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SharonGL
Regular Member


Date Joined Apr 2009
Total Posts : 31
   Posted 4/20/2009 8:30 AM (GMT -7)   
redface  ello all, I have just found you, which makes me feel much better, it's lonely out here.
  I have had fibro for Eight years, diagnosed Three, I attend the mineral hospital in Bath but live in Salisbury, they don't have a specialist here so bath is the closest option and i must say they are excellant, I would be very grateful if I receive replies, I would love to make friends with other fibro sufferers, for chat aand support each other.
 
Best wishes,
 
 
Sharon

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/20/2009 9:10 AM (GMT -7)   

Hello Sharon!!

Welcome to the Forum!!!  This is a great place to share and learn from other fibro-mites!!  Be sure to check out the 2nd thread on the Forum called Fibromyalgia 101.  There's lots of good stuff on there.  Since you've had fibro for a while I'm sure some of us will learn some things from you too!! 

I've never heard of the baths that you were talking about.  I know moist heat really helps and I would LOVE to have a hot tub of my very own.  If it weren't for my heating pad I think I would just shrivel up and die from the pain.

I've been usiing this Forum for about 4 months and I love it!!  Eveyone here is really thoughtful and caring about the other fibro family members.  I've made some great friends here that I know truly care about me as I do about them.  Its nice to have others around to talk to about this mysterious ailment.

I'm sure more folks will be along to welcome you.

Nice to meet you.. and until later.. be well,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


poodles
Regular Member


Date Joined Mar 2009
Total Posts : 180
   Posted 4/20/2009 9:14 AM (GMT -7)   
Hello Sharon.
Welcome. Is that Salisbury, England?
I am glad you found this forum. I have found it a great place to learn and vent and laugh. I hope you do too.
Vickie

Fibromyalgia, Bipolar Disease, Post Traumatic Stress Syndrome, Clinical Depression, Arthritis, High Blood Pressure, etc.


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 4/20/2009 9:25 AM (GMT -7)   
Hi Sharon,

Welcome to our family. I take it you are in the UK?

You are in the right place for caring strong support. This group has meant the world to me and YES it is very lonely. I have talked about how fibro has changed my life and accepting things for the way they are. With this group it is easier.

Write us soon,

Patsie

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 4/20/2009 10:27 AM (GMT -7)   
Hi, Sharon, and welcome!  I"m so glad you found us and joined in.  You have come to a great place.  We have members that love to help one another and, as a bonus, we really do care about each other too.  So, I know you will feel right at home.
 
I see that Patti directed you to the Fibro 101 thread.  There are links to good information about fibromyalgia.  You will find symptoms, other illnesses that fibro mimics, good stretching exercises, info about supplements, and other good stuff.  I hope you take the time to read it.  You will learn a lot there.
 
Be sure to read back posts and ask questions, too.  We are here to help you.  I'm glad that you are here and I just know you will love it as much as I do.  Hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/20/2009 10:10 PM (GMT -7)   
Hi Sharon!

And I'm thrilled you have joined our fibro family! It sure is a great place to learn to manage the pain plus make some terrific friends. Also, join our daily Koffee Klatch. We talk about anything BUT our pain. We need to focus on fun and the 'regular' things in life. Yes, we have fibro but it is not who we are. And I have noticed over time that we are a mighty bright and creative bunch here.

Hugs,
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


SharonGL
Regular Member


Date Joined Apr 2009
Total Posts : 31
   Posted 4/21/2009 12:55 AM (GMT -7)   

Hello Chutzie, Sherrine, Patsie, Vickie, Pattie.

Thank you so very very much for the warm welcome you have all given me, I feel mentally much better already.  I would love to know more about you all, how you all manage from day to day?  what meds you take?  whether they are effective?. I do stretching exercises, use the spinal pool  under the supervision of Victoria, she is a personal trainer.  I take Oxycontin (morphine) Baclofen, Tramedol, Volterol suppositories, Cyclomorph (injected morphin) Diconel, Cipralex, Diclofenic, diazepam and Imigran pens, not all at once but a mixture of what i need depending on the day.

