Wow it sounds like you and your daughter are really going through a hard time. I'm sorry the rest of the family doesn't understand. I'm so glad you're taking your daughter's problems seriously.
I don't really have any answers for you, it could be so many different things. I too am glad a rheumy is going to be taking a look at her. I just wanted to welcome you to the forum and ask you to continue to let us know how both of you are doing. And to tell you you're a good mom and doing all of the right things.
No matter what her diagnosis is.. please let us know. We're here for you .. whether its just to vent or ask questions.
Lauriel, don't ever give up! When my daughter was around 25 she started having vomiting issues. She would be fine and then, all of a sudden, have to vomit. She was losing weight and was 97 pounds at 5'6" tall! The bones were sticking out in her arms, she was so emaciated.
She went to her doctor, many times, who didn't think anything was wrong since nothing showed on tests. I sent her to a gastroenterologist, she went through all the GI testing, and that idiot told her it was in her head! She came home in tears not knowing where else to go. I think they thought she was bulimic. I knew she wasn't because I checked!
I told her that we tried all doctors except the gynocologist. She went and it was endometriosis that was causing the problem! Who would have thought that?!!! She had outpatient surgery, was put on birth control pills and is fine now and has put on about 20 pounds. She looks wonderful.
So, don't give up. Someone out there has some answers. Make sure the rheumatologist you are seeing believes in fibromyalgia, too. Many still don't and she could have that too. But, the rheumy is probably your best bet. I'll be praying he/she is a good one. If you don't get the answer there, see another one. This isn't in her head.
I don't know if you'll be checking back on this thread.. but after reading what you said about your daughter and her problems, I wanted to add that YOU A VERY GOOD MOM, TOO. Wow, who would have thought that!! I'm glad you we so diligent (sp?)!!! I guess your daughter can relate to being told "its all in your head" huh?!
Thanks, Patti! But, you would do the same thing...any parent would that loves their child. That's what Lauriel is doing and will find the answer.
Never give up if you don't get answers. Doctors aren't perfect. A few years ago I was hospitalized five times in a six week period. As soon as I got home I got sick again with partial bowel obstructions. I saw many, many specialists and went through many, many tests and no one could understand what was going on. Know who finally figured it out? ME! I was taking blood pressure meds and diuretics for my blood pressure. I lost a lot of weight, my blood pressure went down...too far down...and my system wasn't operating properly because of the extremely low blood pressure...62/30! When I was in the hospital they never gave me diuretics and BP meds because my blood pressure was fine. But, when I was sent home I was told to start all meds again. I would be sick within 24-36 hours later. Once I realized what was going on, I stopped the meds and called my Internist and told him what I had done. He saw me and my blood pressure was perfect and has been ever since. So, doctors don't always have the answers. Never give up until you know what is going on!