Hi Spatchie...my rhuemy thought an SSRI would help with a bunch of my issues...anxiety, Fibro and RLS. After adjusting to the side effects, I felt great...for one week. But...all my symptoms returned with a vengeance and I was so disappointed. I think the Lexapro helped with some depression, but that's it. I am still on it after trying to get off for two months. The withdrawals are a &^$#@!
Can I ask you what your RLS feels like? The Rhuemy insists I have it but I don't just get it at night. My legs feel tight, crawl and my right hip, thigh, middle of my butt and knee are in constant pain. I do kick my legs around at night. But the other sensations are almost constant...especially when sitting. I feel like there are ants crawling all over them.
So sorry you feel so badly. get some rest..
Thanks for the hugs. My RLS does not fit the typical description. My legs hurt when I sit or stand. The muscles get really tight and there's just an overall ache from my lower back to my knees (especially the glutes, hips and thighs). I am constantly shifting my position or bouncing my legs like an anxious kid who can't sit still. I actually feel better when laying down. When I do finally get to lay down, my legs feel a numbing sensation and finally get to rest. I sit at a computer all day at work. My co-workers must think I'm crazy, cause I'll stand at my desk and hunch over just avoid sitting.
Hi Spatchie. I know everyone is different, but I haven't found much relief with meds either. I can take Flexeril or Zanaflex periodically if I'm having a particularly bad day, but I can't tolerate the side effects of taking them regularly.
I can't tolerate Lyrica or antidepressants at all, so those aren't an option for me either. I have an inner ear disorder and sometimes take Valium for that, which also helps with muscle spasms and anxiety. But again, it's not something that I want to take all of the time.
I mostly manage with non-pharmaceutical "treatments" like heat, massage, stretching, gentle walking, and trying not to overdo it physically. Trying to manage stress is also a biggie for me. If I get too stressed, I feel it in every part of my body. I find that these methods really do work for me. I'm never completely without pain, but they do help.
There may be some people out there who have all of their pain controlled by meds. but I don't think it's common. I think most people taking meds. would say that it helps them manage the pain.
Hope you feel better soon. This is a hard illness to cope with, but you do learn how to manage the pain (most of the time) and live your life (sometimes with some adjustments).
Hugs - Austen
Thanks Spatchie. Mine 'feel' numb when I lay down too...but they aren't. I'm jiggling them all the time too. The sensation that they are wrapped tightly in an ace bandage drives me crazy the most.
Oh well...Like Gilda Radner said..."It's always somethin'!"
Hope you get your meds straightened out and find something that helps.
Hi Patsie...I sometimes have twitching in my feet. When I put my legs against the sheets, they tingle and crawl, but I have this happen during the day also. The numb sensation is almost chronic, and I shake my legs to relieve it.
Sometimes ya just wanna kick somebody...ya know what I mean?? LOL!
Finally got a call back from the nurse. They are switching my meds to Klonopin (sp?) Another muscle relaxer, I believe. I told her I still had a flare up while on Flexeril. She said it's b/c I'm still not getting deep sleep. I don't know much about the sleep connection. I need to do more research on that.
Thanks everyone for your replies. This site is so great for getting "real" answers.