I am new, recently diagnosed, and the Rheumy told me that I need to think of another profession?

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Singing4Life
New Member


Date Joined Apr 2009
Total Posts : 5
   Posted 4/15/2009 3:50 PM (GMT -7)   
Hi everyone,

I'm new here, and before I say anything I just wanted to say thank you ahead of time if you plan on reading everything.

On Monday, 4/13/2009, I saw the Rheumatologist for the first time. My Neurologist wanted me to see this doctor because my ANA came back positive with a titer of 1:80 (I know it's low), my Vit. D is very low, and my Pyruvate is extremely high. Not to mention there are some other lovely things going on.

This is the 12th doctor I have seen since July 2008 after many months of trying to figure out what the hell is going on with my body. I have to say, she was the nicest of all the doctors I have seen, she didn't rush me, and she wanted to know everything that happened. The only downfall is she kept asking what I did as a profession, how did I fall into my profession, and what inspired me to choose this path?

Well, I am a musician, and I went to school for classical singing. I still want to go back to school for my Master's in Opera Performance. I'm only 24, and I have so much that I want to do with this passion of mine.

My Rheumatologist said to me, "The reason why I'm asking you all these personal questions about your singing and profession is because I feel that you need to start thinking of a plan B soon. I feel that your singing should become a hobby instead of your main focus". To make sure I heard her right, I asked her, "Well, let me make sure I understand you, are you saying that whatever is happening to me now, will get worse?" and she said "Yes". At that moment she told me that she believed that I have Secondary Fibromyalgia, and it was possibly caused due to stress and an autoimmune disease such as Raynaud's, Sjorgen's or Lupus.

Right then and there, I felt like my world was kind of collapsing. I knew that there was something wrong with my body, but I didn't realize it could be to that extent. I am Epileptic, but my seizures are controlled with medicine, so I'm very fortunate for that. However, I was also hurt that the doctor would say something like that to me about the love of my life. Personally, I don't know if I really agree with her diagnosis of Fibromyalgia, but then again maybe I don't know what it's really about.


I've made a list of my symptoms that I've been experiencing since July 2008, and I would appreciate if anyone could tell me if it does sound like Fibromyalgia or not?

Symptoms from July 2008 to Present

1. Stiffness in the back and front of the neck.
2. Stiffness in and around the jaw line.
3. Difficulty opening the jaw due to severe muscle spasms within the masseter and temporalis muscles.
4. Sometimes extreme amount of pain caused from the spasticity.
5. Visual changes which includes: blurry and sometimes double vision; “flashing lights” are seen in ambient lighting; when the facial muscles are spastic, there is a black dot/smudge in the right eye, which will last during the episode.
6. Heat intolerant: showers; exercising; walking in the sun above 70 degree temperature; sun bathing; heated car seats.
7. Fatigue
8. Weakness
9. Loss of Balance
10. Sweating profusely at nighttime, and not knowing about it until I wake up in the morning, and I find myself drenched in sweat.
11. Loss of short-term memory
12. Mood changes: including, depression; paranoia; trouble sleeping at night; hard time concentrating.
13. Symptoms magnified dramatically about one or two weeks prior to my menstrual cycle.
14. Spasms in the knees to the point where it can be debilitating.
15. Fasciculations throughout my whole body.
16. Vibrating/buzzing sensations mainly at the base of my feet, the back of my knees, and my fingers.
17. Tingling sensations in my toes, feet, and fingers. This feeling is more similar to tiny ants crawling on your skin.
18. Burning sensation on my left ankle.
19. Cooling sensations on my left thigh.
20. Eventually, spasms began to occur in my forearms, thighs, feet, and hips.
21. Spasms felt in my colon, which were very painful.
22. Spasms in my upper mid back, which make it difficult for me to breathe. It feels like there’s something restricting my chest cavity and diaphragm.
23. Urine incontinence
24. Chest pain, specifically near my heart.
25. Electric sharp-shooting pain running across the back and the front of my head.
26. Pain behind my eyes to the point where I have to close my eyes to try and make it feel better.
27. Sensitive to cold. I get cold very easily.
28. My fingers and toes will turn blue when I am very cold.

Anyway, I thank you again for taking the time to read this, and I would appreciate any help that you can give me.

:-)

Grailhunter
Regular Member


Date Joined Nov 2008
Total Posts : 159
   Posted 4/15/2009 4:44 PM (GMT -7)   
I don't know what to say except WOW!

