Let me introduce myself...

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TarheelMama
Regular Member


Date Joined Mar 2009
Total Posts : 28
   Posted 4/10/2009 9:13 PM (GMT -7)   
 
 
When I got here I just jumped in because I wasn't sure what I wanted to say in my introduction.  Anywayz, here's a little about me.
 
I started out in this world with health issues, and thats been the way it always has been.  I've learned to accept it and just live my life around what I can do.  I have days of depression when I get tired of my bad health and somedays are easier, but I deal with life as it unfolds the best I can.
 
I started out as a preemie with a heart mumeur born to a 14 yr old due to extreme unmentionable circumstances.  I was immediately placed in foster care and adopted at 6 months.  I was blessed with a weak immune system from the start.  I had an eye problem where they had to cut the bone and mscle into when I was very young.  The migraines I get now have a habit of working their way into the scar tissue there and once that happens they barely go away.
 
I started puberty when I was around 8 years old.  My fibro symptoms began after puberty started.  I went through hell in gym class when I was forced to do the actvities even though I was tired and felt touchy at that point.  I was embarassed when getting tagged or hit with a dodge ball always hurt like crazy.  It's tough as a kid not knowing there was such a thing as fibro and knowing the doctors and my parents thought I was a hypochondriac and said there was nothing wrong.  My father constantly compared me to a 90 year old woman as he put me down  for being lazy and complaining about always being tired or in pain.  Now that I think about it my grades were slipping ever since I ended up with fibro.  I couldn't concentrate in school and I couldn't remember things for tests at all.
 
I was always late for school and had many detentions because of it.  There was no real reason.  I just couldn't get moving in the mornings and the colder it was the more I just sat still while I was supposed to get ready.  Now I realize it is because with fibro it takes me a while to be able to freely move around after waking up.
 
I have a uterus shaped like a heart which causes "that time" to feel just like labor as well as multiple kidney stones.  I have a kidney disorder where my body can't process calcium or magnesium, so I have to stay away from supplements or excess amounts of them.
 
I have lost many jobs due to poor performance because of my fibro.  The only job I managed to keep besides the over stressful afterschool care job I had was in my Dad's company that we lost due to the economy.  I have given up on working because it's phyically more than I can handle and the constant job loss was too emotionally stressful for me.  I'm attempting to pecome a published novel writer so that I can be my own boss.  I've been denied disability twice already.
 
My adoptive family, inlaws, stepkids, and their mother all think I'm lazy, over reacting about the pain, and think that I need to get a job.  My husband I'd say 90% believes and understands.  It's the other 10% that brings on hurtful comments and expectations of me that I can't live up to from time to time.  He's very helpful and supportive for the most part.
 
My birth family is very supportive.  They all have heath problems and just about all of the women in my family experience extreme pain.  The rest have small issues with their joints.  After going 27 years with my doctors all telling me that nothing was wrong I finally found a reumatologist through them that they have been using who informed me that I without a doubt have fibro.  I cried when I left with the relief of finally having a diagnosis and being told that I was not crazy.
 
I also have a miracle daughter.  I was between 3 and 4 months pregnant when I found out about her.   I kept getting told by my doctor that I wasn't pregnant based on blood tests and they kept giving me medicine to start my cycle that I hadn't gotten in months.  I took a home test one day and found out that they had been wrong.  My daughter was two months premature with a diphragmatic hernia.  The whole contents of what was supposed to be in her stomach area were in her chest with her lungs and heart instead. She wighed 3 pounds 5.6 oz at birth.  She had to be fed by an iv only for two months until she could have surgery when she gained  enough weight so that her stomach wouldn't grow and suffocate her. 
 
She had 5 surgeries between a patch on her diaphram, heart surgery, patch repair, and eye surgeries.  She was in a specialty hospital for 7 months from birth where I had to stay an hour away from my home, husband, and family.  It was very hard to be scrutenized by the hospital staff with fibro when they thought I needed to be around on early hours and be ok with sitting in the room for 6 hours.  I don't function well until at least 10am to start my day.  My peak is typically from 6 pm to 10 pm.  I'm not sure why but I seem to function better after its darker.  She had a 40% chance of surviving and they all didn't have much of a plan for her because they didn't think she would make it.  They kept telling me not to count on her pulling through.  It's very unusual for preemies to make it with her birth defect.
 
She's currently 18 months as of April 14 and on oxygen24/7.  She's just a bit developmently delayed.  We have a home nurse that sees her once a week and she has several therapists that come to our home and work with her.  She's currently getting dissability and I'm able to be a stay at home mom.  She can't go to daycare due to her underseveloped lungs, so I am thankfully not expected by the non understanding family members to get a job for a while.
 
