Sober? And living with fms and myofacial pain?

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hurting07
New Member


Date Joined Apr 2009
Total Posts : 16
   Posted 4/25/2009 4:53 PM (GMT -7)   
Is anyone not on a tall list of narcotics that can tell me what they do to manage the pain
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<FONT] Fibromyagia, myofacial pain, migranes, arthritis, depression, anxiety, addiction, spondylisis (narrowing disc), adhd, leg length difference-:( cant remember the rest...........oh ya synovial cysts on my spinal cord....ect[/color

Neurontin- Ritalin- cannibis- robaxin- abilify- meloxicam- yas- vistaril-
Tried lyrica oxycotin- Valium Xanax - celebrex- vicodin - flexeral- soma- - the list could fill the page.......


No pain no gain - right?????


aux433
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 4/25/2009 9:42 PM (GMT -7)   

Hurting07

The pain is difficult to manage at times. I do have Ultram (tramadol) if it gets too bad, but really try not to take it.

I find that a bath or shower (as warm as possible), 800 mg of ibuprophen and a heating pad are as good as it gets without turning to Ultram. During the day I try to stay occupied to keep my mind off the pain. Nights are the most difficult for me. Sometimes, I have to get up and move around or the pain is just unbearable.

Hope someone can offer us more ideas.

 


K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 4/25/2009 9:47 PM (GMT -7)   
I was totally off work (a high stress job - the ministry) with fibro when I was first diagnosed. Then I went back full time, but the pain was ridiculous and the fatigue even worse.

Now I'm feeling pretty good and the meds work brilliantly! I take a VERY small dose of amitriptylene to sleep, Lyrica 75mg - 1 in the a.m. and 2 at night, and the BEST thing ever is time-released Tramadol. I now take only ONE per day, in the morning, and I feel very little pain and it lasts all day. I don't need to take it twice. I don't feel drugged on it or dopey or anything. It's brilliant. And now I can exercise without worrying about pain the next day debilitating me. I figure it won't be long before I can work again and lead a normal life.

You really need good, caring doctors who won't give up on you.

I know it's terrible when you're in the worst of it, but there is light at the end of the tunnel.
All the best.
I have Fibromyalgia, and nothing else!
I take Lyrica 225 mg/day and Tramadol (150mg time-released) and amytriptilene 7.5mg


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 4/26/2009 9:20 AM (GMT -7)   
Hurting, I don't take narcotics and have managed the pain.  I did write you a post earlier today in your other thread.  I told you what I do.  I hope you try this and it helps you too. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 4/26/2009 3:32 PM (GMT -7)   
I don't take anything for fibro pain. I manage it with stretching, yoga, heat, and Solan-Pas patches (menthol patches). I respond well to pressure so I lay down on tennis balls and massage my upper back and shoulders. I started taking magnesium malate a few months ago and I have a lot less muscle pain. Magnesium malate is not too expensive and may be worth a try, there are a few threads about it so you can educate yourself.

A lot of people have mentioned Ultram (tramadol). It is not considered a narcotic but for some people, it acts like one. It gets me "high" just like narcotics do. I have to take it for about one week each month now for endometriosis pain and find that I crave it at other times of the month. It helps with the fibro pain but I'm only prescribed enough for the week of endometriosis pain so I deal with the endo pain in other ways.

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 4/26/2009 3:35 PM (GMT -7)   
Hi,

I don't take anything for my Fibro, either (except for vitamins). I manage things as best I can with diet and exercise, hot baths and showers, my heating pad, and massages from my hubby. If I am having a really awful day, I will take it easy, but I always make sure to get my hour on the treadmill no matter what. If I miss it (like I did on Fri thanks to a terrible migraine) I feel awful the next day.
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


.....
Regular Member


Date Joined Mar 2009
Total Posts : 117
   Posted 4/26/2009 7:06 PM (GMT -7)   
Nope, don't take anything for fibro pain. My rheumy said pain meds don't really help fibro pain so don't bother with them. I do take a low dose of imipramine (an antidepressant) at bedtime to help me sleep, which in turn helps the pain some. Warm baths help, especially in a whirlpool tub. Light massage helps sometimes if I'm not too tender. Mostly I just try to get enough rest and keep the achy parts warm.
SONG
Fibromyalgia, Gastroparesis, IBS
Endometriosis, Hypothyroidism, Psoriasis, Asthma, Cholecystectomy
(Diabetic spouse)
 


Spicey
Regular Member


Date Joined Mar 2009
Total Posts : 135
   Posted 4/26/2009 8:05 PM (GMT -7)   
I'm new in recovery so I have been relying on extra strength tylenol and motrin,but more for the RA. hand pain right now. I used to have Percocet for very bad pain and only ever took it when absolutey needed. Ice has been helpful just as heat helps too. Sometimes gentle exercises and massage can help.

patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 4/27/2009 2:57 PM (GMT -7)   
Hi Hurting,

I am one that takes nothing for pain, sleep or anything. I will take Advil if it gets too bad but I find it just barely cuts it so why bother. WE all have different tolerances to pain and I think it is important to recognize this. I have learned to meditate and never thought I would get there. A wise Yogi told me even if I have a hundred conscious interruptions it is still better than not meditating. It is working and I fully believe we have to unite the mind and body. It isn't easy but worth the work. I also, as Danielle, force myself to exercise. Some days are really tough but I do something. You know for some reason even if it is just a minimal walk I am so proud after. I equate it to how people feel when they stick to eating right and say "I did it". This is one tough disorder but you can do it. A good friend from college called me to catch up after many years and I told her about Fibromyalgia. She said I pity it picking your body to reside in. I took that as a real compliment. I am tough and a fighter.

Hope this helps you think about the implications of our mind. Patsie
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