I hurt so bad right now I'm just in tears. My cats have finally stopped running around. But now the TV is bothering me. I just don't understand what the heck is going on.?...... My skin feels like it's crawling. I'm just ready to come unglued....
Hi Hara...Fibromites are sensitive to almost all kinds of external stimuli...noise, smells, touch, taste. Sometimes in the car my husband has the radio on and I can hardly stand it. Touch is my worst...I almost always feel like their are ants crawling on my skin where my clothing touches. I can smell something hours after I have been exposed...we were driving the other day and a truck blew a tire in front of us. I smelled the stupid burning rubber for almost a half hour.
I know the pain is worse when we are in hyper-mode. So sorry you are feeling badly, and the only comfort I can give you, is you are not alone.
Hi Hara, it looks like you did not get much sleep last night according to the times of your posting. I feel bad for you-I have had many bad nights. I'm super sensitive to noise and smells. I have TWO small fans running at night near my bed and also the overhead fan. I don't point them towards me. I just need the hum of the motors to sleep. My sweet hubby is now use to this but probably could do without the noise. Smells give me headaches. I want the intake air in the car closed because all the fumes from trucks and some cars bother me. I never drive with the windows down. I can't take the smell from BBQ grills, fireplaces or any kind of fire. Perfume is another bad thing for me. I don't wear anything scented but other people's perfume drives me nuts
I just want you to know you are not alone with this problem. I hope you have a better day and night this week end.
I deal with every day of my life. Some days are worse than others. I am hypersensitive in all of my sense (if that makes sense ). I deal with it in several ways depending on how bad it is. When things get really bad, I go to a quiet place (my bedroom) and calm down. If I can handle being around the family but still having a bad day, I use ear plugs. I made it a point to sit my family down and explain to them that sometimes I just can't handle the daily noise and commotion in the house. Have a code word so that they know your frustration is not with them it's with the illness. I feel very quilty some days because they should be able to be kids but I also know that it's important for them to adjust to my new life. We are a family and we need to spend time together. I think it also helps them develop compasion for others and that is a quality I want my children to have. I see so many ignorant children today and I don't want my kids to be that way and so far they have made me proud.
If you are in a situation that you cannot control, try really hard to calm yourself down. Do some deep breathing and think of calming things. The more agitated I get the worse the symptoms are and then it just snowballs from there. I usually end up with a migraine and spend a day or two in bed.
I hope things get better for you soon!
Hello, Yes I am doing better today. I took all of my meds last night including an allergy pill. At least my skin is Not crawling today.... It feels so good right now. Thanks everyone for your support.