Post Edited (confused Okie) : 4/8/2009 7:28:17 PM (GMT-6)
Hey there Oakie!!
Welcome to the forum!!! You've found the best place to find support and learn more about fibro.. sounds like you've had a lot of experience with it already.
I have never heard of ankylosing spondylosis so I looked it up. No one that I know of on the forum has it .. but I can't be sure of that.
I do have experience with many of your other problems, though. Plantar fascitis, which I was told is like carpel tunnel of the feet. I have that and it's awful. If you sit or stand for too long it really hurts. My feet and toes cramp up all of the time. My son has it too. Main thing you can do for it is insoles.. but you know that.
A lot of our members share many of your problems.. most of them sound like they're fibro related. I wish we had something that could really make us feel better.. but alas.. there's not much. Lots of meds, some natural things (mentioned on fibro 101), stretches and gentle exercise seem to be about the only things that the medical industry has come up with so far.
Anyway.. glad you found us!! I hope you'll continue to post and join us often!!
A-w-w-w Okie, you have plenty going on, and the relentless pain! This winter just about did me in with the pain it caused. The milder temps seem to be helping a little now. So many of us have a laundry list of other things going on lots of the same issues in common. My neck and shoulders muscles always feel like rocks and give me the worst pain. Have you tried the rice neck wraps (you can use them anywhere on your body that hurts) that you put in the microwave to heat? I take warm/hot baths, Tylenol 4,000mg a day and Darvocet for back up. I know I could have better pain management and I am working on that. Supposed to start Lyrica, but chicken to start because I am so sensitive to medications.
I also see my regular Dr. for my fibro. The rheumy that diagnosed me I was not impressed with. I felt SO rushed, and I KNEW I was just a number to him. My regular MD is just the opposite. I hope your appt. goes well and that you can start to get some of this pain under control.
Having a good support system makes a huge difference in how I feel also- A good Dr., family, friends and the group here. Everyone else in my life can be there for me but they do not know exactly what I go through- here they do!!
Anyways a warm Welcome and it was nice to meet you!