Golly, Jeannie, I'm sorry to hear about those two people. I've never heard of that before.
All I know, Singing, is that I've had fibro for 22 years and still sing a lot. I've done a lot of choir and solo singing (nothing professional) and the fibro hasn't bothered me. I love it and music makes me happy and less stressful. Jeannie is right in that it is always good to have a back-up plan for everything in life. I usually do...just in case. But, I do personally think that a doctor telling a 24 year old to give up on their dream, when they aren't having a problem, is a little over the top.
I am just finishing my master's degree in psychology. Considering the extensive amount of work involved in achieving an advanced degree, I would be devastated if someone told me that I could no longer pursue my dream and needed to think of something else. That said, I know the work involved in the master's program has made my fibro worse (for now). I don't know about other programs - maybe I am at a sadistic school! I am on 4 research teams, working on 6 or 7 research projects plus my thesis, teaching and taking classes. etc. Maybe your symptoms are worse due to the work load, too.
I am taking a break now between master's and PhD and am hopeful that will help the symptoms lessen and become more managable. Maybe now that you are finished with your degree, the extra time you have can be used to rest and recouperate. And while you are thinking about plan B, maybe that means you can modify the way you approach your singing career - not give it up completely.
It sounds like you have gone down a path very familiar to many on this forum. Unfortunately the only true way to dx FM is to rule out everything else first....
My advise is going to be short and direct. I would find a new Rheumatologist. I am firm believer in trying to continue to follow the path you have envisioned for your life. You need a doctor that will support that and do everything they can to aid you in achieving this. You do not need to hear about the things they believe you will not be able to do, you need a doctor that will help you find the help to continue in your chosen path.
You have FM. Your path has a new obstacle, but it is not washed away. You can still reach your destination with a little help and determination.
Post Edited (Agmaar) : 4/17/2009 9:22:27 AM (GMT-6)
Fibromyalgia since 2007
"Tragedy is a tool for the living to gain wisdom, not a guide by which to live." Robert F. Kennedy
I'm going to have to chime in here with Jeannie and Rich. You should definitely follow up with progressive testing to rule out things like Lupus and other autoimmune problems. Fibro often accompanies them. Gather information from every aspect. I don't think you have to "give up" your passion, but you may need to re-format it in the future, and if you can be somewhat prepared for that, it will be a blessing.
Your rheumie sounds like someone who is trying to be open and honest with you - if that continues in a positive way - and she is willing to back up her statements with reasonable facts & theories, as you continue to question her assessments - I don't think you can ask for much more.
Hi Singing and Welcome-
Lots of great advice given already, but wanted to welcome you here to the site and hope you get a diagnosis soon. I would not give up your dream unless it really starts to become a problem.
Nice to meet you!