Thats a bit of a summery about me and my life.  I love this forum because you can complain and nobody gets upset.  Everyone supports you instead.  Everyone here is going through exactly what I am and it really helps.  You'll probably see me around a lot at night.  I love the time around midnight to 2am because it's so calm and laid back with the bulk of everyone around asleep. yeah

*~*~*Katie*~*~*

 

~Fibromyalgia, Arthritis, Carpal Tunnel Syndrome, Lordosis, Chronic Fatigue, IBS, Chronic Cystitis, Bicornuate Uterus, PCOS, Cancer Survivor, Dyslexia, Memory Loss, Anxiety, Depression, ADD, Kidney Disorder, Kidney Stones, Migraines, Allergies, Eczema, Diabetes, Bulging Disks, Weak Ligaments in Knees~

 

(Insulin, Gabapentin, Cyclobenzaprine HCL, Zolpidem, Rozerem, Hydrocodone ES, Toradol Shots, Steroid Shots)

 

*Don't dream it. Be it!*


TarheelMama
Regular Member


Date Joined Mar 2009
Total Posts : 28
   Posted 4/10/2009 9:17 PM (GMT -7)   
Let me add, that one of the peple that come out for my daughter has fibro and it's nice having someone that understands what I'm going through!

*~*~*Katie*~*~*

 

~Fibromyalgia, Arthritis, Carpal Tunnel Syndrome, Lordosis, Chronic Fatigue, IBS, Chronic Cystitis, Bicornuate Uterus, PCOS, Cancer Survivor, Dyslexia, Memory Loss, Anxiety, Depression, ADD, Kidney Disorder, Kidney Stones, Migraines, Allergies, Eczema, Diabetes, Bulging Disks, Weak Ligaments in Knees~

 

(Insulin, Gabapentin, Cyclobenzaprine HCL, Zolpidem, Rozerem, Hydrocodone ES, Toradol Shots, Steroid Shots)

 

*Don't dream it. Be it!*


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/10/2009 10:15 PM (GMT -7)   
Hi Katie and welcome to our family!

Wow, what misery you have gone through but obviously you are a fighter. Anyone else would not have survived all that you have gone through. I too am adopted and I believe that my biological mother's habits had a lot to do with my health now. She's been gone for about 10 years now but my biological brother tells me of years when she had awful muscle pain that no one could find a reason for. Also, when she was pregnant with me she would usually down a 5th of vodka/day. No wonder I have problems!

Anyway, thanks for filling us in and we're so glad to have you here!
Chutz
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


TarheelMama
Regular Member


Date Joined Mar 2009
Total Posts : 28
   Posted 4/11/2009 7:35 AM (GMT -7)   
lol must have bored everyone... you're the only responder :)

*~*~*Katie*~*~*

 

~Fibromyalgia, Arthritis, Carpal Tunnel Syndrome, Lordosis, Chronic Fatigue, IBS, Chronic Cystitis, Bicornuate Uterus, PCOS, Cancer Survivor, Dyslexia, Memory Loss, Anxiety, Depression, ADD, Kidney Disorder, Kidney Stones, Migraines, Allergies, Eczema, Diabetes, Bulging Disks, Weak Ligaments in Knees~

 

(Insulin, Gabapentin, Cyclobenzaprine HCL, Zolpidem, Rozerem, Hydrocodone ES, Toradol Shots, Steroid Shots)

 

*Don't dream it. Be it!*


poodles
Regular Member


Date Joined Mar 2009
Total Posts : 180
   Posted 4/11/2009 8:03 AM (GMT -7)   
Hi and welcome.
Your life has been very hard. I am sorry. I'm glad you have found this place. The people are great.
Vickie

Fibromyalgia, Bipolar Disease, Post Traumatic Stress Syndrome, Clinical Depression, Arthritis, High Blood Pressure, etc.
Who ever knew I would be defined by my diseases??


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 4/11/2009 8:20 AM (GMT -7)   
Hi Katie and welcome to our fibro family.

My, you have been through a lot but you are doing it!!!! I pray your little daughter develops as time goes on. That takes all the strength a mother can muster.

I am a Tarheeel born, a Tarheel bred, and when I die I'll be a Tarheel dead. Raised in NC, born in Raleigh. I go there every now and then and just love it. My mothers family was from Raleigh and called it the dimple of the universe, not far off!!!

Have a good weekend.

Patsie

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/11/2009 8:29 AM (GMT -7)   
Good morning Katie!
 
OMG, gentle hugs to you.. you're quite a trooper.  I'm proud to call you a fibro family member.  Many of us have struggled and suffered all of our lives, perhaps that's what makes this such a wonderful non-judgemental forum.  I hope and pray your little daughter gains your gift of survival. 
 
You and I share learning disabilities, early puberty & skin problems.  I started puberty when I had just turned 9 yrs old. (I thought I was dying and I was afraid to tell anyone because I didn't want to wind up in the hospital or something, with everyone knowing I was bleeding down there..  I had no idea what menstration was, I thought I had done something wrong to have created it.. LOL.. little did I know, huh?)  I've always wondered if I started with fibro that early in my life.  I guess I'll never know.  My dx's started back in 1999 with CFS, after Lyme Disease, then in '09 dx'd with FMS. 
 
