Is anyone ever fully awake????

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Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 4/13/2009 10:56 AM (GMT -7)   
Goodmorning!!  I have a ?...........
 
When your not in a major flare does anyone get a "full" nights rest? 
 
I guess what I mean by "full" is being in bed for at least 8 to 9 hours and don't have trouble getting to sleep and pretty much staying asleep.  And not waking up by your alarm or just on your own and feel so wore out like you've been up all night but your pretty sure you slept all night. 
 
I take, every once in awhile, Ambein to help me sleep and I feel better in the morning, but still wore out and tired sad but when I sleep without taking Ambein I will remember every frickin' dream, thought or movements and when I have to get up I feel worse off than I do when taking Ambein.  When I started with Ambein, when I took on a regular basis about 3yrs ago, it worked great!  Slept real well with no effects like I have now.  I stopped Ambein for at least 8mo.  My other pain meds were making me tired enough to fall asleep.
 
I haven't slept "real good" and awake with full rest in I don't know how long.  I'm getting tired of dragging myself out of bed.  I wish I could get up like I use too.  Ready to go or do anything turn    I use to get up at 6 or 7 on saturday morning with my dh and we would ride our bikes down to the beach and have breakfast and then come home and get a bunch of shopping or chores done.  WOW! shocked   Just wirting that makes me think. Geeezzz!  Just going to work, getting up at 6am is sooo hard. shakehead
 
FYI--I eat right, take my vitamins and exercise.
 
sleepy HUGS,
 
 
 
 
Lori  
 
Dx Fibro 1/2008, gastritis
 
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed


emiluke
New Member


Date Joined Feb 2009
Total Posts : 14
   Posted 4/13/2009 12:38 PM (GMT -7)   
Hi Lori!

Unfortunately, I am never fully awake. Some days I feel better than others. Not being fully awake can have some benefits sometimes! It much easier for me to ignore rude people or comments when half asleep. I don't even notice! LOL smilewinkgrin

Chris tongue
~ Fibromyalgia ~   
 
 On Imovane and Lyrica


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/13/2009 12:49 PM (GMT -7)   
Binki, By the sound of it you have described me over the last 5 years. You might want to suggest to your doctor that you do a sleep study to make sure you don't have SLEEP APNEA or anything related to it.
 
I can't remember what the other sleeping pill I take isbut I do have a little ambien also that I interchange the two sleeping pill. It seems to help me for now.
 
Hara

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/13/2009 1:23 PM (GMT -7)   

Hiya Lori!!

I've never taken Ambien, so I can't relate to that.  But I can relate to the feeling of little sleep.  I have been having a lot of pain at night lately and it's been awful.  Often times I get pain in my legs and back that wakes me up and I can't get comfortable to save my life.  Anyway, I rarely feel rested when I wake up.  I take a half of a Unisom at night.  The doctor told me that would be alright.  If I take more than a half I have a lot of trouble getting going the next day.. sort of like a Unisom hang over.

I'd love to help you with this.. but I think its a common complaint of fibro-mites shakehead

Take care..


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 4/13/2009 2:34 PM (GMT -7)   
Since I started the amitriptylene [very low dose] I fall asleep easily by 11 pm and sleep til 7:30 or 8. (I take it at 6 pm and it starts to make me sleepy between 10 and 11)

It hasn't seemed to make a difference to the fibromyalgia symptoms though...so far anyway.
I have Fibromyalgia, and nothing else!
I take Lyrica 225 mg/day and Tramadol (150mg time-released) and amytriptilene 7.5mg


Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 4/13/2009 2:50 PM (GMT -7)   
Hmmm, fully awake. Maybe 1 day in 3 for a couple of hours in the morning and then its all down hill from there.

I have two different sleep patterns. One at this point takes drugs to go to sleep. If I am working my 3 days a week, I am so mentaly and physicaly exhausted that I go home, eat dinner, try to watch TV and will fall asleep, something on the order of pass out within an hour of laying down. So I am dead out of it by 7 pm, will wake up 2 am, usually go back to sleep in a medium sleep level, wake up almost dead on at 4 am. At this point I have gotten 8 or 9 full hours of sleep and my mind is awake and telling me I have had enough sleep, but its a lie, and its also 4 am and my store opens at 10 am and I don't want to get up, so I take the Klonopin, pain killer, Gabapentin at 4 am and sleep lightly till 7 am.

Then there is version two. I am on my 4 days off a week. I am still totally tired all day, but I lay down early in the late afternoon and this tends to bring me around and I am wide awake till midnight and have to take the Klonopin to put me to sleep, and I still wake up at exactly 4 am with 4 hours of sleep, take the pain killers and maybe light sleep or lay there until 7 am.

So it would seem my choice is either completely exhaust a body and mind that doesn't stand up to it, and sleep, but never regain my energy level, or guard my exertions and rest more, and have a problem sleeping that requires drugs.

I would give my right arm, or at least a finger that would normalize my sleep pattern to where 3 nights a week I am not passing out and 4 nights a week I am a night owl.

Either way though. Full nights sleep or 4 hours, its still dead tired the next day and if I manage to get two hours in the morning I am clear headed I am surprised.

The only time my sleeping patterns have been consistent in 8 years years is on that 100 milligrams of Amitryptelene, Paxil, Klonopin. Then it was real simple. Take the Amitryptelene and Klonopin, wake up 10 to 12 hours latter, stagger out of bed, sit on the step by my door, smoke a cigarette and watch the world spin for 15 minutes. Then you have your choice of feeling like all you want to do is lay down all day, well, unless you get up to a fairly strong dose of some SSRI, then you might get some get up and go for awhile, or drink a load of coffee and that might wake you up and then you can feel stressed out on the caffiene.

