EUREKA- I have the answer to it all!

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Grailhunter
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Date Joined Nov 2008
Total Posts : 159
   Posted 4/9/2009 9:05 AM (GMT -7)   
Someone said that the latest half baked theory on Fibro is our posture is bad, so all we have to do is stand straight. All our problems are in our posture. All we have to do is order a good set of orthotics for our shoes that make us stand straighter and we will all get well. OMG, it was right in front of us the whole time!

That is my I am going out for a cup of coffee post.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.


confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 4/9/2009 9:25 AM (GMT -7)   
Yeah, Iv'e been told this too. Wow we must really like pain just sit around and slouch all day. Im not even sure about physical therapy, there is a reason I wuit using some of these muscles, pain. I wish i could just stand up straight and take it all away, anyone had any luck with this solution?
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


vestabula
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Date Joined Nov 2008
Total Posts : 2855
   Posted 4/9/2009 9:30 AM (GMT -7)   

And hasn't this this remarkable epiphany come just in time for BILLY MAYS AND HIS NEW AMAZING PRODUCT FOR THE INSIDE OF YOUR SHOES....MADE FROM GEL AND STEEL AND GUARENTEED TO MAKE YOU STAND TALLER AND IMPROVE YOUR POSTURE IN JUST ONE WEEK!  YOU CAN PUT YOUR HAND IN BETWEEN THE GEL LINER AND THE STEEL SLAB AND HIT YOURSELF WITH A HAMMER AND YOU WON'T EVEN FEEL IT!

ORDER NOW FIBROMITES....THIS OFFER OF BY ONE SET AND GET ONE FREE IS ONLY GOOD FOR THE NEXT TEN MINUTES!  CALL 1-800-SWAYBACK AND HE WILL INCLUDE THE HAMMER!

Huggies Donna...and stand up straight!


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 4/9/2009 10:03 AM (GMT -7)   
lol, I see where you are coming from. No one needs to be told that their problem can be so easily fixed! But... at the risk of sounding preachy, there is a grain of truth in that. My posture HAS gotten much worse, and by consequence, I had more problems with my shoulders, which hurt my back, which hurt my neck. I went to physio for my frozen shoulders, and some of the exercises that I could tolerate helped with flexibility adn being able to put that shoulder back in it's proper spot. I have to pay a conscious effort to stand and sit straight, or the muscles in front of my shoulders tighten and shrink again. I constantly have to redo the exercises to keep that limber, it's a cycle. I'm sure that I could get even better if I could do the whole range of exercises and strengthen it more, but anything that forces my upper back or with arms over head exhausts me and tightens my shoulders more. I also know that I do feel better when I do pilates, as it reminds my body what it's like to have better posture. But all of this has no effect on the pain in my legs though, lol ;)
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline


Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 4/9/2009 11:20 AM (GMT -7)   
I love the comment vestabula, my chiro told me I don't have fibro and all i need is to wear the special inserts. okay that was a year ago and I am still in my own special _ _ _ _. Though I agree with mamanan. It does help to try to strengthen oneself..
Fibromyalgia, Hashimoto Thyroid disease, Chronic pain.
 
 All things are possible thru Christ Jesus who strengthens me


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 4/9/2009 11:32 AM (GMT -7)   
I was really only being 90 percent sarcastic. I used to wear orthotics, and I did stand straighter and I didn't have as much back pain, and I am going to order another set of them and hope they help a little. But OMG were they expensive and they were the type that they don't mold to your feet, they push the arch back up where its "supposed" to be supposedly be and for the first week you feel like your walking on boulders until your arches match the orthotic. Takes about two weeks before your walking comfortably on them.

So, yes, grain of truth.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.


purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 4/9/2009 7:30 PM (GMT -7)   
Thats really funny. I can't stand or sit straight because of the scoliosis. So I guess it was inevitable for me to have fibro and everyone with scoliosis has fibro? LOL
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 4/9/2009 8:25 PM (GMT -7)   
Has anyone tried The Ideal feet store. They advertise that you don't pay if you aren't helped. I have tried custom orthotics and still got plantar fascitis. I may try it. I know posture is important, it's just that i have been told that that is all of my problem. My posture has got worse but I do the exercises they give me and sit and stand the best I can. My pain hasn't let up for a year so I guess I am a little bitter right now. I know that doesn't help and we all are going through it.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 4/9/2009 8:32 PM (GMT -7)   
No, its just people with Scoliosis have to buy the really good orthotics they only sell on infomercials at 3 a.m. Only those will work for serious issues and only when combined with useing the Jack Lalane juicer.