I have had FMS for Seven years but only diagnosed for Three, luckily! i collapsed at work, I was a comminity care nurse, I was unable to tell the med team who I was or what i had been doing, very frightening, however, Two weeks later I was diagnosed and was at last being taken seriously, I was sent to a specialist, I had all of the trigger points, as well as severe migraine, a broken coxycs and sacrum, Two prolapsed discs and a variety of other things.

I am recently divorced, I have Three wonderful kids, Sebastian 25, Victoria 23 and kane 18, we had Two beautiful horses but had to find them happy homes as I simply wasn't able to exercise them as I should, especially as one of them was a very talented showjumper,'what fun we had together!!!! I miss him so very much, I miss my very busy old life very much, i would be ecstatic if they found a cure as i imagine you all would be as well.

Gentle hugs and well wishes to you all xxxx.

 


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/21/2009 3:18 AM (GMT -7)   

Hi Sharon!!

I bumped up a thread called.. Cheers! Welcome Newbies to the land of Fibro Fog where everyone forgets your name! Its a great place to learn more about the forum and jot down somemore stuff about yourself.  This is a realitively new thread, you might want to go back a few pages and see the older one.  That one has some stuff about all of us "older" members.  We had to cut it down a bit since we're supposed to try to keep our threads down to one page.

I saw you're a horsey person.. I had horses once upon a time.. but had to give them up because of my back injury :(  I miss them.  But that was almost 30 yrs ago.

Hugs again,


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 4/22/2009 11:44 AM (GMT -7)   

Hi Sharon and Welcome!

Glad you found us and I think you will notice a difference when you have support and trying to deal with fibro everyday. It is a year ago now that I got fibro. See you have been diagnosed for 3 and probably had it for 7. So I can probably learn a few tricks of the trade from you!

Going through a divorce is tough. Been there done that twice, so I feel for you. And you have your plate full with raising three kids!

Join us when you can on our daily Koffee Klatches, it is very informal and we talk about different topics everyday- Chutz, one of the moderators does a good job and keeps our minds working!?

Nice to meet you!

Jill  


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


SharonGL
Regular Member


Date Joined Apr 2009
Total Posts : 31
   Posted 4/24/2009 12:58 AM (GMT -7)   

Hi Danibm.  Thank you for the reply, i'm sure i will gain a great deal from this site, i already feel very comortable here, it's a shame there is no equivilant in the uk, the states are way ahead of the uk in work with Fibro, i am very lucky with my team but i have come across those in the med proffesion thta don't believe is exists.

Hugs and good wishes

Sharon.


SharonGL
Regular Member


Date Joined Apr 2009
Total Posts : 31
   Posted 4/24/2009 5:54 AM (GMT -7)   

Hi Gamjill.

Thank you for the warm wecome, I would love to join you for you koffee klatches but as i'm in the UK the time difference doesn't allow me to, unless you'd all like to change the time and i'll get up, not for one minute do i think i'll be asleep anyway, my sleep pattern is very bad.

Warm wishes

Sharon 

 


Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 4/24/2009 6:16 AM (GMT -7)   
Welcome Sharon, I love this forum and it has helped me alot. Just reading other peoples post and to have a good laugh, which seems to be everyday now with some of the wonderful wit of these awesome people. And to beable to come here and share. Hope you are feeling good today.

Fibromyalgia, Hashimoto Thyroid disease, Chronic pain.
 
 All things are possible thru Christ Jesus who strengthens me


SharonGL
Regular Member


Date Joined Apr 2009
Total Posts : 31
   Posted 4/24/2009 6:30 AM (GMT -7)   

 

Dear Vickie.

Yes that is Salisbury in the uk, the town I live in was once the ancient capital of Wessex, when king Arthur was still around, most of the buildings were built around 1000-1200BC but there are few older ones, Stonehenge being one, I only live a short distance from the stones.  It's very rural here, lots of little villages and old thatched cottages there are Five rivers that all run through this city with swans galore!

Take care and warm wishes. 

 

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