What caused you to have fibromyalgia?

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Stari
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Date Joined Mar 2009
Total Posts : 235
   Posted 4/28/2009 5:18 PM (GMT -7)   
 
 
Just curious about how everyone happened to get fibromyalgia.  I was in a car accident in late 2007.  Sitting at a stoplight and got rear ended by a car going around 45 mph.  Took a year before I found a doctor that really listened to me and realized I have fibromalgia.
 
Take care

Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 4/28/2009 5:20 PM (GMT -7)   
Lyme Disease.

SleepyBug
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Date Joined Nov 2008
Total Posts : 1097
   Posted 4/28/2009 5:23 PM (GMT -7)   
Oh, who knows! Car accident? Childhood trauma? Weird virus thingy? (Bell's palsy, in my case) Surgery? I've had all of them, so who's to say. I think it might be a combination of all of them, plus it runs in my family and I definitely think that has something to do with it.
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


Binki
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Date Joined Jan 2009
Total Posts : 386
   Posted 4/28/2009 5:27 PM (GMT -7)   
Ouch! That sounds very painful.

Hi there Stari,

I don't have an exact cause, maybe more stress and repetitve stress on my body parts. But I do have elevated levels of viruses in my system. I've tried different types of meds, therapy and I am still trying to figure out what is working or will work best for me. I have been told by different docs that it sounds like to them that I have been having FM symptoms for the last 10 yrs. It took 3 yrs to get my diagnosis.

Fibro is fustrating to say the least.

Take it easy,

Hugs,
Lori  
 
Dx Fibro 1/2008, gastritis
 
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed


VeryTiredMom
New Member


Date Joined Apr 2009
Total Posts : 7
   Posted 4/28/2009 5:30 PM (GMT -7)   
I think that I maybe had it mildly before this, but when I
got to the point of being bed bound was after a large cyst
ruptured. I got pregnant soon after and have been sick
for the last few years.

SleepyBug
Veteran Member


Date Joined Nov 2008
Total Posts : 1097
   Posted 4/28/2009 5:36 PM (GMT -7)   
Hi VTM!

Welcome to the board :-) I like your name, too-I can definitely relate!! (I have 3 kids)
love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


VeryTiredMom
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Date Joined Apr 2009
Total Posts : 7
   Posted 4/28/2009 5:41 PM (GMT -7)   
Thank you! I am happy I found it.

Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 4/28/2009 7:32 PM (GMT -7)   
How mine finally caught up with me (Fibro) is I fell off a horse several times while riding. And things just took a told on my body from all the falls off the horse. Plus I had other falls that have happened in my life as well.
 
Hara

Hello~Kitty
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Date Joined Jun 2005
Total Posts : 610
   Posted 4/28/2009 7:39 PM (GMT -7)   
1997-gallstones, I was 14 years old
1998- gallbladder removed, nobody beleived me for a year, had to suffer with severe pain
1998- pancreatitas
2000- had a baby when I was 16 years old ALL natural, no drugs or epidural
2002-fell down on my bottom down basement stairs made of cement, went down half way before I finally stopped
2004- rear ended by someone going 55mph
2004- car rolled down a hill

I think all of these didnt help, but the symptoms started after I had those gallstones for a year and everybody keot telling me it was in my head. And anybody who's had gallstones knows it's extremely one fo the worse pains someone can go thru. I had attacks about 5 days out of the week.

-hellokitty
26 years old, single mother of 2 children, 7 year old girl and 9 year old boy
DX-Lower back pain, Arthiritis, Migraines, Raynald's Phenomenon, Depression, Anxiety/Panic Disorder, Bipolar Disorder, Pancreatic Divisum, Chronic Pancreatitas, Fibromyalgia
Meds- Suboxone 16-24mg daily, Cymbalta 60mg, 100mg Lyrica, Ventolin Albuterol Inhaler, Advair, Imitrex 100mg, Ibprofen 800mg, Phenergan 25mg, Hydroxizine 25mg, Biofreeze
Surgeries- Gallbladder removed 1998, Stent in Pancreas 2003, marsupilized bartholin gland cyst, countless upper GI scopes and ERCPs
Pets- 3 degus named Pricilla, Aster, and Shorty, one female rat named Sassy, one male rat named Squeeky who's brother died on 4/18/09 and was replaced by a baby female Guinea pig name Rosalina, a baby black emperor scorpian, and a corn snake named Precious
"Never go to a doctor's office whose plants has died."
 
 


Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 4/28/2009 8:01 PM (GMT -7)   

hellokitty - No one believed me either that I had gallstones. I even had tests done to and they could not find anything. I finally convinced someone and they did surgery. My gallstones were so little they filled the whole bag. The surgeon even squeezed them out to see if there was any. And that's what he told me that they were so small that it was no wonder they didn't show up on the tests.