Other then that, your Rhuemy might be jumping the gun. I am kinda surprised she didn't take it a bit farther and recommend you find a good street corner to hold your cup and pencils. Or maybe Wal-Mart greeter? Selling on Ebay? Or maybe training for sitting at a desk all day. Nope, we can't sit all the time. Uh, something where your standing all day. Nope, can't do that either.

Your 24, give this some time to sort itself out. I have been to about 30 Doctors in 15 years and I can tell you that I have always accomplished far more for myself then they did for me. Give it a chance to learn where you are, and what you can do for yourself. Find your real limitations after you have something of a handle on it.

Some of that list of symptoms are addressable by the way. The neck and jaw stuff for instance. Frequently, jaw problems are actualy neck issues and neck issues are back issues. Maybe the back issues to whatever extent that are limiting your breathing can be treated. 90 percent of my neck and jaw problems went away once I started sleeping deeply. Maybe your suffering diaphragm spasm from your back. Lots of very well known singers have to deal with jaw problems. Sort of a potential trade hazard.

Much of my chest and back issues constricting my breathing have subsided since I started doing stretching exercises that work better for me. I still can't drive a car without feeling like my breathing just won't get regulated right, but its a whole lot better then a couple of years ago.

Give her a chance if you think you can work with her to find out what this secondary fibro related to whatever is and go from there.

Thats quite the list, but I still think you have to give it some time to sort things out and find out where you really are after you have found out more and incorporated whatever therapies or drugs, or whatever you end up doing to deal with this before you just give up on your passions.

I am still trying to figure out what makes her think this is going to get worse all that fast at 24 when your problem isn't really nailed down or being treated yet. I was in horrible shape at 35, got allot better with allot of decent therapies until around 45 and then went down hill again. You haven't even figured out for sure whats going on or what options you can use to treat it.

Maybe I am just to unrealistic about the whole concept. Maybe this Doctor figures that if you re-train into something your not stressing out to work, not standing allot, not running around under stress, plus all the jaw work, things will work out better.

The question is what do you want to do that makes you happy, and have to taken the time to see if you can pull the reigns back enough that you can do what you want that makes you happy and still take allot of the load off yourself.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.

Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 4/15/2009 6:32 PM (GMT -7)   
If you can find a way - do it!! Unless your singing is making you worse, don't give it up. You don't even have a firm diagnosis yet. I'm not sure why your doc thinks you may have to give it all up. Loving what you do helps you through the difficult times. Next time you see the doc, ask why she thinks you should change careers and what, specifically, she thinks you'll be able to do. She may have misconceptions about singing as a profession.

I wish I could sing, the fake people on the Rock Band video game Boo me off the stage!

That said, many of us have had to change professions so a "plan B" isn't the worst idea. I used to be an engineer but brain damage from Lyme Disease and my ever present fog made me change careers.

I had many of the symptoms you listed when first became ill. I was eventually diagnosed and treated for Lyme Disease and many of these symptoms went away. Negative tests do NOT mean that you don't have Lyme. Check out the info on the Lyme forum and see if your symptoms fit.

Good luck.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40565
   Posted 4/15/2009 7:53 PM (GMT -7)   
Welcome to the forum Singing4life,

I don't know what posessed her to say that it is going to get worse. There are ways to keep it under control, with medications, exercise and proper sleep and diet. So don't give up on your dream.

You do have many fibromyalgia symptoms though. But mine leveled out when I started the malic acid/magnesium. I seem to be in some type of remission. I am not pain free, but I can handle it. I am presently looking for a part time job after not working for six years. I hope that I can do it. Sometimes I get low self esteem and figure that it wont work out, but then I say take it one day at a time and see what happens.

So take this one day at a time and see what all is going on with your body before you make any life altering decisions. I hope that you feel better and that you can continue singing.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 4/15/2009 8:27 PM (GMT -7)   
You said this was a neuro? I'm assuming that they did an MRI on the brain? I ask because there's several things that could cause these signs.

Most of those symptoms are manageable via medication and lifestyle changes. I would encourage you to ask the questions suggested as to what she seems to think is going to happen if you continue to sing.

Unless she has some exceptional reasons, I would suggest following your passion and continue singing. This is not something that will be able to be walked away from. You will always have the drive to sing and I encourage it. For me it's something that allows me to relieve stress. Regardless of what may or may not be wrong, stress will make anything worse.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/15/2009 10:58 PM (GMT -7)   
Hi Singing!!

And welcome to the family! I must agree that your rheumy was out of line with her comment about your career. There are so many areas where it just doesn't make sense like... fibromyalgia is not supposed to be progressive if you believe the medical literature (most of us aren't sure we agree with that one); like she has no idea whether or not yours will get worse; like the idea of Primary and Secondary is still up for debate; and as long as you have the energy to work and can manage your other conditions, personally I feel she has no right to tell you what to do with your life.