I applaud your idea of being a writer.  I'd love to go in that direction.  We have a few writers here on the forum so you will share that with them. 
 
I hope you'll continue posting and join us in learning more about eachother and fibro.  This is an awesome place and we really do care about eachother.  We love to welcome new members and share support, ideas and have a little fun along the way.
 
Take care and again .. welcome! 
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


NanaNan
Regular Member


Date Joined Apr 2009
Total Posts : 43
   Posted 4/11/2009 8:50 AM (GMT -7)   
Hi Kate,

I have been a member of this group for about a week and have found it to be very supportive.

My heart hurts for you and your daughter. When my daughter was born she was in ICU for 10 days because she had fluid in her lungs. I thought that was awful!

Stay strong and keep us informed about her progress.

NanaNan

TarheelMama
Regular Member


Date Joined Mar 2009
Total Posts : 28
   Posted 4/11/2009 9:11 AM (GMT -7)   
omg lol... I'm now sitting here saying in my head now what was I going to say???


after scrolling up to re read lol...


I actually wonder if I might have Lyme disease. I've had many attached ticks that have had to be pulled off over the years. The last one was a full one on my head that I don't know how long it had been there.that spot used to scab up a lot for a while but hasn't in quite a while now.

*~*~*Katie*~*~*

 

~Fibromyalgia, Arthritis, Carpal Tunnel Syndrome, Lordosis, Chronic Fatigue, IBS, Chronic Cystitis, Bicornuate Uterus, PCOS, Cancer Survivor, Dyslexia, Memory Loss, Anxiety, Depression, ADD, Kidney Disorder, Kidney Stones, Migraines, Allergies, Eczema, Diabetes, Bulging Disks, Weak Ligaments in Knees~

 

(Insulin, Gabapentin, Cyclobenzaprine HCL, Zolpidem, Rozerem, Hydrocodone ES, Toradol Shots, Steroid Shots)

 

*Don't dream it. Be it!*


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 4/11/2009 9:28 AM (GMT -7)   
Hi, Katie, and welcome!  You know, you should probably be checked for Lyme.  Lyme and fibro have many of the same symptoms.  In the Fibro 101 thread...the second thread on the forum...there is a link to What Else Could It Be?  There are several illnesses that share the same symptoms as fibromyalgia and you should be tested to rule them out.  The other illnesses have medication that can help, too.
 
You sure have gone through a lot in  your life but you obviously are a survivor!  Nothing seems to have stopped you from doing what you really want to do and that is great!
 
I'm so glad you found us and joined in.  I hope to hear more from you.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/11/2009 10:19 AM (GMT -7)   

Hi Again Kate,

I agree with Sherrine, if you think you might have contracted Lyme and have been in a high tick area, get tested.  However.. Deer Ticks are the ones that carry Lyme Disease and they are extremely small.  When they're fully engorged with blood they're only a little bigger than a pin-head.  But I always recommend to our members, if you have the slightest incling (SP) that you might have Lyme, get tested.  One of our fibro family members named Rich is going through Lyme right now and he's been pretty sick.  We adopted him.. because he has so many symptoms that are similar to FMS and we all really care about him.  Anyway, I just saw your post and had to answer.

Take care,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 4/12/2009 6:01 AM (GMT -7)   

Hi Katie and Welcome!

What a little miracle your daughter is. And what a strong mother she has! You have been through much. Yes, you have come to the right place for support- I don't think you can find a better group. Like you said you can come here and complain, be happy, sad, in between, tired, in pain, laugh, you name it and everyone understands.  

Nice to meet you and have a very nice Easter- :-)

GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 4/12/2009 12:24 PM (GMT -7)   

Hi Kate & welcome.  You have been through alot & I am glad you have found us.  It is so nice to have this place to come to when everyone else in our lives is saying: go to work & it can't be that bad.  It is a wonderful thing to be able to stay at home with your daughter.  You have been through so much, you need some loving attention yourself but it is a blessing for your daughter to have you for her mother.  You will always understand & will be her champion.   My daughter has had Fibro her whole life due to extenuating circumstances that led to 13 surgeries.  Her son, Deylan was born with a major heart problem & was on oxygen until he was 2-1/2 years old & his lungs were able to function on their own.  It was such a milestone & we were all so happy that he had reached it.  He is doing very well now.  I hope your daughters' lungs strengthen as well. I have seen the that the human body can come back from what looks like certain death to a happy healthy life.  Your daughter is a fighter & it sure looks like she has what it takes to make a good recovery.  

Please feel free to come here often & read & post & ask questions.  This is an amazing place of emotional recovery.  A place of caring, understanding, knowledge & laughs.  There will always be those here who have dealt with exactly what you are dealing with & can help you through it & if we haven't dealt with it, we can support you through it.  Take care. 

What is your daughters name?  I hope she stays on the road to recovery.  Many soft & gentle hugs, Denise


 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

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