What is you Main Pain??

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jewelrylady
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Date Joined Jun 2008
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   Posted 4/21/2009 12:53 PM (GMT -7)   
We all have the "background pain", that pain that you just ignore because it has become like a relative who came to visit & just won't leave.  Irritating but ignored for the most part. Like my wrist that will twinge when I am trying to open a bottle but I only feel it on a subconscious level.   I have pain that will be there one day or for a week, but once dealt with,it is gone.   But then there is the pain I have that is there as soon as the meds start to wear off, the pain that stops me in my tracks & reminds me I have Fibro.  For me it is my neck pain & if I don't take something right away it will creep up the back of my head & down into my shoulders.  I can not function with this pain & if I didn't have my meds I would be in an institution.  This is the pain that will make or break me.  So, what is your "main pain"?  I have noticed we all seem to have different spots that seem to be the make or break pain. 
 
Hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


SleepyBug
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Date Joined Nov 2008
Total Posts : 1097
   Posted 4/21/2009 12:59 PM (GMT -7)   
Hmm...I'd have to say my "main pain" is my neck and shoulders. They always hurt, are always tense and knotted up, but often I don't even notice it. My hubby will walk up and rub my shoulders and say "Wow! You're in knots!" and I'll think...oh, really? huh. hadn't thought about it. :-/
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


vestabula
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Date Joined Nov 2008
Total Posts : 2855
   Posted 4/21/2009 1:02 PM (GMT -7)   

Owie...my butt pain that goes into my hips, thighs, legs and knees.  And this lovely frozen shoulder thing.  24/7.  My family calls me Ratso Rizzo when they see me walk. (for you youngsters, he's a character played by Dustin Hoffman in Midnight Cowboy).

Oh goodie...it's time for Advil.

Huggies

Donna

 


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 4/21/2009 1:03 PM (GMT -7)   
for me it's my lower back, as they actually found spinal stenosis at three disc levels...
"sure is a pain in the butt", at times....hehehe....... couldn't resist this.......
at least I can still laugh at myself, my funny bone ain't broken yet!!!!!!
(((((((((((((((((HUGZ))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40599
   Posted 4/21/2009 1:24 PM (GMT -7)   
I carry most of my pain in my shoulders, neck and arms. But lately my legs and feet have been aching. I don't really like to think about it, most of the time it is in the background, but we have been having cold, damp weather and it is worse.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 4/21/2009 1:32 PM (GMT -7)   
The worst pain for me is in the middle of my back, between my shoulder blades.  My shoulders and neck aren't great either.  This is the pain I usually get but, when costochondritis hits me, THAT takes the front seat!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 4/21/2009 2:00 PM (GMT -7)   
Ah wow LOL my pain never stops, it never goes away, sometimes something else will hurt more, making the previous pain easier to forget, but on a day to day basis, I hurt everywhere but I have to say, the one that will wake me up, take my breath away and knock me to my knees, is my back, where the bra straps meet the band, until the costo wakes up LOL those are the days I just want to crawl into a deep dark hole with my meds and my heating pad
FM, costocontritis, wide spread arthritis, fibriod tumors, 2 heart attacks at 22


Flexeril 30mg, Celexa 50mg, Despiramine 50mg, Ibuprofen 800mg Acetometaphen 500mg, Calming Sleep herbal suppliment, ActivOn topical pain relief, occassional cannibus


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 825
   Posted 4/21/2009 2:01 PM (GMT -7)   

I'm with Donna on this one.  Pain in my 'sits bone area' as I like to say.  I would rather stand all day than to sit still for a little while.  This pain never leaves.  The pain in my shoulders is pretty constant too but I have days when they are not as bad. I can't go to the movies or on car trips without a lot of pain in the rear smhair

Puppylover


Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 4/21/2009 2:21 PM (GMT -7)   
My main pain is my lower back all the way into my shoulder and neck. Other pains I can pretty much put into the back of my mind, but when my meds wear off, those places just kill me. I sometimes cry because the pain is so horrible. I have to take my meds to keep most of the pain at bay.
~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


SassyIsMyKitty
Regular Member


Date Joined May 2008
Total Posts : 223
   Posted 4/21/2009 2:27 PM (GMT -7)   
My main pain is from my lower back all the way up into my neck and shoulders. Pretty much all the other pains I can ignore, but when my meds wear off, the pain in those areas are so bad that I am pretty much incapacitated. Sometimes, I cry because the pain is so bad. Those are my main areas of pain.
~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
 
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 4/21/2009 2:39 PM (GMT -7)   

Denise, I get the "main pain" like you and also between my shoulder blades. :(

Jill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 4/21/2009 2:54 PM (GMT -7)   
Mine is my lower back and down my legs, but mostly my left leg and knee, when I wake up from sleeping I have to literally take a few minutes to get my body to move cause if I go too fast the pain gets so bad that is takes my breathe away then I have to hunch over like a 90 year old and I have to shuffle my feet cause it hurts too much. Then after I get moving then I can stand up better and walk like someone more my age (26) and the pain will start to go down, but alot of days the pain only goes down so much, but sometime it feels like my whole body is hurting, but it's always seems to be in my very lower back, almost my butt, but I guess that started after falling down on my butt down a flight of cement stairs and the 2 really bad car accidents I was in, but of course I never went to the doctor, when I should have, especilly after falling down those stairs, I dont think I ever felt so much pain in my life, but that happened when I ws 17, and I'm still paying for it.

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet), and Biofreeze  
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, marsupilized bartholin gland cyst
 
"Never go to a doctor's office whose plants has died."
 