Now, if you were in heavy construction then she may have a good point there. I would guess there is plenty of exercise in your singing and musical aspirations but if you truly love it then Do It! If you find out later that it's more than you can handle, at least you tried and can change then. But until then You are the one in charge of your life long dreams!

Your symptoms seem pretty 'normal' for fibromyalgia and aren't shocking to most of us. We all have many conditions as part of fibro. Please take some time and read Fibromyalgia 101 that is listed at the top of the FIbromyalgia Forum page. There is a huge list of symptoms in there that you will relate to.

Please do keep us posted on how you are doing!!
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
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(")_(")


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 4/16/2009 8:03 AM (GMT -7)   
Hi Singing and welcome. I'm surprised she didn't rule out lupus and any other auto-immune disorder before giving you a dx of fibro since fibro can mimic them. Most of us have to go through a protocol of testing and rule out everything else before we even hear the word fibro from our docs. I hope that everything else comes back negative for you.
 
Don't give up your dream cause she said that to you. Who knows even if you do have fibro you may be able to manage it and make all your dreams come true. I will never give up hope that they will get to the bottom of fibro and come out with better meds for us or even a cure.
 
Read, ask questions and we will be here for you.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
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Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 4/16/2009 8:35 AM (GMT -7)   
Hi, Singing, and welcome!  Well, sing 'til your hearts content!  I fully agree with everyone that has posted.  Live your life the way YOU want to live it.  Don't let anyone tell you that you can't do something.  You never know unless you try.  I've been told not to do certain things because of my health issues but I do them anyway.  It's your life and singing is your passion and I bet you are fantastic at it!  Continue with your education.  It's wonderful to have a talent that brings you such joy.  The joy of singing will lessen the stress.  (I play some musical instruments and when I get stressed out, I head for the music!)  The deep breathing exercises you do and the way you breathe to sing will help move the muscles in your diaphram.  I took voice lessons many years ago and the breathing techniques are great!  So, do what you want and enjoy your life!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 4/16/2009 11:46 AM (GMT -7)   
Gosh Singing,
I generally go against the grain here and I'm going to do that today, too. Your doc said to start thinking about plan B, not totally give up singing. I personally know two singers (amateur, choir) who have had to stop singing because the fibro got into their throat singing muscles. They lost their range and it became painful to sing. This could happen to you so an alternative plan would be a good thing. You will need to support yourself and if you can't sing you are in trouble. Perhaps you could teach? Not the same, but at least you would be using your talent to support yourself.

All of your possible disorders require a lot of rest and recovery time in your daily life. This may cause a hindrance in pursuing a career. Please think long and hard about what your doctor has said. She didnt' just "throw this out there" in passing. She is looking out for you and your future and trying to be a partner in your health care. I'm sure she didn't say this lightly and wants you to start looking at alternatives for your life. I'll remember you in my prayers. You have some difficult decisions to make.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 4/16/2009 12:20 PM (GMT -7)   

Golly, Jeannie, I'm sorry to hear about those two people.  I've never heard of that before.

All I know, Singing, is that I've had fibro for 22 years and still sing a lot.  I've done a lot of choir and solo singing (nothing professional) and the fibro hasn't bothered me.  I love it and music makes me happy and less stressful.  Jeannie is right in that it is always good to have a back-up plan for everything in life. I usually do...just in case.  But, I do personally think that a doctor telling a 24 year old to give up on their dream, when they aren't having a problem, is a little over the top.   

Sherrine 



Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 4/16/2009 12:23 PM (GMT -7)   

Hi Singing,

I am just finishing my master's degree in psychology.  Considering the extensive amount of work involved in achieving an advanced degree, I would be devastated if someone told me that I could no longer pursue my dream and needed to think of something else.  That said, I know the work involved in the master's program has made my fibro worse (for now).  I don't know about other programs - maybe I am at a sadistic school!  I am on 4 research teams, working on 6 or 7 research projects plus my thesis, teaching and taking classes.  etc.  Maybe your symptoms are worse due to the work load, too.

I am taking a break now between master's and PhD and am hopeful that will help the symptoms lessen and become more managable.  Maybe now that you are finished with your degree, the extra time you have can be used to rest and recouperate.   And while you are thinking about plan B, maybe that means you can modify the way you approach your singing career - not give it up completely. 

Good luck,

Sue


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 4/17/2009 5:50 AM (GMT -7)   

Singing,

It sounds like you have gone down a path very familiar to many on this forum. Unfortunately the only true way to dx FM is to rule out everything else first....

