I was diagnosed with FM 20 years ago and for so many years, I actually felt some shame or embarassment; I basically told no one, except my immediate family that I had the DD. At the time, I was an exercise nut, swimming in the morning, at 5:30, before going to a full time job and then going to karate at night, 4 nights a week and Saturdays and sometimes a double class and if I didn't swim in the morning, I was doing a stairmaster machine and then FM hit. Oh yes, I was also walking my dogs 5 miles, again before work...did that when I didn't go to the gym, which was about every other day. My sister whom I was very close to, was my exercise partner and we pushed each other. I remember not being able to keep up with her, walking more slowly and she refused to give in to me or the DD, she would actually walk ahead of me and keep yelling "keep up". This went on for months...how stupid was I? It wasn't until the Lyrica commercials came out that she seemed to have an understanding of the disease. I really believe all this time, she thought I was just a complainer. What I don't understand is, why would someone think that way, when I was such a lover of exercise before FM? Why would I change like that, for no reason? It's been 20 years and I still don't understand why people have no respect for FM. Yes, I understand, they cannot "see" it on us, but you'd think our words would be good enough.
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.
Wow, a cure! I am going to sit up straight in my chair here at the computer desk and not think about my pain- who knew it was that easy!! I would have done this a year ago if I would have had this information!!
I think the best cause of fibro I got was from a someone in the medical field that said it was caused by 'parasites'. All I needed was $1000 worth of chelation therapy. You should have seen me crawl to my nearest chelation therapy center. NOT!
It all goes back to.... "my fibromyalgia is real .. unlike your imaginary medical experience"
Sometimes I ask people who have all the "answers" if they accept my medical insurance.
Hey Folks... May 12th is Fibromyalgia Awareness Day. I plan to send a letter to the editor of our local newspapers to, hopefully it'll make people more aware of this DD. I started writing it a few days ago, but I think I need to tone it down a bit.. I realized that I'm still harbouring a little anger at the DD and the people that don't know what the heck to say or do.
It all goes back to the theory.. Ignorance is bliss.
Good thread Donnaeil