 


RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 4/21/2009 3:22 PM (GMT -7)   
It depends on what I'm doing. Since no pain meds (even narcotics) will work for me, the pain depends on what I am doing. If I am standing, I get feet pain--plantar fasciitis. If I am walking more than a block-The sharp stabbing pains in my hips start and I have to stop, pronto. Then there is the pain in my knees that, today, is agonizing, no matter whether I am standing, sitting, lying down or walking. I had this great idea that if I wrapped up my knee and went to Target for a little slow walking it might get better. HAH! That made it worse. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Bootknife
Regular Member


Date Joined Apr 2009
Total Posts : 44
   Posted 4/21/2009 3:53 PM (GMT -7)   
The pain that never goes away is in my right hip and leg. Second to that is across the shoulders. These are the ones I am aware of at all times. Burning, stinging, gnawing, twisting, pulling......

Wonder what drugs the Reum Doc will prescribe next Monday.

Curlykraut
Regular Member


Date Joined Jan 2009
Total Posts : 43
   Posted 4/21/2009 5:53 PM (GMT -7)   
Mine jumps around a lot too.  The worst for me is in my legs, knees, and feet.  At night when I try to sleep it is in my back and around all my ribs, I can't roll, can't sit up, it is hard to get myself out of bed in the morning, somehow I manage.
 
Gentle hugs, Jules

Spicey
Regular Member


Date Joined Mar 2009
Total Posts : 135
   Posted 4/21/2009 7:12 PM (GMT -7)   
My upper back,especially the left side with pain moving to either shoulder and around to near the collarbone have put me in a almost cribbled state. Wow ... I'm exhausted just typeing this...phewww.....I get weird muscle spasms lately in my back,hips or abdomen that come out of no where and they feel like a charley horse ? I think i'll sleep tonite...God bless everbody..and hugs.

jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 4/21/2009 10:45 PM (GMT -7)   
After reading everyones posts I have come to a new conclusion: I am totally confused by this illness called Fibro. It is so sad & so interesting that we all have our main pain in different areas of our bodies. We all have this illness yet we can't all take the same meds for relief. Some have to eat differently then I do to find relief. Some have totally different symptoms then I do. But we can relate to each other even with our differences. I wish they would find what drives this illness. (heavy sigh) Well, it is too late for any kind of deep thinking & my main pain is calling for attention. As Donna said in her post: Oh goodie...it's time for Advil.

Hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 4/21/2009 11:09 PM (GMT -7)   
I agree with you, Denise, so well put..
I guess that's why it's taking so long for them to find that one right medication..............
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 4/22/2009 4:44 AM (GMT -7)   
You did say that well, Denise. Fibro is a very confusing disease..I wonder if that's part of the reason why Dr.'s have had such a hard time figuring it out.
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


Lefty85
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 4/22/2009 7:38 AM (GMT -7)   
My main pain is from my lower back all the way up to my shoulders and neck. That whole area also gets incredibly stiff. Lately, I've also been getting a lot of pain in my knees, upper arms, and wrists. My back is what gets me the most though, because every way I sit, stand, or lie down aggrivates it, and even the slightest movement causes it to hurt worse. Thankfully my pain medications help... some. Without them I'd be pretty worthless to do anything. Hopefully there will be an end to this awful illness for all of us someday... the sooner the better.
23 years old
 
Diagnosed with Fibromyalgia in April 2009 ~ Suffering since 2008
 
Diagnosed with Depression & Anxiety in 2007 ~ Suffering since childhood
 
***********
 
Diflusinal, Nortryptiline, Celexa, Flexeril & Percocet as needed
 
***********
 
"In three words I can sum up everything I've learned about life: it goes on."   -Robert Frost
 
Be not afraid of going slowly, be afraid only of standing still.
      
One day your life will flash before your eyes. Make sure its worth watching.
 
 
 
 
                                                                                  


Baloo
Regular Member


Date Joined Feb 2009
Total Posts : 210
   Posted 4/22/2009 8:16 AM (GMT -7)   
Mine seems to be in My giddey up area, The right hip, leg and knees. Then Neck and the middle of my back, bra line area. Today its in my wrist and thumb and neck. Your right it is a strange and sometimes crippling diagnosis to live with.  But we must keep the hope alive that someday, they will find the way.

Fibromyalgia, Hashimoto Thyroid disease, Chronic pain.
 
 All things are possible thru Christ Jesus who strengthens me


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/22/2009 8:37 AM (GMT -7)   
I think my lower back is the biggie, but my shoulders, neck, hips hands and feet have their moments too.. shhhhh, don't tell my knee that they don't hurt, they might want to join in the pain fest!!

Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


adensmama
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 4/22/2009 11:41 AM (GMT -7)   
My main pain is in my elbows, wrists, and hands.  My middle back hurts alot too, but my arms, hands and elbows pretty much ache all day long. 

Spatchie
Regular Member


Date Joined Apr 2008
Total Posts : 84
   Posted 4/22/2009 11:55 AM (GMT -7)   
My main pain is in my hip, butt, thighs area.  Alway symmetrical.  As I'm sitting here, I'm rotating from hip to hip sort of in a rythmic fashion to sort of endure the pain.   I also have main pain in my hands. and just plain all over, sigh!
~Ang~
coping with fibro since July 2004
Officially diagnosed with fibro and restless leg - March 2009
Mother to two wonderful kids, born 1999 and 2002


purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 4/22/2009 1:38 PM (GMT -7)   
My main pain is my neck, shoulders and arms. My spine feels like someone is wringing it our like a towel. The meds just make it tolerable but the tenseness never goes away.
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 

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