Diagnosed with Fibromyalgia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Lefty85
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 4/16/2009 11:31 AM (GMT -7)   
I posted in here a week or two ago for the first time, after being told by my doctor and several other people that they suspected I had fibromyalgia.  On Tuesday I saw a rheumatologist for the first time (after having extensive bloodwork done) and she diagnosed me with fibromyalgia.  I am now on a total of five medications: diflunisal, pamelor, flexiril, percocet, and celexa.  It just seems like a lot.  I've been feeling sick moreso than usual since I've been taking the diflunisal, which I just started, but I'm not sure if the medication is what's causing it, or if it's because my anxiety has been through the roof lately.  I also feel like the pamelor has been disrupting my sleep more than usual, but, again, it could also be the anxiety. 
I've been struggling at work lately, which is the main reason why I'm posting.  I've been doing factory work since I stopped going to college for financial reasons.  My job involves standing for eight hours, as well as constant bending and lifting.  In the past several months, I've had many days where I can barely make it through, even with my pain medications.  My immediate supervisor is aware of my situation, but doesn't do anything.  I'm just wondering how other people deal with days that they really aren't feeling well.  I feel like I'm torturing myself sometimes, but I can't afford to lose my job, and the company has a really strict attendance policy.  I realize that, ideally, given my diagnosis, this job isn't something I should be doing long-term, but, with the way the economy is right now, I don't think that finding another job is likely.  I'm just wondering if anyone has any suggestions or advice.  Thanks. 

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 4/16/2009 1:50 PM (GMT -7)   
Hi, Lefty, and welcome!  Boy, I wish I had an answer for you.  I don't know if I could stand all day and lift all day.  As a matter of fact I KNOW I couldn't do that!  You are amazing!
 
You are taking a lot of medication but I do use malic acid/magnesium supplements.  They have helped me with pain and fatigue.  Check out the Fibro 101 thread...the second thread on the forum.  There is a link in there all about malic acid/magnesium supplements and how they work in the body.  They don't work for everyone but many on this forum have gotten some relief.  You might want to ask your doctor and pharmacist about this to make sure it wouldn't interact with what you are taking.  I asked my doctor and he said I would be wasting my money.  I then asked it they would hurt me and he said they wouldn't so I tried them and he was wrong!  They do help.  So, maybe this could help you a little.
 
Please let us know how you are doing.  We really do care.  Hopefully things will perk up in the employment industry and you can find something that is less physical for yourself.  I do understand where you are coming from, though.  It's a tough situation.  I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


poodles
Regular Member


Date Joined Mar 2009
Total Posts : 180
   Posted 4/16/2009 3:43 PM (GMT -7)   
Welcome.
You are a very strong person.
I wish I could tell you something to help you, but I gave up work
because of the fibro.
Anyway, wanted to tell you how sorry I am to meet you...like this,
and how much I look forward to knowing you.
Vickie

Fibromyalgia, Bipolar Disease, Post Traumatic Stress Syndrome, Clinical Depression, Arthritis, High Blood Pressure, etc.


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 4/16/2009 9:20 PM (GMT -7)   
Lefty,
Hi and welcome to the group. Thank you for posting ideas for the red ant after leg shaving problem!

Ask your employer for accommodations. Can you sit on a stool and still do your job? You can ask for frequent breaks to stretch or lie down or something. I think they have to give you accommodations. Others on here know more, though.
Best,
Sue

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 4/16/2009 10:43 PM (GMT -7)   
Hi Lefty,

I am new here too, as well as newly diagnosed just a couple weeks ago. I am having the exact same problem as you, just a little further down the path: I was a contract secretarial worker at one firm and the work "ran out," meaning, they were tired of not being able to count on me for what they needed. I didn't blame them. I couldn't use my hands well, and typing hurt my fingers like they were getting stabbed with every keystroke. That plus the fog, and other muscle and joint pain made the day unbearable. I could feel people feeling sorry for me but also growing frustrated because I couldn't promise to be in every day any more. I was stressed out because I was losing money and felt like a loser. This is the first major flare for me, and is going on four months now. New things hurt every day lately and feeling like a loser didn't help.

Luckily, I was unemployed for only 3 days, and am now at a job which (for now) is involving a lot of physical work, moving and unpacking some heavy boxes. I was upfront about my FM, because I wanted them to know what they were in for. I started medication two weeks ago and now I can get up and work, instead of lay in bed. But am helping the staff get comfortable with me as a new person, and as a new person who has a condition they are learning a little with me. I do the busiest/most physical part of the day early in my shift, then sit and do "quiet work" in the afternoon when I hurt. If you want to look for new work, try your local non-profits. Non-profit service providers, as well as health care, always need help. Health care is also more understanding of medical accommodations. Good luck! Keep us posted....

Lefty85
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 4/17/2009 9:40 AM (GMT -7)   
Thank you all for your replies and advice. 
 
Thankfully, my boyfriend, who has RRMS and is employed where I am, found out something for me that I hadn't realized.  If I get my doctor to fill out a form explaining my medical condition and take it to work, then if I miss days due to that medical condition they won't count against me for attendance purposes.  I know it's not a solution to the problem, but it's at least a temporary fix that will help me keep my job until I am able to find something else. 
 
I also am moving in with my boyfriend within the next month.  Right now, I live alone and it is very stressful for me.  Stress makes all my symptoms much worse.  With the two of us living together, I won't have to worry as much about finances or about maintaining a place to live all by myself when I'm not feeling well. 
 
Now, I'm just stuck with the dreadful task of packing up all my things and moving.  Ugh.  One of my worst habits is that I procrastinate-- which is exactly why I am typing on here instead of going through things in my bedroom! :-)
 
Take care!
 
SaraBeth
Dx: fibromyalgia, depression, anxiety
meds: diflunisal, pamelor, flexiril, percocet, celexa
 
"In three words I can sum up everything I've learned about life: it goes on." -Robert Frost

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 4:00 AM (GMT -7)
There are a total of 2,735,789 posts in 301,336 threads.
View Active Threads


Who's Online
This forum has 151436 registered members. Please welcome our newest member, george252.
147 Guest(s), 3 Registered Member(s) are currently online.  Details
UC prisoner, ufindjess, poohcheez


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer