as tightness in my chest... went to the ER.  Thought I was having a heart attack.  Went to the cardiologist and had a stress test (which was fine), echocardigram... a mitral valve prolapse was seen.  Then I developed tingling in my back an developed into pain as the day progressed.... now it's in my neck, arms, knees and everywhere.  My doctor first diagnosed me with severe anxiety because I developed heart palpatations.  I went to see a behavioral specialist, I went to a pain management doctor who injected me with botox in the muscles of my back.... a rheumatologist who injected the inside of my knees with cortisone... said I had bursitis.  I honestly believe I have had fibro all along... but it just wasn't ever diagnosed.  It's crazy.  I just hope and pray that the Prozac will help along with the PT.

Thanks again for your concern.  It's nice I have some place to come where everyone understands what I'm going through. :-)


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 4/2/2009 6:46 AM (GMT -7)   

Hi Skylark and Welcome!

I was put on Zoloft (boosts the serotonin levels also) and it has made a world of difference with me- when the fibro hit, along with it came severe depression. The Prozac should also help you with the anxiety. I did Physical Therapy for months and it did help in time. With me it got worse before it got better. My therapist was trained to treat fibro patients and she did teach me alot. She slowly built the muscle strength back- I could not walk 30 ft when the fibro first hit. She taught me gentle Yoga and stretching exercises and how to deep breathe. Now, I walk for my main exercise and do the gentle stretching exercises and it does help my pain.

Your on your way to feeling better, and let us know how it is going- nice to meet you!

GamJill

 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


skylark61
Regular Member


Date Joined Apr 2009
Total Posts : 34
   Posted 4/2/2009 7:34 AM (GMT -7)   

Hi GamJil, Thanks for the warm welcome.  :-)   I had to reschedule my PT until next week because I have been having some severe intestinal problems from an antibiotic that I'm taking for a bacterial infection.  Tomorrow is my last day for taking it.  Hopefully I will feel better next week.  I've only been on the Prozac since Monday... no change yet.  How long does it take before I notice less pain?  Or is there any way of knowing.  I have noticed that the weather has changed her in MD.  It's chilly with rain... makes me ache more.  Does this happen to anyone else?

skylark61


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 4/2/2009 7:48 AM (GMT -7)   
Sky, weather plays a big part in increased pain for me and I am in more pain also. I'm in Minnesota and it is has been rainy, cold, damp all week. The sun finally made it out this morning, what a nice sight to see! 
 
I am supersensitive to medications, anti-biotics included- yay, only one more day on it for you and then you should start to feel better from that. The Zoloft, I started seeing a change in 2 weeks, I know others it takes more time. 
 
GamJill
 
 
  
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


skylark61
Regular Member


Date Joined Apr 2009
Total Posts : 34
   Posted 4/2/2009 7:55 AM (GMT -7)   
GamJill, I know this winter was horrible for me.  I was hurting SO bad I thought I would die.  My doctor had put me on Nabumetone, an anti-inflammatory,  for my arthritis pain earlier, and she kept me on it because it does help my arthritis but not my fibro.  Does Tylenol help your fibro pain?  I noticed you are on 4000 mg.  

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 4/2/2009 8:07 AM (GMT -7)   
Hi Skylark!!

You've gotten some wonderful advice already, and since I don't take meds or see a PT, I don't have anything to add there. But, I did want to welcome you to this wonderful fibro family! Please come and post whenever you need to-everyone here is so supportive.

Welcome again!!! :-)
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


skylark61
Regular Member


Date Joined Apr 2009
Total Posts : 34
   Posted 4/2/2009 9:15 AM (GMT -7)   
Hi danielle, Thanks for the warm welcome.  How do you get by without any meds?  What is your secret?  The depression, anxiety, and pain are horrible.

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 4/2/2009 9:28 AM (GMT -7)   
How do I get by? That's a good question that I ask myself a lot..lol

Seriously, though, I am VERY dependent on hot baths, my bed buddy, massages from my hubby, stretching and low impact walking on my treadmill. I also take a lot of vitamins, avoid caffeine and sugar, and drink a lot of water. None of these things make me feel "hooray-all better!", but the combination of things do make life manageable at least. I have a lot of days when I just don't have much energy to get up and go and I would like nothing more than to stay in bed all day, but I know that will only make me feel worse so I push myself to just keep on going. I do rest every day, though, usually in the early afternoon. I know that the only reason that these things work for me is that I don't work outside of the home. I go to school online and raise my kids, but I do not have to go "out there" and deal with the real world every day. I know that there's no way I could get by without meds if I had to go to a job every day. (I did work full time after my son was born and my symptoms got super bad. I only lasted about 6 months after his birth, and I just couldn't take the pain and exhaustion and ended up quitting right before I got my diagnosis)
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 4/2/2009 9:56 AM (GMT -7)   
Oh, I should also add that my house is a wreck 99% of the time. Not the gross kind of wreck (I do keep that stuff up) but more the cluttered toys and laundry baskets and shoes everywhere kind of wreck. Thankfully, I have a very understanding and helpful hubby! :-)
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


skylark61
Regular Member


Date Joined Apr 2009
Total Posts : 34
   Posted 4/2/2009 10:11 AM (GMT -7)   

I'm divorced so I don't have a hubby to give me massages, although I'm sure that this would help alot.  I try to take a walk around my block every day, except in bad weather.

So, do you avoid sugar altogether.  No cookies, pies, cakes, oatmeal with sugar?  What do you sweeten things with?  With my decaf coffee in the morning I use Splenda.  Is Splenda bad for Fibro?

