I am new visiting this particular forum, as I am diagnosed with by Multiple Sclerosis and most recently Lyme Disease. However, in 2006 in went to the Mayo Clinic and the neurology department said that while they could not pinpoint what was going on with me, that they could see I was CLEARLY in pain (I was on crutches, barely able to walk at that time). Their diagnosis was Complex Regional Pain Syndrome. I am wondering if what I am experiencing every day is essentially Fibromyalgia in a region of my body??? Is this basically the same? I believe it is, please let me know what you think. Thank you! Any support is of course appreciated. This pain is very frustrating, and I'm so young with so much living yet to do (I'm only 34, been sick for 4.5 years)
Here are my symptoms:
chronic, traveling nerve pain and muscular pain in my low back/hip region
sharp, stabbing pain while at rest or moving (as if there were a needle/knife entering and exiting my body)
exercise usually exacerbates the pain (boooo)
can only walk a certain amount
can't sleep or stay asleep at night, even with meds.
Here's what I take, and it is so far the only thing that works for long enough to make life worth living:
I have tried:
massage (works very well, just temporary)
IV catheter of antibiotics to treat Lyme Disease (has actually made a "dent" on the level of pain that I experience)
Diagnosed MS in 1994, used Avonex for years, then diagnosed Lyme in 2006, working on healing now!