But at least you sleep well.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/14/2009 5:58 AM (GMT -7)   
K9 said...
Since I started the amitriptylene [very low dose] I fall asleep easily by 11 pm and sleep til 7:30 or 8. (I take it at 6 pm and it starts to make me sleepy between 10 and 11)

It hasn't seemed to make a difference to the fibromyalgia symptoms though...so far anyway.

      You are right Amitriptylene doesn't do anything for fibromyalgia symptoms. Also Amitriptyline can be very addicting. I know one of my many doctors way back when also gave me Amitriptiline to help me sleep but I was going through a divorce back then. Doc didn't give me anymore because they are very addicting.
 
      I take Flexeril for the spasams that I have in my lower back. I worked really hard yesterday. I was in so much pain when I got home and my son got the brunt of that when I walked through the door. I did tell him I was sorry for yelling at him about some trivial thing and that I was in pain.
 
Hara

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 4/14/2009 7:05 AM (GMT -7)   
Lori. I used to have trouble sleeping and then would be dragging around all day with no energy. I had a sleep study done and they found out that I had minimal/no delta sleep which is deep sleep when your body heals. Dr put me on xyrem eventually after I had trouble with other sleep drugs like ambien. I sleep much sounder now and feel way better during the day. It still takes me several sleep alarm cycles to get myself out of bed but I think that's mostly just me being lazy. Lisa
Life is the ultimate contact sport. Train accordingly and play hard.


lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 4/14/2009 8:46 AM (GMT -7)   
Darn it but didnt you catch me days after Easter-from-hell? I have an intelligent reply for you but just not today....prob not the rest of this week either! hahaha Wait til I recover!
Ok I will try... I have read a scientific journal or a couple studies (one of these days I will copy them to here) but the jist is that people with fibro dont repair their muscle damage because they cannot go into those deeper levels of sleep...what are those levels called? Someone else referred to them.
That is the same reason we wake up still tired and not refreshed and the same reason why we are so stiff and in pain in the morning. Other people are repairing tiny muscle tears etc that happen during a normal day while they sleep...something about hormones and such, if you cant go to that level of sleep your brain wont release them.
I had multiple sleep studies that diagnosed this in me long before I was dx with fibro, thats why I was interested in the connection and studied up on it.
I try to take sleeping pills once in awhile to help make sleep more restful, b/c I often fight this feeling thinking, "If I only had more energy..." But the truth is my body hurts and is so stiff, I'm limited by that too. If I DID do more, I would really be suffering at this point. So I take my cues and take many cat naps just to get through the day.
My doc wouldnt prescribe any uppers for during the day. I imagine they would make me dizzy and sick anyway since caffeine and sugar does. I think exercise would wake me up, pump the ol ticker and get me more alive and awake. I am going to give that a cautious try!
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibro, Endo, Migraines, Asthma, CFS

Topamax, Morphine, Cymbalta, Crestor, Resoril, Loestrin, Treximet

B12, Magnesium, Melatonin, Omega3


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/14/2009 9:21 AM (GMT -7)   

Just gental stretches. Don't do any Cardio it will hurt you more. Been there done that.

 

Hara


solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 4/15/2009 8:06 AM (GMT -7)   
The reason my sleep specialist put me on xyrem is just for the reasons that Philly was talking about. Xyrem promotes delta (deep) sleep, the time when we heal and re-energize. Lisa
Life is the ultimate contact sport. Train accordingly and play hard.


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 4/17/2009 4:47 PM (GMT -7)   

I can certainly relate to the un-restful sleep with remembering every dream (I laughed when I read that sentence)! 

I still have not found the answer.  I have been afraid to take Ambien, because I have a history of sleepwalking and was afraid I would go drive the car around or something in my sleep. wink

Once, I woke up to my husband yelling at me....I was over him, punching him in the face, yelling "Nooooo!!".  I have still not lived that one down!  LOL!  tongue


Kerri

Fibromyalgia since 2007

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 4/17/2009 5:05 PM (GMT -7)   
There goes Grailhunter, citing passages from my diary, again. I can't seem to get a post in before she says it. The deep sleep levels Theta and Delta, where repair takes place are missed by fibromites. All of this started for me with a sleep disorder where I was trying to care for my firstborne with colic. Seems he was allergic to about 30 things we were unaware of. So he slept for two hours, screamed for two hours. This went on until he was three. So, it got so I was unable to fall into deep sleep b/c I would be jolted awake, as soon as I got to a deep level of sleep. Therein began the problem.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/17/2009 6:00 PM (GMT -7)   
I finally did my C-Pap sleep study. I felt really good when I woke up. I was bouncing around and happy. Two hours later I was on the bed laying down because I was exhausted. Darn it anyway.... I can't wait to get my machine and use it a little more often.
 
HARA

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 4/18/2009 5:34 AM (GMT -7)   
Hey there Hera; Since the only Pap test I'm aware of has nothing to do with sleep, quite the opposite, really, could you explain to me a bit what C-Pap study is. I wasn't ever as happy as you sound after the other pap study.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/19/2009 3:24 AM (GMT -7)   
tyno3, A C-Pap is a maching where people put on a mask with forced air to help them breath better and sleep better. Yes I'm up at 3am AGAIN......  I for one do NOT wish to die in my sleep only on my own terms.
 
HARA

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