I am a type A personality.... so everything has to be just right in my house or I can't relax.  I've always been this way though.

All this is so new to me.  I just hope and pray I start feeling better soon.

Dianna


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 4/2/2009 10:51 AM (GMT -7)   
Yeah, I don't eat sugar ever anymore. I stopped about..3, 4 months ago? Something like that. It hasn't done much for the pain, but I have noticed that I no longer get absolutely crashing, mind-numbing, gonna lay down right here on the floor fatigue in the afternoons anymore. Also, a funky rash I had on my hand for ages went away completely, too. Weird.

For sweetening, I use Stevia, Xylitol, and Agave. All 3 are all natural and don't cause me any side effects. Once in a great while I will let myself have something store bought and sugar free-pudding, ice cream, cookies that kind of thing sweetened with Splenda, but I've read that all of the artificial sweeteners like that are really bad for fibro, and I do notice if I have something with aspertaime (sp?) in it, I feel horrible very shortly after that.

I understand the type A personality thing. I used to be the very same way. Well, actually, I still am that way, but I just have to ignore it! lol. I have always been really tidy and obsessive about my environment, but I just got to the point where I couldn't be like that anymore and still keep my sanity. I was pushing myself way too hard and becoming fatigued and sending myself into flares just to make sure everything was just right in my house. One day it just sort of dawned on me that something had to give and I realized that it had to be the super cleanliness! It has been soooo hard to give up, though-I still cringe when people come over and I get panicky like OMG! My house is a wreck! I just take deep breaths and try to move on..Someone here-I think it was Sherrine-said she found a sign that said "If you've come to see me-Welcome! If you've come to see my house-make an appointment!" I've remembered that ever since because it helps me keep the cleanliness thing in perspective.

Anyway-I am rambling! I know what an adjustment it is after you first get diagnosed. I can't say things will ever be the same again, but it does get better with time. Coming here and "hanging out" with people who understand and can totally relate is a huge step in the right direction! So keep posting and remember we're here for you and we care :-)
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/2/2009 11:02 AM (GMT -7)   

Hi & Welcome Skylark!!

You've come to the best place in the universe for fibromites!!  I'm sure you already figured that out though!! :-) This is a great group that's always willing to help, whether it be to; just answer questions, support, have a good laugh or cry with, and the list goes on and on.  I love coming here .. I think I'm on about 2-3 times a day.  These folks have become my friends and my fibro family.. I love 'em all!!!

Isn't it amazing as you learn more and more about fibro you realize, this has been going on for a long time and I just thought everyone was like that.  I know I sure did.  Now I know that I inherited my fibro from my dad.  LOL, he didn't leave us alot but he sure left fibro to my sister and I to remember him by.  - Trust me, he would have made the same joke if he were still here and knew that fibro was his problem - And I'm sure my Lyme Disease didn't help.

I'm sure you'll start to slowly feel the effects of the prozac in the next couple of weeks.  It takes a little while since most meds like that are accumulative (sp?).  It took about 3 weeks before I felt the effects of my med (Elavil).  And as for the PT.. I'm sure its a good idea.  My doc hasn't put me on PT, just because I'm suffering from unemployment at the moment .. another horrible disease that seems to be going around these days. (Actually I left my job by choice) 

I have a lot of back problems too, Skylark, so you and I can suffer together with that mess.  Next week I'm going to get a script for another set of MRIs, its been about 10 years since my last set.  YAHOOO.. can't wait - she said sounding like Eeyore, from Winnie the Pooh.  I've noticed that most fibromites have other health problems and can't help but wonder if there's a connection there.  A lot of our members have stomach or urinary problems.  Many have issues like, bi-polarism, depression, axeity, allergies and again.. long list.

I used to live in MD.. Years ago.  I lived in Waldorf.  I loved MD.. there are lots of very beautiful places in MD.  You should be starting to really see the signs of springtime by now!!  Lucky YOU... here in N/E Indiana it's still chilly or cold.  We've only had a few hints, temp. wise, of spring.  No leaves on the trees yet or any flowers *aaa-choo* - I'd glady have an allergy attack for some warm weather and more sunshine... remind me that I said that in a few weeks.. LOL!!

Better scoot... nice to meet you!!  Welcome to the family!!

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 4/2/2009 1:18 PM (GMT -7)   
Skylark, I have osteoporosis and scoliosis.  I also get the heart palpitations.  That is a symptom of fibro.  I did get throroughly checked out, like you did, just to make sure.  Now, whenever they happen I can "dismiss" them and keep on going.  It doesn't throw me in a panic.
 
Most of us are type A personalities and most of us have some form of anxiety.  But, hey, with the pain and the weird symptoms we get, who wouldn't be anxious?  The key is recognizing that it's fibro and that you aren't dying.  This way it won't give the anxiety a chance to get a foothold and you can enjoy your life more.
 
Anyway, the more you read the more you will see you definitely are not alone.  There are a bunch of us out there and we are still living and enjoying life.  Plus, you will "meet" some great people here and make friendships along the way.  You have come to a good place.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 4/3/2009 7:54 AM (GMT -7)   

Sky-

The Tylenol does help the pain, but does not take it completely away. I am so sensitive to meds and don't like to take narcotics. They either knock me out, give me a stomach ache or I get rashes and hives or feel loopy.  turn  I do have Darvocet for back-up when the pain gets off the charts. I had a horrible winter too, the pain was terrible! I have a prescription for Lyrica and have not started taking it yet- I am still working on my pain management, I feel I could be more comfortable, I just need to get the nerve up to start the Lyrica!

GamJill 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  

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