Working during a flare up

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EmberKitty
Regular Member


Date Joined Mar 2009
Total Posts : 65
   Posted 4/3/2009 8:32 AM (GMT -7)   
Today is one of those days that I dread above all others.  I hurt pretty much everywhere, I am so exhausted and the pain is so much I cna barely concentrate on anything.  Yet, despite all this I am still at work.  In this economy I am terrified of losing my job so regardless of how bad I feel I always drag myself in.  So here I sit with my sunglasses on to stop the flourescent lights and computer screen from making my migraine worse wishing for nothing more than to lay down in a dark room with a heating pad on my back and a ice pack on my head.
 
Do any of you deal with the same issues?  How do you cope without wanting to scream and crawl under your desk?  How can I get through the day?
 
 
Ember aka Jamie
 
Diagnosed 3/09 after 10 years of trying to find an answer.
Rx: Gabapentin 1 1x/day, Valium 1/2-1 3x/Day, Tramadol 1-2 As Needed, Dilaudid 1 as Needed
Other Therapies either trying or will try soon: Yoga, PT, Tai Chi, Acupuncture, Massage
 
"A lotus is a flower that grows in the mud, the deeper the mud the more beautiful the lotus blooms" Zen Saying
 
I practice random acts of kindness and senseless acts of beauty!


nmma
Regular Member


Date Joined Mar 2009
Total Posts : 48
   Posted 4/3/2009 8:45 AM (GMT -7)   
Good morning - same thing here today - my arms are screaming and I have to go clean someone's house !
 
I was wondering a couple days ago about being protected by FMLA..........I also work at a church camp part time - I'm afraid of losing my income as well - I wanted to be out the door earlier - yet here I sit reading, messing, relaxing - till I absolutely have to go.
 
I'll be thinking of you - as I'm wearing my sunglasses when I dust the mini blinds with the sun shining thru to bomb my brain with stimulus.
 
rolleyes  (hugs)

EmberKitty
Regular Member


Date Joined Mar 2009
Total Posts : 65
   Posted 4/3/2009 8:53 AM (GMT -7)   
Thanks nmma! Hope you get to feeling better too today. I don't know how you do it, I can't clean my own house anymore let alone someone elses!

As for FMLA I know it protects you, but there are loopholes for the employer...like if they can show that they would have eliminated the position anyway due to the economy they can lay you off during your leave and there is nothing you can do about it other than claim unemployment. My company has already gone through a few rounds of lay offs though I think that my be over for now. We have also been forced to take unpaid time off recently which was a huge financial burden for me.

I am one of those that won't take sick time unless my doctor makes me LOL
Ember aka Jamie
 
Diagnosed 3/09 after 10 years of trying to find an answer.
Rx: Gabapentin 1 1x/day, Valium 1/2-1 3x/Day, Tramadol 1-2 As Needed, Dilaudid 1 as Needed
Other Therapies either trying or will try soon: Yoga, PT, Tai Chi, Acupuncture, Massage
 
"A lotus is a flower that grows in the mud, the deeper the mud the more beautiful the lotus blooms" Zen Saying
 
I practice random acts of kindness and senseless acts of beauty!


Spatchie
Regular Member


Date Joined Apr 2008
Total Posts : 84
   Posted 4/3/2009 9:52 AM (GMT -7)   
Sorry you're having a bad day.  I've been in a flare for 3 weeks and am at work now.  It is so hard to concentrate or get motivated.  I just want to go home, take a hot shower and crawl in bed.  I am so glad it's Friday!
~Ang~
coping with fibro since July 2004
Officially diagnosed with fibro and restless leg - March 2009
Mother to two wonderful kids, born 1999 and 2002


EmberKitty
Regular Member


Date Joined Mar 2009
Total Posts : 65
   Posted 4/3/2009 10:30 AM (GMT -7)   
I am so close to saying screw it and taking a half day of vacation...
Ember aka Jamie
 
Diagnosed 3/09 after 10 years of trying to find an answer.
Rx: Gabapentin 1 1x/day, Valium 1/2-1 3x/Day, Tramadol 1-2 As Needed, Dilaudid 1 as Needed
Other Therapies either trying or will try soon: Yoga, PT, Tai Chi, Acupuncture, Massage
 
"A lotus is a flower that grows in the mud, the deeper the mud the more beautiful the lotus blooms" Zen Saying
 
I practice random acts of kindness and senseless acts of beauty!


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 4/3/2009 10:39 AM (GMT -7)   
Jamie,
 
sending you some big soft & gentle hugs.  I am so sorry you are feeling so bad.  I wish I had some words of wisdom to help take away your pain but just know that I am thinking about you & hoping you will be able to go home soon.  (((((((((hugs))))))))) Denise 

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 4/3/2009 12:54 PM (GMT -7)   
I too am in a three week flare......at work....ready to go home......

