I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
I know the feelings. Its sorta like, please make it something that everyone has heard of and has a clue about. Something that can be controlled with proper meds and can really explain why I feel like this. I went through that when I had Lyme .. at least it can be cured, little did I know that the fibro was lurking around waiting to pounce and would be incurible. Its that feeling.. you mean this is going to be the way it is for the rest of my life??
I also understand your wanting to just lay low for a while. I've been doing that in my life outside of this house for the past 5 months. I don't want to really see anyone I know (this is a small town and I held a high office in the community so I know everyone). I don't want to have to explain how "I'm feeeeeeling these days"
I'm glad you popped in to let us know how the tests went .. I remember you mentioned you were gonna go thru the gambit. It is kinda cool to see your innerds though, isn't it. My favorite is the brian MRI... that way I can prove I do have one and the EKGs do prove there's an actual heart in there (not that cold empty stone some people think I have.. LOL)
Be sure to let us know the results.. and like Lori said.. at least so far its nothing life threatening.
Hugs 4 now..
Thank you so much for the understanding replies. I am feeling better, emotionally today. I hit one of those bumps in the road & ended up face down in the dirt!!! OK, that's a bit much but I sure felt like it. I hate being sick & I hate having so many other people feeling the same way. Some days I just want to get up & jump out of bed like I used to, just to see if it feels as good as I remember.
It is so nice to be able to say something & have everyone not only understand but to actually "know" what it feels like. This is a great place & it is because it is made up of such wonderful people. I want to thank all of you who replied to my earlier post, "and so it begins" I wanted to thank you all & all those who read but couldn't reply. I read the posts, I was overwhelmed with such caring, loving people. It made me feel so cared for & I did appreciate it so much. Patsie, sorry for my getting the name wrong, (heavy sigh!!!) The fog hits again. I do love the saying thought, it takes away all the garbage & what is left is "what is".
Donna, I think I love the name of that illness. Maybe if we change the name of Fibromyalgia to Herkamandorangia Disease we will get some respect!! Do ya think?? The only problem is I had to keep going back to look at how it was spelled just to get it written once. And with my Fibro Fog I would never remember it. How does Herka Fog sound?
Hugs to all, Denise
Sorry to hear you are having a rough time of it. I know, isn't it interesting to see the insides of your body and brain? I had an MRI last spring and to see my brain was really something! Yes, I have a brain- so no matter how bad the fibro fog gets all I have to do is pop in the CD they gave me and look at it! And I too could not get over how all my tests would come back normal and felt like I was on my death bed- how could that be????
I go through periods too of bad pain and depression, and have to get my mind going in the right direction. Fibro is not easy. I think you have done well- and let us know what the scan results are, K?
One time, a long time ago, when I was about 20, I was cooking in a restaurant & one of my co-workers was a really nice lady but always had something very bad going on but the Doctors never could find anything. One of the other cooks & I decided to play a trick on her & when the three of us were together pealing buckets & bucket of potatoes, I said "Oh, my sister finally got a dx & it was found she has Elephantitus". Then the two of us talked about all the symptoms & problems of the illness. Of course, we didn't even know what the real symptoms were but we thought we were so funny we just kept on. Well, the next day we both got called into the bosses office & were told that the other cook was sure she had Elephantitus & was going to go to the Doctor about it. He asked us if we knew where she heard about it & we did fess up & told him but we thought it was funny. He told us not to do it again. Now I think back & feel so bad that I did that. You just never know how people are really feeling & she probably had Fibro. Thinking about a name for Fibro reminded me of this. I was as bad as any, especially when I was young. Life has a way of coming around & slapping you in the face.
I often think how can one little illness called Fibro, cause so much trouble!!!! But it does!!!!
I have been plagued with depression all my life & my antidepressant works great but only during normal times. Normal?? What's Normal??? LOL
Love & hugs, Denise