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nmma
Regular Member


Date Joined Mar 2009
Total Posts : 48
   Posted 4/2/2009 3:49 PM (GMT -7)   
Hello and SO nice to read you all ! Makes me feel bad to feel so good reading y'alls pain ! LOL !
 
I'm not crazy - I'm not possessed - I'm not weak, lazy, or emotionally unstable (well, maybe the last one fits...at times) smilewinkgrin
I was dx fibro about a year ago. I originally went in with anxiety and depression .......... doc gave me xanax so I could begin to leave the house again.......then the pain really set in............long cold winter and flooding in the spring knocked me down and kicked my azz.
 
I happened to be limping into the living room when a documentary was on the Discovery channel. This lady was talking about how when her kids came running, she would cringe......"don't hurt me...gentle"...WHAT??? How she had relief from her pain .........blah blah - WHAT???
 
You mean it's not supposed to hurt when people touch you? I did not know that - it's always hurt to be touched ..... this lady sounds just like me.......fibroWHAT??? I googled, I chose John Hopkins info - cried and cried with relief -
 
holy crap - it has a name - there are treatments - I am not crazy - this is me
 
I hi lighted the info for hubby - sensitivity to sound and light - rashes, joint pain, insomnia, fatigue - his eyes got bigger as he went down the list - he looked up at me - and said - "this is exactly what you have".
 
YES ! High fricken FIVE !
 
So I went back to my doc and showed her my Google which she really wasn't impressed with - LOL - at first.....we went over the last year of visits - chest pain, abdominal pain, anxiety, depression, weight gain, fatigue, pain, pain and more general pain....exercise? Ha - hurts too much - I'm just fat doc...it's all my own fault see? I let myself get fat when I moved to Iowa from Az - fat people just hurt right ? That's what I've heard....
 
I'm just depressed because I've been cooped up raising kids for 3 years ....housewife blues...must be, right ?
 
Now I want to go work at this cool camp and I'm so tired and so anxious I pace and what the hell is wrong NOW ???? *screams*........... I'll be hiking trails and cleaning cabins and fresh air and exercise and I'm gonna be back to my old self in no time - right ?
 
No ....... the last year has been hell.
 
Cymbalta REALLY helps with the anxiety and depression - but PMS time is a whole nuther world - wow..........I actually hadn't had xanax since last summer but I called and asked for some this last time.
 
Of course along with IGNORING the fibro - pretending I don't mind the pain - I work at the camp as I said - and I also clean houses.....I feel like I am killing myself.
 
I also feel like if I stop moving - I will stop moving. I will get fatter and weaker - and I imagine myself a big blob of uninteresting miserable flesh creating a dip in the couch.
 
Sorry this is so long but I feel new, yet not ....... instead of information hounding on fibro - I just read the basics and then started listening to my body mind and especially spirit. For the last year I have pretended this will go away , the Cymbalta will take care of it - and I am just getting worse.
 
I want to keep working as I have a very flexible schedule and like what I do. I have 3 kids - 5, 11, and 19 - and I am exhausted all the time.
 
I take nothing other than Cymbalta - not even Tylenol because I worry about all that wear and tear on the stomach and liver processing it all.
 
The only other thing that gave me 3 pain free days and I quit doing it because I'm "too busy" was a yoga ball. Oh my Lord the stretch you can get on that thing is heaven and I really began to feel stronger - for like a few days - LOL ! Then I quit - tomorrow, tomorrow - I'm late again - I'll do it later.....
 
I haven't given up dairy or breads - ie gluten -
 
I don't know where to start - I just know now that being aware and being "aware" are 2 different things - if I do not take charge better of this thing it will continue to run my life for me .
 
Between working and kids and all this house and yard - I'm overwhelmed and in horrible pain !
 
Thanks for the place to rant - I appreciate finding it !!!
 
 

Post Edited (nmma) : 4/2/2009 5:03:09 PM (GMT-6)


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/2/2009 10:03 PM (GMT -7)   
Hi nmma and welcome to the family!!

This truly is a family who cares and understands how you feel. It must be a huge relief to know what you are up against.

I am glad you are able to do so much but it does sound like you are pushing awfully hard. Consider how you feel after you "crash". One thing with fibro is learning to pace yourself to help avoid the hard crashes/flares. I have found over time that fibro can, and often does get worse over the years. Looking back I wish I hadn't push myself so hard. I ruined my health. I had to prove I could do it all and even a bit more. Well, here I am now...a grandmother, wife, mom and my body is a mess. I'm not sure what started first but the fibro seems to top off the rest of the misery. Most people who have fibro have other disorders or symptoms along with it. Just be 'aware' of what over doing it may be causing.

You are an amazing woman! and an inspiration to us all,
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 4/2/2009 11:28 PM (GMT -7)   

Welcome Nmma, You really do get alot done.  As Chutz said become aware of what you are doing & the intensity of the flares.  We are all as different as night & day but at the same time we are so much the same, that we can almost finish each others sentences, & for me that's a big help. I find that coming here really pushes me to do more.  I have a fear of the flare but I really have to find a good balance.  You husband is so understanding & that is a definite plus.  Having a flexible schedule is a good thing & I hope you will be able to continue working.  Like Chutz, I do think Fibro is progressive & we all seem to have secondary illnesses.  One thing I have noticed about all of us here is we have all pushed ourselves over & above our limits.  Nice to meet you.  Come back often, hugs, Denise



 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Post Edited (jewelrylady) : 4/3/2009 10:54:48 AM (GMT-6)


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/3/2009 4:31 AM (GMT -7)   

Hi nnma!!