Hara

 


probull3t
Regular Member


Date Joined Sep 2008
Total Posts : 38
   Posted 4/28/2009 9:54 PM (GMT -7)   
In 2006 when I was about 14, I had sinus surgery and a rhinoplasty to help fix reoccurring sinus infections. The surgery never made an impact so I was sent to a doctor that misdiagnosed me with auto immune deficiency, and had to get IV treatments ever other day. Little did we know, my doctor had been mixing in heavy amounts of steroids in my medicine instead of sterile water. I gained 50 pounds from some stupid steroids. And after we had my immune level checked at the Mayo Clinic they found out that all along I never had auto immune deficiency and instead I should have been getting treated for a staff infection from all the sinus infections. I had a pic line put in for 3 months and had to give medicine to myself every 8 hours through the IV to finally get over the infection. That winter I got the flu and was taken to the emergency room after not responding to my parents. It turns out I got dehydrated because I couldn't hold down any liquids. I crashed in the ICU and was legally dead for 8 seconds before somehow coming back.


Yep.. lol. That's basically how it all started for me.

pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 4/29/2009 5:03 AM (GMT -7)   
I'm not 100% sure.  Either the tons of domestic violence I had in my life or Lyme or all of that up together.  I know I started off with an official dx of CFS in 1999 after the Lyme thing.. but I think it started much earlier than that.

Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


AustenFan
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Date Joined Aug 2008
Total Posts : 1771
   Posted 4/29/2009 5:45 AM (GMT -7)   
Back surgeries and 30+ kidney stones.
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


nmma
Regular Member


Date Joined Mar 2009
Total Posts : 48
   Posted 4/29/2009 6:21 AM (GMT -7)   
I know I had it when I was young because i can trace back symptoms -
 
I ALSO had back surgery at 17 for spandylolisthesis - L1-5 are fused -
 
I also grew up in a domestic violence situation and my step father committed suicide. That was a trauma none of us ever got over.
 
In 1993 , a "friend" introduced me to methamphetamine - I was depressed - my first weekend of being seperated and my son gone with his dad for the weekend. I was drinking and offered drugs. I had energy like I never had before. I have been clean now for 13 years but that I believe that was the catalyst - moving to Iowa from Az sunshine just finished me off.
 
Looking back - I don't ask why anymore - I say "why not" ?
 
Between being molested, beaten, abandoned , and life long pain and fatigue - well, I think that's what did it !
 
I thank the Lord that I am standing - and I really don't know how.
 
Like I read here earlier this week - fibro ain't for sissies !

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 4/29/2009 6:40 AM (GMT -7)   
A car accident, rear ended on the expressway. I was in the back of a cab, the kid that hit us was going fast. I ended up with nothing serious, bumps, bruises, bruised collarbone and whip lash, and then, after that, all the pain began. Didn't get diagnosed for 5 or 6 years, going from doctor to doctor. One doctor called me a drug seeker and sent me to a pain clinic. Thank goodness for that. The pain doctor recognized FM. I also had a lot of trauma and abuse in my childhood.
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


Spatchie
Regular Member


Date Joined Apr 2008
Total Posts : 84
   Posted 4/29/2009 9:35 AM (GMT -7)   
Five years ago this July, I came down with a nasty virus.  Dr.s thought I had mono, but tests were negative (although I did have mono when I was 6).  Towards the end of the 10 day virus, my whole body (joints especially) felt like it was being attacked.  I seriously thought I must have some sort of bone cancer....I hurt so bad all over and was very scared.   I was first told I had "reactive arthritis" and that I would get better in 3-4 months.  Well, 1 1/2 years later, when I finally had insurance, I went to a Rheumy who said I just had a type of arthritis that has settled in my body from the virus.  Almost 5 years later and the pain is still always present except about a year ago, it's expanded to my muscles as well, including most all the tender points. It wasn't until last month that I was finally diagnosed with fibro (and RLS).  but definitely, the virus was the catalyst.

~Ang~
coping with fibro since July 2004
Officially diagnosed with fibro and restless leg - March 2009
Mother to two wonderful kids, born 1999 and 2002


Spatchie
Regular Member


Date Joined Apr 2008
Total Posts : 84
   Posted 4/29/2009 9:49 AM (GMT -7)   

My doctor explained it me this way:  I asked him if the virus is what caused my fibro (since it all began that week).  He said I was most likely predisposed, but virus is what brought it out.

  I think that is true for a lot of people and why (including myself), I can recall minor symptoms even from childhood, but an event (i.e. car accident, surgery, virus) were the catalyst for making it full blown and active.

Not sure if that is factual, but it's how he explained it to me. :-)


~Ang~
coping with fibro since July 2004
Officially diagnosed with fibro and restless leg - March 2009
Mother to two wonderful kids, born 1999 and 2002


lost in philly
Regular Member


Date Joined Jan 2009
Total Posts : 243
   Posted 4/29/2009 10:50 AM (GMT -7)   
I grew up in a very stressful and depressed environment as a kid. I endured alot of traumas and betrayals from birth-19 years old, one right after the other and b/c of that, I battled serious depression, anxiety and suicidal thoughts. I have been on anti-depressants since I was 15 and a large part of my depression was due to the fact that I was dumbfounded that LIFE was so physically painful yet no one ever talked about it. I thought surely everyone else was enduring the same day-to-day pain I was! That was the quick downward slide of my serotonin depletion.
Compounding my mental state was the necessity that I help the family, and so I began simple yet manual labor jobs beginning at the age of 7 and despite two carpal tunnel surgeries when I was 21, I kept working physically demanding jobs until my body, just recently... quit .
However, the straw that broke the camel's back, was that I too got a virus that lasted about 2 weeks and sent me to the ER with extreme pain. I havent been the same since. I could ignore the pain before the virus, but now my life is upside down. I could always rely on my physical strength and my "can-do" nature. Now, I dont trust myself to be able to walk around the block!
lost in philly

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Topamax, Morphine, Effexor, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Knowing without doing is like plowing without sowing."