I drag my butt to work because I know I will feel worse if I sit at home and let the fog and depression set in......
The guilt of not working also gets to me.....stressing me....making it worse.
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


nmma
Regular Member


Date Joined Mar 2009
Total Posts : 48
   Posted 4/3/2009 2:14 PM (GMT -7)   
I don't know how you guys can do 8 hour stretches - I just did a house in 2 and a half hours, took my check and left - now I can rest awhile before heading out to do some cleaning for the church ...... there is NO way I could do 8 hours anywhere right now....3 at a time is all I seem to be good for.

EmberKitty
Regular Member


Date Joined Mar 2009
Total Posts : 65
   Posted 4/3/2009 2:25 PM (GMT -7)   
I made it through about 3 hours then asked my boss if I could burn some vacation time. Here is where I get to say I have the most wonderful boss in the world. Not only did he ok me going home, but he let me go without using up vacation. I'm salaried so I won't lose any money. He is so understanding and wonderful, and he knows that when I am not hurting so much I will stay late if I have to in order to get my job done. So I came home, took a dilaudid, and slept for a little while. Feeling a bit better now, but still pretty sore. Gonna just take it easy the rest of the day.

Thanks to everyone for being here, it really helps to know I am not alone.
Ember aka Jamie
 
Diagnosed 3/09 after 10 years of trying to find an answer.
Rx: Gabapentin 1 1x/day, Valium 1/2-1 3x/Day, Tramadol 1-2 As Needed, Dilaudid 1 as Needed
Other Therapies either trying or will try soon: Yoga, PT, Tai Chi, Acupuncture, Massage
 
"A lotus is a flower that grows in the mud, the deeper the mud the more beautiful the lotus blooms" Zen Saying
 
I practice random acts of kindness and senseless acts of beauty!


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 4/3/2009 2:49 PM (GMT -7)   
My job is as a senior clergy of a large, multi-staffed church. I have LONG working days where I'm sitting, standing, and often in long meetings, or intense trauma-situations with families. I CANNOT work full-time, for the past year. I don't know if this is a "flare" - I don't even know what that is.

So I totally empathize with you, EmberKitty. I don't know what to say that could help. In fact, I don't know how you can do it. If ever I try to work 8 hours, or worse - 12...the next day I'm flat-out in bed. USELESS to anyone and everyone.

All I can do is say I'll pray for you...as I pray for everyone on this board.
Grace and peace to you.
I have Fibromyalgia, and nothing else!
I take Lyrica 225 mg/day and Tramadol (150mg time-released) and amytriptilene 7.5mg


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 4/3/2009 4:37 PM (GMT -7)   

I work 60+ hours per week, so working during a flare happens all the time.  I try not to take extra medicine because it is hard on the stomach.  If you can stop and close your eyes and deep breathe for 5 minutes, that will be a big help.  Also, I tend to compensate for pain by bunching up my muscles.  That only makes it worse, so pay attention and if you find yourself tensing muscles, consciously relax them.  Progressive relaxation is helpful and so is visualization.  If your body is up to it, take a short walk in the fresh air.  Then talk to yourself and tell yourself that this flare will not last forever (even though it feels like it).

Hope this helps.  Big gentle hugs,

Sue


jsi1261
New Member


Date Joined Apr 2009
Total Posts : 8
   Posted 4/3/2009 10:09 PM (GMT -7)   
i honestly don't see how you all work when you are in so much pain. it definitely says something about your fortitude to stay at work when you are hurting so badly. fortunately, i don't have to work, so i am truly blessed. if i HAD to work, i just don't know what i would do.

i will certainly lift up some prayers for you and hope that these flares will start coming to a screeching halt. speaking of flares, i am looking for a good discussion on that issue. maybe i will start a new post and we can describe what they are like and get a better understanding of them. i am all for that!!

have a great weekend and God bless,
julie

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 4/4/2009 12:15 AM (GMT -7)   
I just lost my last job for being so sick during my first flare over the past couple of months. I luckily got another job right away but it is more physical, so I am putting in 7.5 hours a day. It is really exhausting working while feeling like this. I wanted to be able to take a week or two off so my first meds could kick in before I went back to work, but I just can't afford to.

Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 4/4/2009 9:16 AM (GMT -7)   
It is not easy to work with FM. I am on record STRONGLY encouraging everyone to stay with it and continue working as much as they can handle. You are all strong and determined people and I appreciate having people that I can relate to.

JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005

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