Glad you found us!!!  You sound a lot like me.. I had to do everything and I wouldn't let my health get in the way.  UNTIL.. I could no longer ignore it.  I worked a job for years that required me to put in about 60-70 hours a week.  Well, it bit me in the butt.  There was no "pace yourself" option, with that job.  Chutzie said it so well.. (she and all of our moderators are very knowlegable about the chronic pain and fibro)

I just wanted to say welcome to the forum and let you know that we're here for you and we're glad you joined us.

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


nmma
Regular Member


Date Joined Mar 2009
Total Posts : 48
   Posted 4/3/2009 5:24 AM (GMT -7)   
Thankyou so much for the welcome - I look forward to reading and posting here -
 
You are all exactly right - and what has fallen by the wayside ?? My home - it's a pit - and that's OK for today -
 
I need to start with the woman in the mirror I think - *looks at coffee*
 
Do I have to give up coffee ?
 
say it isn't SO !?

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/3/2009 6:47 AM (GMT -7)   

OH.. NOOOOOOOOOO nnma!!!

If we have to give up coffee we're up the creek w/o a paddle.  LOL.. I still drink coffee.. I couldn't function w/o it.  But... If I'm going to have it after noon then I switch to half decaf half regular coffee.  Then if I'm gonna have it after 3:00 pm its decafe all the way... I have a lot of sleep issues (a lot of us do) so I try to avoid caffine in the later part of the day..

(__)?  ** passing you another cup .. So drink up!!! 

Hmmm??? might be time for a fresh pot.. this one's been hangin around since 4:30 am and it's getting a bit nasty.. GACK!


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


skylark61
Regular Member


Date Joined Apr 2009
Total Posts : 34
   Posted 4/3/2009 7:07 AM (GMT -7)   

Hi nmma, Welcome!  I'm new here too.  Thank God you have an understanding husband.  It really helps when you have supportive people around you. 

I use to push myself extremly hard raising my children, taking care of grandbabys and working full time... sometimes 50 hrs a week.  Now with Fibro... I've had to slow down. 

I also suffer with migraine disease and no one understood the debilitating effect of it.  Now being diagnosed with Fibro... maybe the migraines pain and everything are all connected.  Hang in there!  You doing a great job.  I was getting out of breath just listening to everything you do in spite of Fibro LOL 

I can't go in the morning without my coffee...but I drink 1/2 caf and 1/2 decaf Folgers.  It tastes great.  Because of my anxiety problems had to cut the caffeine.  The only time I drink coffee is in the morning... unless I go out to eat in the evening and order desert then I have some decaf.

I can't function without it.  smhair


Hugs to Everyone!
~Dianna~
 
Fybromyalgia, Anxiety, Depression, Sleep Disorder, IBS, Migraine Headaches, Mitral Valve Regurgitation, Osteoarthritis, Degenerative Disc Disease, Scoliosis, Herniated Disc, Osteophytes
 
Prozac, Nabumetone, Midrin, Lidocaine Patch, Ambien, Lipitor, Flexeril


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 4/3/2009 7:40 AM (GMT -7)   
Hi nmma and welcome. A lot of us start out in denial, I did. You do have a busy life. It's very hard to have to say to yourself "I can't do this anymore". Most of us were very active people before fibro and self driven. I still try to push gently cause I need to keep moving but I have learned my limits. Fibro has been progressive for me especially in the past two years after I suffered a great loss in my life.
 
I should give up some of my caffeine cause of anxiety but I don't know how I would ever get going in the mornings without it. It takes me a long time even with caffeine. smilewinkgrin
 
We have a great family here so read, ask questions and vent when you need to.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 4/3/2009 10:06 AM (GMT -7)   
Hi, Nmma, and welcome!  I eat everything...in moderation.  I have lost 85 pounds by watching carbohydrates.  I eat carbohydrates but limit myself to how many.  If you want more info about this, just email me.  My address is in my profile.
 
I take ibuprofen with food and extra strength Tylenol for pain.  I've been doing this for 22 years and haven't really had problems.  I am monitored by my doctor and I am taking Prilosec to help protect my stomach from the ibuprofen.  It protects against ulcers 70% of the time...according to my doctor.  I do have a liver panel done once or twice a year and my liver is just fine, thank you!  LOL 
 
I also take malic acid/magnesium supplements that have helped with pain and fatigue.  I also take a vitamin D supplement.  Many with fibro are deficient in vitamin D and that can cause pain and fatigue.  I have found that I don't need as much ibuprofen since I have upped the amount.  Your doctor can run a simple blood test to see how your levels are.
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information all about fibromyalgia, including a link all about the malic acid/magnesium supplements and how they work in the body.  They don't work for everyone but many have been helped.  Be sure to ask your doctor about them.  Mine thought I would be wasting my money but he said they wouldn't hurt me so I tried them and they did work! 
 
There is a link to  some great stretching exercises on Fibro 101 too.  These really do help and are done sitting down.  I do stretching and I walk daily and swim when the weather allows.  Light exercise is very good for you and helps keep the muscles flexible and it also helps with the pain.  But, if you overdo, then you will run into problems.  You do need to pace yourself with any activity.  You will learn what you can and cannot do.  Your body will let you know. 
 
I'm so glad you found us a joined in.  I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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