How do I manage the pain???

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SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 4/6/2009 6:36 PM (GMT -7)   
I have been doing a lot recently, taking care of my family, cooking, and cleaning. The pain has been really intense. It's so intense right now that I wish I could have some morphine to make it go away. What can I do to manage the pain? I take my pills and I try to rest, but I am really trying to be more of a good mom and wife. I feel a lot better mentally when I do things, but I really REALLY pay the price physically. What do I do???
~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 4/6/2009 6:53 PM (GMT -7)   
What meds are you on? What OTC meds can you take? Can you go to a hospital or clinic?
I have Fibromyalgia, and nothing else!
I take Lyrica 225 mg/day and Tramadol (150mg time-released) and amytriptilene 7.5mg


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/6/2009 9:57 PM (GMT -7)   
Hi Tiki!

I do know what you are saying and I'm sure many others do too. We want to bad to be the wife, mom, grandma or just the person we used to be without having to pay for it. I hate to say that this disorder if most likely with us to stay unless some new research comes through mighty fast. And since fibromyalgia isn't a "popular" disorder no one is raising massive funds for us.

Anyway, a couple of ideas. First, I would think your doctor could prescribe something to better handle your pain, especially at the end of your day when your pain is so bad. My suggestion would be to keep a pain journal....below is a link for one you can copy for free. Fill it out daily for a few weeks and each time you go to your doctor ask him to read it. This way he gets a very detailed picture of your daily pain. He probably has no idea how bad your pain is and without a clear picture he's not likely to prescribe anything for you. If your doctor does give you something for the pain then keep up the journal. That way he can tell if the dosage is correct. That's another thing that many people often do...take what the doc gives them and then suffer if it's not enough. He has no way of knowing until you try it just now much it will take to help manage your pain.

Then...make some YOU time every day/evening. Let hubby take over with family chores and you go lounge in a tub or hot shower, lotion up your legs and gently massage those muscles, maybe lay back on your bed with a heat pad where it hurts and listen to soft music and don't forget the lovely candles. YOU are important and when you are feeling awful you can't be the person you want to be. Please take care of yourself and I think you will feel a whole lot better. It took me a very long time...many years...to ask for and allow help around the house. I felt like a failure but reality is that my body doesn't work like it should. No shame in that.

This isn't just aimed at you because I have no idea what things you are already doing but I hope it helps you with some ideas and maybe others who may read it.

Hugs and please keep in touch!
Chutzie

http://www.painfoundation.org/Publications/TargetDailyLog.pdf
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 4/7/2009 6:07 AM (GMT -7)   

At first, before I was officially diagnoses, I was taking Tramadol, but it didn't do anything for me. Now, I take Lortab 5s. This is all my insurance covers. They help, but because they are such a low dosage, I have to double up on them usually. I take Robaxin, which is a muscle relaxer. I take Lyrica, Luvox, and Trazodone.
I do try to take some time for myself. I usually retreat to the bathroom with a book and read in a hot tub. Our bathtub, unfortunately, isn't very comfortable, but I manage.
My son is 18 months. So instead of helping me clean, he helps me mess it up. LOL. My husband does help me, but not as much as I would like. He has some health issues of his own.
I am going to switch doctors. Mine is wonderful, but he doesn't really listen to me. I'll tell him about my pain, and he will just say, "Well, unfortunately, that is the fibromyalgia." He just gives me my meds. This other doc that I want to start seeing, when I saw him last, he really wanted to work with me on my fibro. So,  I want to start seeing him.
This is all just so hard. I wake up and I am stiff and in pain all over, and then the pain is so so during the day, and then it gets really bad again at night.


~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


Spatchie
Regular Member


Date Joined Apr 2008
Total Posts : 84
   Posted 4/7/2009 7:16 AM (GMT -7)   

Hi Tiki,

  (((((Hugs)))))!  I know exactly how you feel.  I have two young kids and my husband has chronic migraines.  He has a migraine almost daily and even though my fibro causes me pain, his pain trumps mine.  When he feels well, he does the big chores like mopping, scrubbing, etc, but the daily chores like cooking, cleaning up the kitchen, ironing, etc are left to me.  I'm trying to get my daughter to help more since she is old enough, but she has about 2 hours of homework every night and only a little bit of time to play, so I hate to do that to her.  I take Flexeril, but it doesn't always work.  When things get really bad, I go for the hot bath.  Hot baths feel soooo good.

  You ARE doing the best you can!  I think sometimes, it feels good just to hear a "Thank You" for all that you do and all that you sacrifice. Prioritize the stuff done that NEEDS to be done, but then pace yourself for the rest...even if it takes you a month to get it done.  Sounds to me like you are a wonderful wife and mother.  Hang in there.

 


~Ang~
coping with fibro since July 2004
Officially diagnosed with fibro and restless leg - March 2009
Mother to two wonderful kids, born 1999 and 2002


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 4/7/2009 12:32 PM (GMT -7)   
Tiki, I'm stiff when I get up, so-so during the day, and the pain is the most intense in the evening.  I don't have a small child but I do make sure that when I put dinner on the table, that's it for me for the day.  Can you bath the baby before dinner when  you aren't in so much discomfort?  Also, maybe you could make dinners ahead of time on the weekend.  We had a thread about that last week.  Your hubby is probably home so you could put up several meals so you can pull out a meal quickly when you are having an especially bad day.  Soups and casseroles store and freeze so easily.
 
I'd ask hubby to help clean up the dinner dishes and help straighten the house in the evening.  The two of you could get that done quickly if you did it every night.  Then it wouldn't be hard on either of you. 
 
This is all I can come up with right now.  Hope something sounds good to you to help you out.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 4/7/2009 7:26 PM (GMT -7)   
It hasn't been easy. I am slightly OCD, so things tend to bother me when they aren't the way that I want them to be. It has been even harder since the fibro flared up. My husband is helpful with our son, but I am the main one who does the housework. He only does things after days, sometimes a week, of letting them go. It drives me crazy. If the dishes were done everyday, then there wouldn't be so many.
Sometimes, I feel really frustrated because I feel like there is more my husband could be doing, and he doesn't. But I try not to let it get to me. I understand that he has pain as well.
I am trying to do the best that I can, but in my mind, there is more I could be doing. I feel like I never do enough. It drives my husband crazy because he knows that it wears me out.
He is home almost all the time because he can't find a job right now. The economy where we live is especially brutal. Our city is one of the highest in the nation for unemployment.
The pain is bad, but I still try to push myself to get things done. I have a very low self-esteem, and I feel like if I get things done, then I am a better person. I feel like a failure when all I do is lie around and do nothing. I feel like I always need to be doing something, no matter how horrible I feel. I just hate having this illness. It is so hard to learn how to cope with this. I have been officially diagnosed for almost a year now, and I still don't know how to cope with living with this illness. I used to have so much energy, and I used to be able to do so much without having to deal with pain. And now things are different. I am somewhat of a perfectionist sometimes, and that makes it all really hard on me.

~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 4/7/2009 9:39 PM (GMT -7)   
Tiki, My doctor explained it quite well and I posted what he said in the thread "positive thinking explained." Maybe that will help.
Sue
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