Welcome to the Forum!!! This is a great place to share and learn from other fibro-mites!! Be sure to check out the 2nd thread on the Forum called Fibromyalgia 101. There's lots of good stuff on there. Since you've had fibro for a while I'm sure some of us will learn some things from you too!!
I've never heard of the baths that you were talking about. I know moist heat really helps and I would LOVE to have a hot tub of my very own. If it weren't for my heating pad I think I would just shrivel up and die from the pain.
I've been usiing this Forum for about 4 months and I love it!! Eveyone here is really thoughtful and caring about the other fibro family members. I've made some great friends here that I know truly care about me as I do about them. Its nice to have others around to talk to about this mysterious ailment.
I'm sure more folks will be along to welcome you.
Nice to meet you.. and until later.. be well,
Hello Chutzie, Sherrine, Patsie, Vickie, Pattie.
Thank you so very very much for the warm welcome you have all given me, I feel mentally much better already. I would love to know more about you all, how you all manage from day to day? what meds you take? whether they are effective?. I do stretching exercises, use the spinal pool under the supervision of Victoria, she is a personal trainer. I take Oxycontin (morphine) Baclofen, Tramedol, Volterol suppositories, Cyclomorph (injected morphin) Diconel, Cipralex, Diclofenic, diazepam and Imigran pens, not all at once but a mixture of what i need depending on the day.
I have had FMS for Seven years but only diagnosed for Three, luckily! i collapsed at work, I was a comminity care nurse, I was unable to tell the med team who I was or what i had been doing, very frightening, however, Two weeks later I was diagnosed and was at last being taken seriously, I was sent to a specialist, I had all of the trigger points, as well as severe migraine, a broken coxycs and sacrum, Two prolapsed discs and a variety of other things.
I am recently divorced, I have Three wonderful kids, Sebastian 25, Victoria 23 and kane 18, we had Two beautiful horses but had to find them happy homes as I simply wasn't able to exercise them as I should, especially as one of them was a very talented showjumper,'what fun we had together!!!! I miss him so very much, I miss my very busy old life very much, i would be ecstatic if they found a cure as i imagine you all would be as well.
Gentle hugs and well wishes to you all xxxx.
I bumped up a thread called.. Cheers! Welcome Newbies to the land of Fibro Fog where everyone forgets your name! Its a great place to learn more about the forum and jot down somemore stuff about yourself. This is a realitively new thread, you might want to go back a few pages and see the older one. That one has some stuff about all of us "older" members. We had to cut it down a bit since we're supposed to try to keep our threads down to one page.
I saw you're a horsey person.. I had horses once upon a time.. but had to give them up because of my back injury :( I miss them. But that was almost 30 yrs ago.
Hi Sharon and Welcome!
Glad you found us and I think you will notice a difference when you have support and trying to deal with fibro everyday. It is a year ago now that I got fibro. See you have been diagnosed for 3 and probably had it for 7. So I can probably learn a few tricks of the trade from you!
Going through a divorce is tough. Been there done that twice, so I feel for you. And you have your plate full with raising three kids!
Join us when you can on our daily Koffee Klatches, it is very informal and we talk about different topics everyday- Chutz, one of the moderators does a good job and keeps our minds working!?
Nice to meet you!
Hi Danibm. Thank you for the reply, i'm sure i will gain a great deal from this site, i already feel very comortable here, it's a shame there is no equivilant in the uk, the states are way ahead of the uk in work with Fibro, i am very lucky with my team but i have come across those in the med proffesion thta don't believe is exists.
Hugs and good wishes
Thank you for the warm wecome, I would love to join you for you koffee klatches but as i'm in the UK the time difference doesn't allow me to, unless you'd all like to change the time and i'll get up, not for one minute do i think i'll be asleep anyway, my sleep pattern is very bad.
Yes that is Salisbury in the uk, the town I live in was once the ancient capital of Wessex, when king Arthur was still around, most of the buildings were built around 1000-1200BC but there are few older ones, Stonehenge being one, I only live a short distance from the stones. It's very rural here, lots of little villages and old thatched cottages there are Five rivers that all run through this city with swans galore!
Take care and warm wishes.