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/29/2009 1:22 PM (GMT -7)   
danibm said...
i did a little research, ya'll forgive me i had no idea - ok so it says incidents like my car accident can bring it on & lack of sleep as well which i have & that basically it changes something in the brain & makes us more sensitive to pain & stimuli?

Yes nearly everything make us more sensitive. I went to get a shot today for my birthcontrol. The nurse was taking my blood pressure and just the fact that the cuff was getting tighter and tighter hurt me so badly. Oh I just about came off the table and I almost said ,"Forget it. I'm not coming back." But I didn't because I really needed my birthcontrol. It's so nice NOT to have a period.
Hara

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/29/2009 1:36 PM (GMT -7)   
lost in philly said...
I grew up in a very stressful and depressed environment as a kid. I endured alot of traumas and betrayals from birth-19 years old, one right after the other and b/c of that, I battled serious depression, anxiety and suicidal thoughts. I have been on anti-depressants since I was 15 and a large part of my depression was due to the fact that I was dumbfounded that LIFE was so physically painful yet no one ever talked about it. I thought surely everyone else was enduring the same day-to-day pain I was! That was the quick downward slide of my serotonin depletion.
Compounding my mental state was the necessity that I help the family, and so I began simple yet manual labor jobs beginning at the age of 7 and despite two carpal tunnel surgeries when I was 21, I kept working physically demanding jobs until my body, just recently... quit .
However, the straw that broke the camel's back, was that I too got a virus that lasted about 2 weeks and sent me to the ER with extreme pain. I havent been the same since. I could ignore the pain before the virus, but now my life is upside down. I could always rely on my physical strength and my "can-do" nature. Now, I dont trust myself to be able to walk around the block!

I know how it is when you use the use of your body especially your legs or at least partial use of your legs. I had had some foot ailments going on and it really scared me when the foot doctor said if I didn't do what she said to do I would probably loose the use of my foot and leg. Talk about scaring the heck into me or rather out of me. I do still have use of both of my feet and legs thank goodness.
Hara

Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 4/29/2009 1:40 PM (GMT -7)   
danibm said...
i totally understand thinking everyone was in the same pain. i was baffled most of my life that people just ran around & did stuff so much & wondered why i couldn't, i had no idea they weren't in pain.

Some of us can't stop moving around and going out to do the things we need to do. I know I can't just stop doing the things I need to do. Yes I do have pain.
Hara

probull3t
Regular Member


Date Joined Sep 2008
Total Posts : 38
   Posted 4/29/2009 2:28 PM (GMT -7)   
Fibromyalgia is considered a syndrome that runs in families, but not everyone gets it because it needs something to pull the trigger. I doubt it ever set it off for me, because I was so young; but back when I was a child I had an abusive father that used drugs and beat the crap out of my whole family. I still remember getting picked up by my shirt and thrown down the hallway and I broke 4 ribs on a table. Also a step father I had when I was about 10 or 11 was a psychotic freak of nature. I remember him trying to chase me down with one of his shotguns. That night I broke both his arms and stabbed him with a steak knife.

Lol I really doubt that's what set it off considering my other post makes a lot more sense from a medical standpoint. Of all the crap that's happened than my life, there's one thing I can thank my father for, and that's to never be the person he is.

Hara
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Date Joined Mar 2009
Total Posts : 900
   Posted 4/29/2009 3:49 PM (GMT -7)   
danibm said...
sorry Hara didn't mean to offend? i was just sympathizing with the feeling that the normal folks can do way more than i can.

I didn't mean it if my posting sounded that way.. Oops my bad. I do to have Fibromyalgia to and can side with people that have a hard time moving around and the I can side with the 'Norms'.... But I was told if you don't keep moving and just stop you will never be able to move around good again. Sure I limp, whaddle, and grimmice sometimes, but then there days that I feel really good and I make sure I get a lot do on those days.
Hara
P.S. I was not offended

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 4/29/2009 3:58 PM (GMT -7)   
Just keep up the exercises. Don't do any that are going to hurt you. I told my Chiropractor that I couldn't do one of the exercises he gave me because it hurt. He said "OK, we'll just have to find out what exercises don't hurt you."
 
hehehehe - Hara

terrisews
New Member


Date Joined Mar 2009
Total Posts : 9
   Posted 4/29/2009 4:15 PM (GMT -7)   
My fibromyalgia started with a combination of lower back surgery and mono in the same year. After that, my body just progressively got more painful and more painful until I couldn't stand it anymore and I did some research. Voila, here I am!

Terri in TN
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