Infomercials. I lost track of how many times I have fallen asleep leaving the TV on and I am dreaming that I am making it big on selling on Ebay, or buying up houses with no money down, or buying up property and houses for the back taxes. Whatever their pushing, I am dreaming about doing it. Ya think they know what their doing on those things if it makes you dream about doing it. They should have language learning channels that pump it out that way.

I haven't heard of the ideal foot store. The only orthotic I have ever tried are Alzners, which I have heard good things and bad things about them, but I can say they did make me stand allot straighter and I can definitely tell that I am slouching bad at this point. The thing about Alzners is they are not by any means custom. All they measure is the size of your foot and the depth of your current arch and match to that. This foot Doctor named Alzner had a belief that it was wrong to make orthotics that were matched for supporting a bad arch. So, he figured out what he thought was a proper arch and Alzner orthotics will force your arch into that shape. So, they are extremely painful to wear the first, second, third day. If you can stand the pain for a hour the first day your doing good. Then you slowly extend the time you use them each day while they are pushing everything into the position Alzner thought was correct. After about a week of doing this, you can stand to wear them all day, and after a couple of weeks they don't hurt anymore because your foot has been forced to match the arch support, and then it maintains it from there. I have read other foot doctors say this is wrong, but they worked for me on getting rid of my back pain. Never did a thing for my neck, shoulders, or the other half a dozen problems, but the back felt better. I could stand and walk without my back hurting. Now I can't walk 20 feet without feeling like I am pounding my spine and its acheing.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.

Post Edited (Grailhunter) : 4/9/2009 10:00:57 PM (GMT-6)


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 4/10/2009 5:48 AM (GMT -7)   
LOL, that is right next to my other favorite...you have to be strong Monica and fight it....I just always pray for people that say those things to me. Pray that they may never find out the walk that I walk

 
 
Monica
 
Fibromyalgia, Anxiety, IBS, Reflux, Insomnia,
Lyrica 200Mg X2/ Zolft 150 Mg/Ambein CR/Zantag (presc strength)
Taking it one day at a time.... 


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 4/10/2009 6:31 AM (GMT -7)   

I think that the fibro causes the bad posture in some cases.  Geez...walk all humped over a grocery cart...gimping around dragging the leg that aches...trying to do dishes leaning lopsided against the sink...I do have scoliosis so I know that doesn't help the posture.  Maybe I should get one of those thingamabobs that you strap yourself into and hang upside down for fifteen minutes.  But then again, I would faint when I got out of it...then be covered with bruises from hitting the floor.

Oh well...

huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 4/10/2009 7:54 AM (GMT -7)   
Grailhunter******

I am sitting up straight as a rod. Thank you so much!!!

On a serious note my dad was a bugger on posture, he an Osteopath. He claimed it was critical for good digestion and lung health. Who knows but I learned to walk with text books on my head. Perhaps this is what damaged me!!!

Patsie

Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 4/10/2009 8:08 AM (GMT -7)   
I do have one of those thingamabobs you get into and hang upside down. All I have noticed with it is that it helps to keep one really bad back nerve from pinching off and sending fire pair up my whole right side. Oh, and I am more clear headed for a little while. Oxygen and circulation to the brain I guess. Your supposed to stay in them and build up to 15 minutes. I can still only manage two minutes after a year of using it.

I was wondering about sitting up straight as a rod though. Only way I could manage that is take a steel rod and strap it to my back.

P.S. I had Polio as a child and have S Scoliosis.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.

Post Edited (Grailhunter) : 4/10/2009 9:16:03 AM (GMT-6)


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 4/10/2009 8:57 AM (GMT -7)   
Hi Grailhunter,

Sadly I read you had polio as a child. My doctor asked me about polio and the incidences he has noted with post polio syndrome and fibromyalgia. He even suspects the vaccine and he is no dummy. It is a theory.

Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 4/10/2009 12:25 PM (GMT -7)   
Actualy Patsie, I have suspected the vaccine as the possible cause for years, since I was vaccinated after they changed over to live vaccine. I was also told by the leading Post Polio Doctor in the United States, that if you have chronic fatigue alone, or fibro like symptoms on top of it, and you had Polio, you do not have Chronic Fatigue and Fibro, you have Post Polio Sydrome which starts kicking in right around 30 years average after you had Polio, and that is exactly the time frame this started up on me

And if the disabilities reach a point you have to file for disability, you file as Post Polio Syndrome whether you have a diagnoses or not. The fact you had Polio and are claiming all of these symptoms is substantial proof in itself. You don't even need a Doctor to tell you its time to file for disability. The Polio, and the list of symptoms are the diagnoses, since Social Security knows regular Doctors don't know squat about it and its almost impossible for most Post Polio people to get to the couple of places in the US that do know whats going on and how to diagnose it.

And because Social Security has a whole different way they have been ordered from the top to treat people that had Polio. The evaluators basicaly have their hands tied on dismissing your symptoms as nothing really wrong with you other then you need more Prosac and a better attitude.

But I am hard headed about this and I am going to go as long as I can go at whatever level I can manage, just like everyone else here seems to be.

By the way. There are some very strong and convincing theories that the Polio Vaccines, especially the live one, maybe a culprit in the number of people we are seeing today with all these strange overlapping symptom disorders. It protected them from Polio, except for a couple in a thousand that it actually caused it, which is the crack I fell into, but it either directly did something to people that showed up years latter as chronic fatigue and fibro and all the other names they call it, or by eradicating the Polio Virus, another virus not as strong came in and took its place.

Its kind of a oh look, I have pictures of bright lights in the sky that must be aliens theory, but I don't totally dismiss it since I was vaccinated and got it anyhow.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 4/10/2009 8:04 PM (GMT -7)   
I have noticed that my back pain affects me to the point where I cannot sit up straight. I never had terrific posture every single minute, but it was at least better than I have now.

Annie

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/13/2009 12:23 AM (GMT -7)   

My Chiropractor is helping me with my posture as well. He says hold your stomach in and tighten your butt so it goes in and then try and walk for 200 paces (steps) each day. It's really helping.

But I have found out that my Fibromyalgia acts up the worst when I get some acute stress. It's like all my muscles cease up and I can't hardly move.

Hara

Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 4/13/2009 9:57 AM (GMT -7)   
Gee, I hate to rain on anyone's parade but fibromyalgia has been around lots longer than the Sauk Polio vaccine. It used to be called articulating rheumatism in the 1800's and was generally observed in wealthy women who became invalids from the pain and stiffness. They took to their beds, "got poorly" and generally became invalids from the lack of movement and addiction to Lydia Pinkum's and other opioid-laced tonics. Less affluent women had no choice but to keep moving to care for their families. Their normal daily exercise provided by doing laundry, baking, cleaning and cooking (which included chopping wood for the stove!) kept them from becoming bedridden. The fact that it was about a 30 yd walk just to use the "facilities" several times a day meant they had to keep going, no matter what.

Also, I'm older than dirt and remember when my mother worked for the March of Dimes and the day the announcement came through about the discovery of the Sauk Vaccine. She cried with happiness. She had six children and we were all made to take rests every afternoon all summer when the polio virus was rampant. We all went to the drive-in movies with our parents instead of the theater because "everyone knew" that you got Polio from being with lots of people in a confined space in the summer. My point about this is that I was experiencing symptoms of fibro long before I started my series of Polio shots and boosters so for me, there is no connection between vaccination and fibro. Other than antibiotic injections, the polio vaccine was my first "shot" or vaccination. Before that one there was nothing for measles, mumps, reubella, chicken pox or any of the other viral infections.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


moonmatrix
Regular Member


Date Joined Mar 2009
Total Posts : 178
   Posted 4/13/2009 11:26 PM (GMT -7)   
I am 33. I know there may be many many reasons for Fibro and not each person is the same. MY posture is pretty good. I can also walk with text books on my head. I was very nimble until my mid teens, Legs behind the head thing and all. Now I can not even touch my toes. Every doctor, theorist, chiropractor etc. has his or his theory on this. I am tired of theory one one sentence answers, I just want it to stop!!
fibromyalgia, bipolar, ptsd, depression, anxiety
cymbalta, abilify, triliptal, lorazapan, lyrica, flexoral, ibuprophine.


