I bet a lot of us have been where you are now. Years ago, before I was diagnosed, my primary would not give me more pain medication, and told me if I hurt that bad to go to the ER. I never did go, but I researched long and hard until I found a local pain management center. These folks specialize in helping FMS patients cope with symptoms, and even try cutting edge or experimental therapies. They are the ones who confirmed I had FMS, even when I had been trying to convince my conventional doc to at least consider the diagnosis and she would not listen.
It seems everyone presents a little differently and everyone has different success with medications and supplements as well as other treatments, so it is really a matter of finding the right doc and being willing to experiment a little. I wish I could help you right now, I feel for you. I have spent days out of work even when I did have pain medication, because some days are just worse than others. There is hope, though. Do some research in your area, find a pain management center, and you will find some relief.
There are a lot of resources on this site and others to help friends and family understand (to a degree) what you are going through. There are also a number of YouTube videos out there of people telling their story (some of these are not worth watching but others are very good).
If you go to the ER they may be able to help you short term and they may be able to help you find a pain clinic in your area. I know it seems a desperate measure, but sometimes we have to take desperate measures when we can't get anyone else in our medical phonebook to help!
Hugs to you and hope you feel better.
Thank you, Chutz and Rose, for your caring responses and suggestions. I really like the idea of keeping a pain diary, and will probably start one tomorrow. I also think a pain management center sounds like a great idea. In fact, I was talking to a friend of my boyfriend's the other day and he told me that pain management center was where he got the greatest amount of help.
Tonight, I did end up going to the ER. I just couldn't take it anymore. Fortunately, the doctor I had was very nice. She gave me an injection of dilaudid, which is helping a good bit right now (I certainly still have pain, but it's not as severe... at least I can think clearly now). She also gave me a prescription for tylenol with codiene, but only enough for a few days. She said I have to talk to my regular doctor or my rheumotologist about pain management for long term. I'm going to try and give them each another chance. I have always liked my regular doctor. I've gone to him since I was a child. I think that after he becomes more aware of my situation he'll probably give me something again. He's never had a problem with it before.
My rheumotologist, on the other hand, probably won't give me anything. I get the impression that she thinks that all fibromyalgia is magically cured with anti-depressants. They haven't worked for me, at least not yet. I realize that some of the medications I'm on take time before they start to work. It's just that in the meanwhile, I have to be able to function, and I can't do this without some sort of relief.