Does anyone here take Vitamine D? How does it effect Fibromyalgia?

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Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/22/2009 5:11 PM (GMT -7)   
Does anyone here take Vitamin D? The Rheumy just put me on 50,000 units twice a week for four weeks and then wants me to buy my own V-D and that 800 units every day. I was told a few weeks ago my V-D level was ok and now it's not? I really don't understand what is going on sometimes?
 
Hara - Fibromyalgia, Depression, Anxiety, Diabetes, Sleep Apnea

patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 4/23/2009 4:57 AM (GMT -7)   
Hi Hara,

This is a huge area of discussion among all fibromites. Many of us have low D, myself included. I am on high doses too and due to be rechecked next week. Here's what I find most unusual, I live in florida and garden every morn' early with no block for 20-30 minutes. Now why do I not process the D from our greatest source, the sun?

For your info levels should run 32-100 and I was a 2 when I started therapy. Still have only reached the high 20's.

Remains a big mystery for many of us but the D or something has definitely helped my pain.

Hope this helps, Patsie

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 4/23/2009 5:48 AM (GMT -7)   
I too am low in D. When first tested I was at 12, went on prescription D, gradually moving up to now 150,000 units, once a week and I'm still only at 20. I was just tested for Celiac disease, which is a gluten intolerance, to see if that was why I was not absorbing the D. It was negative. For some reason, we do not absorb the D properly. I too, like Patsie, spend at least 20 minutes in the sun each day with block - well at least each day the sun is out here in Chicago, and have always been an avid outdoor walker. Everything you read says just 15 mins in the sun is enough to get your daily dose of D and yet, it obviously is not. I hope we get the answers soon, and welcome to the forum!
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 4/23/2009 8:26 AM (GMT -7)   
I was tested and was low too. When my rhuemy put me on D the only difference I felt was slightly less depressed and more hopeful. Which makes sense, they use D to combat Seasonal Affective Disorder (SAD). I did not notice it helping with pain like other people have reported.
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibro, Endo, Migraines, Asthma, CFS

Topamax, Morphine, Cymbalta, Crestor, Resoril, Loestrin, Treximet

B12, Magnesium, Melatonin, Omega3


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 4/23/2009 11:48 AM (GMT -7)   
Hara, a vitamin D deficiency can cause pain and fatigue, along with a host of other problems.  I live in Florida and am still dificient!  Many with fibro seem to be.  I am presently taking 3,500 IU of D3 a day to try to get me in the normal ranges.  So, what your doctor has you doing is not unusual.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/23/2009 3:38 PM (GMT -7)   
patsie said...
Hi Hara,

This is a huge area of discussion among all fibromites. Many of us have low D, myself included. I am on high doses too and due to be rechecked next week. Here's what I find most unusual, I live in florida and garden every morn' early with no block for 20-30 minutes. Now why do I not process the D from our greatest source, the sun?

For your info levels should run 32-100 and I was a 2 when I started therapy. Still have only reached the high 20's.

Remains a big mystery for many of us but the D or something has definitely helped my pain.

Hope this helps, Patsie
I was tested two times about a month apart from eachother. I don't know what the first number was but the second was 18 for the V-D

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/23/2009 3:40 PM (GMT -7)   
Sherrine said...
Hara, a vitamin D deficiency can cause pain and fatigue, along with a host of other problems.  I live in Florida and am still dificient!  Many with fibro seem to be.  I am presently taking 3,500 IU of D3 a day to try to get me in the normal ranges.  So, what your doctor has you doing is not unusual.
 
Sherrine

OK, thanks I just wanted to make sure. I still have a few questions for her though.
 
Hara

terrisews
New Member


Date Joined Mar 2009
Total Posts : 9
   Posted 4/25/2009 11:56 AM (GMT -7)   
When I was tested I had never heard of a Vitamin D deficiency. My reading was a 7 and I've been taking 1000 units every night since. The biggest difference I can tell is that I sleep better and more soundly. That is a blessing in itself cause there isn't much on tv in the middle of the night!

Terri in TN

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40603
   Posted 4/25/2009 3:08 PM (GMT -7)   
I was tested too and I was low so am presently taking 2,000iu daily and it really makes a difference.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/25/2009 5:03 PM (GMT -7)   

I have been doing some research ....again. If the numbers are lower than 30 for the Vitimin D there is a possibility of Ostioprosis, bone lost and deformities of the bones and so on. I just about flipped out when I read that. But I would rather be armed with the knowledge than not. I like to know what is going on.

Hara


Terri383
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/25/2009 5:15 PM (GMT -7)   
I take 2000 units a day of D along with a good multivitamin, and Omega 3-6-9 as well as Lutein-z.  I have been taking this for over a year and it, along with a regular exercise program has made a 90% positive improvement to my life.  I take the Lutein because the Fibro had really attacked my vision, this has helped it.  1-1/2 years ago I could not even walk slowly down the street with a cane, now I am on the treadmill for 30 minutes a day at 3.5 mph.  I started very very slowly by walking in a mall that had benches where I could sit if needed.  At first it was scary and difficult, but I persisted. Now I have stamina, endurance and surprise myself still when I run up a flight of stairs. 
 
Apart from the D and the other supplements I found that I had to eat well, eat balanced meals and eat 3 snacks of nuts or fruit in between. I did a lot of research about correcting my sleep pattern, there is an improvement and have to say that this is the most persistent difficulty I have.  I personally am convinced that our erratic and/or lack of sleep has a lot to do with the intensity of our problems.  The days that I sleep a full 8 hours the night before are absolutely wonderful, but that only happens about 4 or 5 times a month, it is better than not happening at all.  
 
Of all the things I tried over years of all sorts of attempts I have to say that the supplements and exercise along with the good nutrition is what has done the most good for me so far.  I used to live on pain medicine, I haven't had to even take a Tylenol in over a year. 
 
Just the supplements alone did not make much difference but they do along with the exercise and good food. 

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/25/2009 5:23 PM (GMT -7)   

That's nice to know. I'll have to find a cheap place to go get some of those suppliments. Today I walked all the way around my complex and it's about 18 achers. I walked very slowly and looked at everything and made very sure that I didn't fall. It was nice to do and the sun was out for a little bit.

Hara

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