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EmberKitty
Regular Member


Date Joined Mar 2009
Total Posts : 65
   Posted 4/14/2009 10:19 AM (GMT -7)   
Some of you may remember last week I was pushing myself way beyond my limits in preparation for a retreat this past weekend.  I made it through everything, and the weekend was beyond wonderful!  It was difficult forcing myself to pick and choose the activities I really wanted to do while still balancing my physical needs and limitaitons.  The weekend required a ton of walking, including a trip to the beach that is about .5 miles each way on a steep hill.  Luckily they provided cars for those who needed it, and I took advantage of that service.
 
There were also several reiki practitioners and massage therapists available to those who needed it.  I went in twice and each time left feeling so much better.  There is one guy who worked on me that I swear is amazing!  I found out that he lives not too far from me, and he has offered to heal and massage me whenever I want.  He's not "licensed" or formally trained, but he knows his stuff and really knew how to work on someone with chronic pain.  There was another woman there who even taught my hubby some massage techniques to use at home!
 
I am still pretty sore after all the activity, but I got to participate in so much this past weekend that it is worth it to me.  I refuse to let this DD take over my life!
 
I also had my first physical therapy appointment yesterday.  It was mainly the assessment and intake interview so she can come up with a treatment plan.  Kelly is so wonderful, she specializes in people with fibromyalgia so she understands and is very cautious with her touch and manipulations.  I am excited to see if this therapy will give me the ability to be more active again.  I really miss the impromptu hiking trips hubby and I used to be able to take.
 
I am now more determined than ever to find a way to beat this thing back into submission.  I realize that I may always have flares, and I may always have more pain than most people, and at the same time I am going to do whatever it takes to minimize it's impact on what I want to do.
Ember aka Jamie
 
Diagnosed 3/09 after 10 years of trying to find an answer.
Rx: Gabapentin 1 1x/day, Valium 1/2-1 3x/Day, Tramadol 1-2 As Needed, Dilaudid 1 as Needed
Other Therapies either trying or will try soon: Yoga, PT, Tai Chi, Acupuncture, Massage
 
"A lotus is a flower that grows in the mud, the deeper the mud the more beautiful the lotus blooms" Zen Saying
 
I practice random acts of kindness and senseless acts of beauty!


Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 4/14/2009 10:44 AM (GMT -7)   
Thats awesome. Sounds like it was a very fruitful trip. I am glad you had fun!
Fibromyalgia, Hashimoto Thyroid disease, Chronic pain.
 
 All things are possible thru Christ Jesus who strengthens me


Binki
Regular Member


Date Joined Jan 2009
Total Posts : 386
   Posted 4/14/2009 11:01 AM (GMT -7)   
Great Jamie! It sounds like you got just what you needed. I'm happy for you. :-)
Lori  
 
Dx Fibro 1/2008, gastritis
 
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 4/14/2009 11:14 AM (GMT -7)   
Jamie, you are on your way!  Attitude is half the battle.  You just got sick of being sick and ventured out and did what you wanted to do.  That's wonderful.  I know you are sore but if you continue with the moving, the soreness will lessen and pretty soon you will see that you can do things without being as sore as you used to be.  This is what happened to me.  I still have pain but I've learned what I can do without causing extreme pain.  That's what you are discovering now.  I'm very happy for you!  yeah
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 4/14/2009 12:28 PM (GMT -7)   
This last summer I went on a family vacation to the oregon coast (I was very excited cause it was my kid's first time to a beach) and we decided to stop at a famous fall in oregon to camp and hike the first night. Well I went hiking knowing I shouldnt have done it, it was several miles of uphill walking that caused severe pain, but once we got to the fall, it was so beautiful so it was well worth the pain, but when we got back to the camp sight, I couldnt move, and this was just the first day out of a week long trip. And once we got the coast, we had a wonderful spot, cause right behind us was the beach, but to get their we had to walk up a very steep hill made of sand, and coming back the other way was even more steep with more very soft sand, I thought I was gonna die from the pain, and it made me depressed cause my body made me so miserable when I should of been having a great time. And of course nights are freezing by the coast, and all I had was this small heater that I put right next to me and to keep me and my daughter warm, but I didnt wanna fall aslaap in case the heater fell over, and of course my legs ached from the coldness. I'm so jealous of people that can just go out and do all these physical things and I have to limit myself and of course my family doesnt understand, they just think I'm lazy, so of course their was some fighting, just isnt fair..... but I did have "some" fun, especailly when we went to the zoo on the last day, I really love zoos. This summer we're just going back to that fall to camp again and then back to that zoo, so hopefully it wont be too bad since it will just be a weekend thing, but I'm not looking forward to hiking again.

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet), and Biofreeze  
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, marsupilized bartholin gland cyst
 
"Never go to a doctor's office whose plants has died."
 
 


EmberKitty
Regular Member


Date Joined Mar 2009
Total Posts : 65
   Posted 4/14/2009 1:10 PM (GMT -7)   
What fall was it? I live in Washington right on the Oregon border so I am pretty familiar with the area. If you want I can even recommend some fun stuff in the area that may be less taxing on you yet still fun for everyone. It really sucks that your family isn't more understanding. I feel I am very lucky in that the people I am closest to not only understand, but also go out of their way to accomodate me.

I thought I was going to die when I found out we were assigned beds on the second floor of one of the barracks this past weekend because that meant having to haul all our gear up and down plus all the up and down the stairs throughout the weekend. Luckily there were enough of us in our group that I was able to help sort stuff out at the top or bottom while they all made the trips with the bags. Also, if I only needed to go back to the bunk to get something there was always someone to volunteer so I didn't have to make too many extra trips. The stairs were still tough, and even now my left knee is acting up horribly from them I can't imagine how bad it would be if I had not had all the help I did.
Ember aka Jamie
 
Diagnosed 3/09 after 10 years of trying to find an answer.
Rx: Gabapentin 1 1x/day, Valium 1/2-1 3x/Day, Tramadol 1-2 As Needed, Dilaudid 1 as Needed
Other Therapies either trying or will try soon: Yoga, PT, Tai Chi, Acupuncture, Massage
 
"A lotus is a flower that grows in the mud, the deeper the mud the more beautiful the lotus blooms" Zen Saying
 
I practice random acts of kindness and senseless acts of beauty!


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 4/14/2009 11:10 PM (GMT -7)   
Where in Washington do you live Emberkitty?? I live in the tricities, not too far from oregon.

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet), and Biofreeze  
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, marsupilized bartholin gland cyst
 
"Never go to a doctor's office whose plants has died."
 
 


nmma
Regular Member


Date Joined Mar 2009
Total Posts : 48
   Posted 4/15/2009 3:56 AM (GMT -7)   

sounds like an awesome time !

good for you guys !

 


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 4/15/2009 4:13 AM (GMT -7)   
Twenty-six yr. old single mother of two. I take my hat off to you. keep going.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 4/15/2009 8:26 AM (GMT -7)   
I'm so glad you had a great time Jamie!!! It is all a balancing act with fibro, push a little to increase what we can do but not push so much that it puts us in a flare.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

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