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cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 4/26/2009 7:20 AM (GMT -7)   
          Hi haven't posted in awhile , have fibro , and mctd , was looking for some help , been having pain in the back lower part of head and neck , have tmj , was wandering if this could be mayofacial pain , it started 3 months ago and has just got worse . Use to get pain about 3 times a month now it is cronic and everyday , am allready on steriods for lupus and that is not helping with the imfamation, any help would be greatly apprecated .
                                    Crystal

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/26/2009 7:30 AM (GMT -7)   
Hey Crystal,
 
I'm on prednisone for my Lupus too.  Here's the scoop on prednisone and Fibro.... Fibro isn't an inflammatory disorder, so when we add prednisone to our body it actually makes Fibro worse. It's a horrible balancing act to find the lowest dose of pred possible in order to control our Lupus, and at the same time keep our Fibro from flaring up.
 
What is your prednisone dose and how long have you been on it?
 
I'm on 7mg of pred, and I feel like I need to taper down 1/2 to 1mg, right now. I'm a jittery, sore, stiff, Fibro mess! 
 
My guess is that your Fibro is screaming at you right now.  My Fibro is chronic, every day pain too.  My neck and jaw area are the worst affected places for me too.  Try and get in to see your rheumy.  They can help you best.
 
Have a better Sunday Crystal,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 4/26/2009 8:35 AM (GMT -7)   
Hi Ginny , I take 10 mg a day 5 in morning and 5mg at night , Rumey is trying to take me down to 7 and a half , but I resently broke my anke , and he wants to wait until swelling goes down with that . I am starting PT for that tommarrow , broke it in two different places and mutiple tendon tears . Ortho don't wan't to do mri until we try Pt first . He doesn't want me to get surgey unless we aboustly have to cause he don't want to add anymore arthitis , so exercize for firbo has been hard to do . Think that's why I am flaring so bad and on top of that had a reaction to plaqunil hair started falling out quit taking that , now am back on and am taking folic acid that seems to be working , but I have to wait for that to kick back in , then we can lower the predisone . I am gone to try to get to rumey this week . Good news is today when I woke up the hand and other pains have tapered down think fibro flare is weaning down . But I am ready to get shot in the head for this neck pain , Thankyou for help and take care .
Crystal
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