My advise is going to be short and direct. I would find a new Rheumatologist. I am firm believer in trying to continue to follow the path you have envisioned for your life. You need a doctor that will support that and do everything they can to aid you in achieving this. You do not need to hear about the things they believe you will not be able to do, you need a doctor that will help you find the help to continue in your chosen path.

You have FM. Your path has a new obstacle, but it is not washed away. You can still reach your destination with a little help and determination.

Good luck!


JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/17/2009 6:25 AM (GMT -7)   
Hi Singing..
I'm with everyone else.. do what YOU want to do!! If you can keep singing DO IT!! I gave up my job for about 6 months and now I'm ready to go back to work. I can't wait. I'm giving it another try and I'll see how I do. But the last thing I want to do.. or I want anyone else to do is give up.
You'll have to learn to control your fibro, that's what I'm working on right now. One of our fibro family members has a tag line that says, I have fibro but it doesn't HAVE me. Well, that's a great attitude and that's something we have to do.. have a good and positive attitude and this rotten syndrome will not get the best of us.
I also wanted to welcome you to the forum. As you have already witnessed this is an awesome group of folks that really care.
Take care and keep up the fah-lah-lahs!!!
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Agmaar
Regular Member


Date Joined Jan 2009
Total Posts : 376
   Posted 4/17/2009 8:17 AM (GMT -7)   
I think there's another perspective on this and I feel like Jeannie does. This was a tough topic for you R. to bring out yet she's willing to discuss it and help you with it. Do you really want a R. that's only going to tell you what you want to hear?

No one is asking you to totally abandon music. What your R. has done is to start the process of getting you out of "all or nothing thinking". Black and white thinking if you will. You know, "I only want to do this one thing and that's it. If I can do that I'll be happy and feel fulfilled. If I can't do that one thing, I'll be unhappy and unfulfilled."

As this plays out and, working with your R. you start to manage symptoms, I'd encourage you to be open minded and be open to the possibility that there could be related things that you could do. Your future could have a wide variety of good - and realistic - options for you - and you would never explore them if you get locked into "all or nothing thinking".

Like Dagger, I know how disappointing all this can be.


Rich
 
Lyme, anxitey, depression, chronic C. Pnuemoniae
 
"... expect the unexpected ..."  (O. Wilde)
 
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)
 
 

Post Edited (Agmaar) : 4/17/2009 9:22:27 AM (GMT-6)


KerriH
Regular Member


Date Joined Mar 2008
Total Posts : 316
   Posted 4/17/2009 4:23 PM (GMT -7)   
Hello Singing,
 
If your Fibro diagnosis is accurate (and it may be...it's a crazy disorder w/ a laundry list of symptoms), it is important to understand that this disorder affects each person who has it differently. 
 
When I was first diagnosed, I was petrified that I would have to throw in the towel and spend the rest of my days on the couch.  But, it never happened.  I still work full time, take care of my two children, joke with my husband, grocery shop, cook, read, etc.  Sometimes I have to do these things through a hell of a lot of pain and many times the fatigue becomes almost unbearable.  But, I make the decision every day to stay engaged in life and continue to do the things that matter to me.  You can too.
 
It is important to have a doctor who understands, but there needs to be a healthy balance between giving you the empathy and understanding that you need and encouraging you to find treatment that works...and that helps you continue to do the things that you enjoy. 
 
I found that my struggle with Fibromyalgia made me discover just how strong I really am.  You will find your inner strength too. 
 
Keep singing!!

Kerri

Fibromyalgia since 2007

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 

 



lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 4/17/2009 4:57 PM (GMT -7)   

I'm going to have to chime in here with Jeannie and Rich.  You should definitely follow up with progressive testing to rule out things like Lupus and other autoimmune problems.  Fibro often accompanies them.   Gather information from every aspect.  I don't think you have to "give up" your passion, but you may need to re-format it in the future, and if you can be somewhat prepared for that, it will be a blessing. 

Your rheumie sounds like someone who is trying to be open and honest with you - if that continues in a positive way - and she is willing to back up her statements with reasonable facts & theories, as you continue to question her assessments - I don't think you can ask for much more.

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn
 
 


Singing4Life
New Member


Date Joined Apr 2009
Total Posts : 5
   Posted 4/20/2009 10:49 AM (GMT -7)   
Hi Everyone!

Thank you so much for all of your responses. I agree with all of you, and I haven't given up my dream to sing. I guess it was just a little devastating to hear the doctor say something like that to me. In the back of my mind I had been always thinking of a plan B, but I guess it was more of a reality check when the doctor herself said, "This might be a good time for you to think of a plan B for a career choice".

