I am so sorry that you are having such a bad time of it. You are so young to have to live with fibro. Be strong and continue to seek good medical advice. You will have times when you feel good, not great but good. I always look forward to those days. Just be sure when you have a good day you don't overdo.
Do make sure that you talk to your doctor about the medications as was suggested in one of the other post.
I was 45 when I joined the fibro family and my life has changed in ways I didn't think possible. My fibro started in the middle of the night with a muscle spasm that covered my entire back. It was about 10 days before I could get out of bed. I don't think I have a muscle in my body that has not been effected by fibro.
You will be in my thoughts and prayers.
Fibromyalgia, Bulging Disk , B12 Deficiency, IBS, Osteoarthritis, Vertigo, Anxiety(panic , attacks), Depression, Allergies, Chronic Sinusitis, Osteopenia, Tremors
Valium , Flexeril, Crestor, Premarin, Vitamin E, Ibuprofen, Acetaminophen
Hi Lefty, Nice to meet you & welcome to this wonderful forum. I know how hard it is to live in limbo waiting for a dx. It will take time to get a good diagnosis because for Fibro there is no test that can be done. The diagnosis is reached by doing testing & ruling out every other possibility. Once your Doctor has an idea it is Fibro, he will be looking for normal results for everything else. So, be patient & you will find out what it is.
I agree with the others, be totally upfront with you doctor about the pain pills, about needing a stronger dosage or a different med all together. As Chutz said you wouldn't want to be cut off from pain meds totally. I worked as a Pharmacy Tech & saw people be "red flagged" not just in our Pharmacy but in every Pharmacy & Doctors were informed, as well as all pain clinics. It is no small thing. I really don't think you have that problem but even just taking a few here & there can eventually cause you a great deal of problems.
You are so young, we are seeing this horrible illness in people younger & younger. I hope you can find what works for you. Do come here & vent all you want. You can have a good life & a happy one so don't despair. Love & hugs, Denise
I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
Hi there Lefty!!
Welcome to ther forum!!!
I'm glad your doctor is sending you to a rheumy!! Apparently your doc. wants some backup on the decission as to what his dx is going to be. Alot of our fibro family members see a rheumy. I think they have an over all better grasp of what fibro is.
Your symptoms sound like fibro.. but your medical professionals will have to do several tests to rule out any other nasty diseases.
You've found one of the best forums on the internet. Keep posting and let us know how things are going. The members here really do care and are really helpful.
Hi, Lefty, and welcome! Yes, Dianna is correct. You do need to have testing done before a diagnosis of fibromyalgia is given. You see, fibro has a lot of the same symptoms of other illnesses. So, the rheumatologist will most likely run tests to rule these other illnesses out. Not fun, but necessary.
It sure sounds like fibro to me, but I'm not a doctor. Check out the Fibro 101 thread...the second thread on the forum. You will find links to good information about fibro, including a list of symptoms. You just might see yourself there!
I take ibuprofen with food and extra strength Tylenol for my pain. I also take malic acid/magnesium supplements that help with pain and fatigue. There is a link in Fibro 101 all about them and how they work in the body. I just started upping my vitamin D supplements, too, and find that I am feeling better. Many with fibro have a vitamin D deficiency. Your doctor can run a simple blood test to find out your levels. From what I understand, a vitamin D deficiency can cause pain and fatigue, too.
Read back post and ask questions. We are here to help you. Take care and I hope to hear more from you soon.
Welcome! I hope you are able to get a confirmed diagnosis soon. I was 29 when my first symptoms began. My kids were 1 and 5 at the time. I too felt like I was too young for this to happen to me, but I am finding more and more "young" people getting this.
I am new to this forum as well, but there is a lot of love floating around here and a place with people who know you aren't making it up.
Best of luck,