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 4/14/2009 3:44 AM (GMT -7)   
Shoes. I want to talk about shoes. All kinds of shoes. I bought this really comfortable, nice, shiney black lace up and zippered boots at the beginning of winter, this winter, the houseguest who has begun to smell fishy, anyway. Somewhere, in this winter, my right foot turned in, my boot went with it, permanently, I mean, and I end up walking on the outer edge of my right foot. What is that all about? In fact, thinking back, most of my good shoes and boots ended up trashed within two - three months, due to right heel totally being worn off on the left outer edge. I mean worn down by inches. Then trashed boots, and shoes. So, I buy good quality, inexpensive shoes, only. I go to Walmart (no dissing Willy Mays, though), and try on a pair of Dr. Scholls (around 30 bucks,)  walk all over the store untill they yell at me (the shoes, not the clerks,)  some eye in the sky guy is waiting, I know, for me to walk out with them on, boy is he disappointed when I return to the shoe dept. and put them back in their box and select another pair. Also Earth Shoes. Same deal. Most recently I needed transition footwear from real winter to this mess they call spring, so I found a pair of men's Dr. Scholls, with gel inserts and excellent arch support, wide, so they can be worn with heavy socks. my feet are always cold. best shoes yet. That's all. Except that poor fellow watching the crazy lady wearing all different shoes around, putting them back, trying another pair, and so on; I'm sorry eye in the sky, guy. Posture. I spend lot's of time leaning on my folded arms on the counter waiting for someone, or something to start or stop. I don't know anything about posture except when I hurt, I wanna curl up in fetal position. I spent nine straight months like that. It can't be all bad. 

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/14/2009 6:27 AM (GMT -7)   

Tyno3, I have alot of trouble with my feet. I also lean to the outside. I took it upon myself to go to a foot doctor and I have nice orthotic insoles in my shoes now and they don't wear out as fast. But you shouldn't be able to flex the toe of the shoe to the back of the shoe, those are not good shoes and they don't support your foot very well.

Hara


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 4/14/2009 9:35 PM (GMT -7)   
Dear Hara: Thank-you. Do you know what causes one foot to turn in and cause one 9me) to walk on outer edge of shoes?

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 4/14/2009 10:24 PM (GMT -7)   
Raining again Jeanie? Well, I am standing under the awning on this one.

I don't know about what others are thinking about a possible connection between Fibro and the Polio vaccine, but I don't think the Polio Vaccine caused me to have Fibro, I think it caused me to get Polio. Did it cause other problems to some of the people that got the vaccine. I don't know. I wouldn't discount the possibility that it did something.

If what I have is Fibro and Chronic Fatigue and not Post Polio Syndrome, I can tell you that the Polio Vaccine didn't give me Fibro and Chronic Fatigue. Daily vaccinations of high stress by a raging drunk father, combined with more high stress vaccinations from a marriage to someone that was a bad alcoholic and drug addict, and finally my third set of vaccinations of high stress from a seriously bad OCD mother that is only satisfied when doing everything possible to control her stress by dumping it on everyone else, and since I was the only child of 4 that wouldn't leave the country to escape, it was me.

So here is my real, final theory on Fibro. It is caused by stress, pure and simple. There are all kinds of variables to it and other factors you can mix in, like personality types, genetic predispositions, accidents, illnesses, lack of good orthotics of course, but under it all, what brings on Fibro is the same thing that is the biggest killer of all, stress.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.

Post Edited (Grailhunter) : 4/14/2009 11:53:46 PM (GMT-6)


Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 4/14/2009 10:31 PM (GMT -7)   
tyno3 said...
Dear Hara: Thank-you. Do you know what causes one foot to turn in and cause one 9me) to walk on outer edge of shoes?

I'm not sure. A good foot doctor would know. Ask your doctor about it and ask for a referral to one. They can set you up with good orthotic inserts for your shoes.
Hara


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 4/14/2009 11:32 PM (GMT -7)   
I found pr!vo by Clarks and love them. I can wear them two days in a row without pain. (not extra pain, that is). Pretty cool. Now I have 4 pairs
Sue
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