Anyway, I just want to thank you all so very much for taking the time to read my post, and for all of the support and advice. You have all been really great to me. I just recently went for a blood test which will determine if there are some other things going on, but I will keep you all updated.

Thanks again! :-)

bigsanfer
Regular Member


Date Joined May 2008
Total Posts : 57
   Posted 4/20/2009 12:17 PM (GMT -7)   
Hi Singing... I know Im a little late for the post but I have a similar situation where my doctor basically told me to quit my dreams. I was diagnosed with lupus at 14, and I am now 16. I am now experiencing signs of Fibro as well and my rhuemy thinks I might have secondary Fibromyalgia. Before I was diagnosed I played basketball and was very serious about it. My plan for my life was to go to a Division 1 college on a scholarship and play basketball. Many coaches told me that I was on the right track to do this and that I was one of the top in my grade in my state. I started noticing symptoms such as joint pain, raynauds, the neck pain you explain, and heavy fatigue. After many doctor visits I was sent to a rhuematologist where they checked my ANA which was very high at the time. Later that month I was diagnosed with lupus. The first question I asked when I was diagnosed was if I was ever going to be able to play basketball again. She told me no. I never gave up though. I still went to school and basically pushed through the pain. The first few months were the worst, but once I was on the right medications my symptoms got better. I began working out again and my goal was to get healthy enough to at least be able to play varsity basketball my sophomore year. Since I never lost hope I was able to do this, and I never missed a practice and went to school everyday as well. My goals have changed a little bit though, I am not planning on getting a scholarship for basketball now but I do want to play varsity basketball for the next two years. If I were to get an offer for a smaller college I would not let my disease stop me! I hoped this helped! Good luck, don't give up!
Medications: Prednisone 5mg. Plaquenil 300mg. Methotrexate 12.5mg. Naproxen (for pain). Multivitamin. Calcium. Fish Oil. Vitamin D. Flaxseed oil. Folic Acid.
15 years old. Lupus, and Raynauds.


Singing4Life
New Member


Date Joined Apr 2009
Total Posts : 5
   Posted 4/20/2009 1:33 PM (GMT -7)   
Hey bigsanfer,

First of all, it's never too late to reply to a post, and I was really happy to hear from you. I'm sorry to hear that you were diagnosed with Lupus and Raynaud's. I can't even imagine what that must be like, and especially at such a young age. I'm really happy that you didn't give up on your dream and hearing your story only inspires me to keep pushing harder onto mine.

My titer was low, it was 1:80, but the rheumatologist was suspecting there might be one of the three autoimmune diseases: Lupus, Raynaud's, and/or Sjorgen's along with Secondary Fibromyalgia. She recommended that I have a special blood test to rule these out, and I am anxiously awaiting the results. Either way, I will keep everyone updated with the news.

However, I really do appreciate the support, and it was great hearing your stories. Thanks again, you made my day. :-)

nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/20/2009 8:56 PM (GMT -7)   
Dear Singing,
I'm a 53 yr. old R.N, mother of three daughters,wife, and grandmother to three beautiful grandchildren. At age 16 I had to begin wearing a Milwaulkee spinal brace and did so for 5 yrs. for severe sciolosis. I have Lupus, Sjogren's and Fibromyalgia. I've had both knees replaced and just had my 4th cervical spinal surgery last year. I was forced to retire this summer from nursing because of my spine. Do not ever give up your dreams. Sometimes that is the only thing that can get you through the awful pain. If I had not been a little "stubburn" I would not be where I am today. Having a plan B is smart for anyone. When I couldn't do the physical part of nursing I became and office manager and that allowed me to keep my hand in medicine. If worse comes to worse you could teach singing or become a voice coach and inspire other young people to follow their dreams. I know this is all so overwhelming but try to take things one at a time. And read, read, read about your diagnosis because the doctors don't always tell you everything. This is a wonderful support group. I'm a fairly new member but I have had a lot of people give me lots of good advice and other options to think about. Right now I'm in an awful flare but knowing that it will not last forever gets me through the day.I wish you luck and will say a prayer for you as I know, as everyone here does, how hard all of this is an having the feeling that your life is over. You've hit a bump in the road....you just have to go along with the ride sometimes but never give up your dreams.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 4/21/2009 2:34 PM (GMT -7)   

Hi Singing and Welcome-

Lots of great advice given already, but wanted to welcome you here to the site and hope you get a diagnosis soon. I would not give up your dream unless it really starts to become a problem. :-)

Nice to meet you!

Jill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  

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